I read the blogs on here and empathise with so many of you. I suffered with what was thought to be Rhumatoid Arthritis for about 5/6 years before my final diognosis in June 2011 of Fibro. Don't know if it was the stress of a Carpal Tunnel op and then being made redundant made the symptoms of Fibro move up another level. I have found another job.Part time.(I'm a Pre school Educator!! i.e work in a pre school!) But definately my health has gone down hill this last year. It was reading the blogs this morning about washing hair. I too suffer most with my neck shoulders, upper back and arms. I also have Cervical Spondulosis. At the moment I do still manage to get in and out the bath.Painfully! I do still manage to shampoo my hair. It is very short now as holding a hair dryer to blow dry it went out the window months ago. So definately things are getting worse. But my question is?? Yes getting there!! How quickly have others found it has progressed? Is there a trigger that seems to suddenly mean you can't do this week what you did last? Is it quick or gradual? I also read how so many of you can't now walk far or need wheel chairs? In your experiences was this a quick progression? Or just slowly over many years?
Maybe it's like MS? My husband had a very agressive form of that and within 2 years of first being ill he went from needing 1 stick, to 2 sticks to a wheel chair. He has had MS for nearly 30 years now and has been in a nursing home, needing 24/7 care for the last 26 years.
I refuse to give in to this 'THING' but as I have definately seen a marked difference in my health and capabilities in just a year, it frightens me to think that in a short time I could be dependant on disability aids. I have just my 15year old grandson living with me full time now, but like all 15 year old lads is not at all sympathetic with anyone elses needs.
Sorry, another rambling blog.But I just wonder if Fibro follows a given pattern and in X number of years everyone finds they are totally dependant on sticks or wheels? I still drive at the moment, but have to be up for at least 2hours before I feel well enough to get behind the wheel. Hope I haven't depressed you all. Done a good job of depressing myself today! XXX