Hello, I retired at 43 from teaching because of Fibro but was told it was depression. I retrained as a gardener but surprise, surprise the fibro got worse!! I was still told the pain was all in my head and I was suffering from depression. Eventually my Consultant Psychiatrist said my pain had nothing to do with depression, so I saw a rhumatologist and was diagnosed!! It took around 15 years from onset of symptoms. Now I am trying to pace myself and teach Dog Agility and Obedience (My Teacher Pension means I can't resume career even doing part time work)
Doing what I do takes on average 3 hours a day but leaves me shattered. Buying equipment and venue hire means I earn less than permitted work but I'm trying to build up my business because I'm told I'm fit to work. I have very painful disturbed sleep, I sleep/rest all morning, take it gently in afternoons sometimes with one hour 1:1 dog/handler training session and usually a dog walk, then classes in the evening. I can't go to sleep until I've had at least 2 doses of pain relief and in the morning more before I sleep again. I am anxious about driving and going to new places and can feel rising panic when things out of my control happen (planning permissions, rogue builders, being disliked at church because I didn't fit their mould) I find it very difficult to trust people as experience has shown most people are not to be trusted.
I have an appeal tribunal coming up. If anyone sees me teaching at my agility or obedience clubs they would say I was fit and well. I am physically fit, can lift, run and move about as I push the pain barrier, ignoring a body screaming at me to stop and the fatigue this causes. What is not seen is when I am at home when the adrenalin drops and the pain + fatigue kicks in. I tend to sit doing nothing and 'lose' time until pain relief starts to work. Then I rest or sleep.
Because I get a teacher's pension my benefit money has been stopped but national insurance is still paid. I really can't face going to the benefit appeal tribunal. I'm getting so anxious. I don't think its worth it. The original 'medical' said I was fit to work. All my medical evidence was ignored because I looked well. (You do if you follow medical advice and pace yourself with rest periods during the day and not pushing yourself as I was then!!) I don't want to go through it again. My friend says I should go but whats the point?