I've been finding that I cannot bear the sensation of the shower on my skin (or scalp for that matter). I've been trying to change the *flow* on the shower head, but it's so painful when it touches my skin.
Anyone else have this? Any suggestions on how to resolve it?
Fank yoooouuu
Spirit x x x
hi i know what you mean sometimes the gemtlest of things like water going onto your skin can really hurt or even wearing clothes next to your skin it sounds silly but itis not in your head it rfeally does feel awful so you again are not alone manty people have written this before in blogs bless you id ohope you get a littlerelif some how alhou i dont know how to advice you only tht perhaps have a bath whilst your skin is extra sensitive i bath every night and i love to have the warmth of the water around me it feels like it gets right into your bones love to you diddle xxx
Now this is going to sound silly i know but I have found when my head is extra sensitive I wear a baseball cap loosly on my head in the shower. Daft but effective. Elaine x
Yeah i have that feeling sometimes and gonna see if i can find a shower cap of they still exsist.
Hi can a be a Bi**** what about a bath ?
its longer if you sock but you could just wash in it xx
sorry Gentle dyslexic hugs
i find a bath hard to get in an out of and yes a shower sometimes painful! so loose loose in both cases! but tend to go with shower so it dont hurt my hips as much as getting in an out of bath
I find it's more the temperature of the water in my shower that can be uncomfortable. I get days where I like a hot power shower and other days when my pain is bad, when it has to be a gentle tepid temperature shower. I think it's the when my temperature sensitivity kicks in that I have to get my shower just right.
Might have to go back to the bath Lexie. Thing is, like emadavies, I find it hard to get out of. Hey go - maybe I should just get the OH to give me sponge baths 
Hi Spirit
I'm not sure if its an FM thing but I have altered pain sensations all over. Mainly caused by snow burn sensation and bee stings from my nerves picking up on the shingles pain and incorrectly copying it to the rest of my body. My extra diagnoses of functional disorder explains this in my case. I sometimes cant bear even clothes or bedlinen on my body. Water from a shower or flannel will also hurt me on occasion. I'm led to believe that if we suffer from a chronic pain syndrome or FM for long enough that it is possible for our neuro signals to be corrupted or interrupted thus causing us lack of sensation or hightened sensation. Itt explains why I "forget how to stand up" and fold like a pack of cards. Its not the alcohol honestly!!!
I am trying to re train my nerves, but its hit and miss and I havnt got there yet. Every couple of weeks I have the "cant bear anything" sensations in addition to the bee stings.
I try showering with head away from shower head and only wash hair on days when the sensations are normal. Gradually I am getting less days like it. Strangely for me Warm moving water that I can submerge in is always pain free. Bath is best but yes its hell to get in and out. A neighbour has just been issued a good gadget that pumps up a seat in the bath so she can get in and out freely but they wont give me one as I have a disabled shower (paid for and fitted by myself). Maybe you could enquire about bath raisers if your situation is different.
Hang in there Spirit
Happy thoughts NN
hi hot baths are good for so pain management dr said ?? i worked in hot( very hot ) place did not relate to this until they teramated(sacked) my employment . long story canot get my head round thinks at moment keep smiling dave
Is this normal?
Is this normal?
Is this my life of fibro
Guess what this is meant to be 
