Hello everyone, I need your advice. To make a long story short, I have only been dealing with fibromyalgia for 8 or 9 months. It started with simple body aches but over time my symptoms got worst and I now have to take pain medication for the body aches and I’m tired all the time.
I have just spent the last 4 days in bed. I seem to be in a vicious cycle. Within an hour from when I wake up my body starts to ache. Since the doctor has not yet found any medication to ease my body aches, I have to take a pain pill. For the next hour I try everything I can think of to get some relief until the medication kicks in. Even though I just woke up, I’m so tired both physically and mentally that sometimes I’m in tears until the medication starts working.
Once I get some relief, I get something to eat and then a couple hours later I’m so tired that I go back to bed. Oddly enough, I can usually sleep for another 6 to 8 hours until I wake up again and start the entire process all over again. When I can't sleep I have no energy and can't concentrate.
Is this how everyone with fibromyalgia lives?
Those who have read my previous post know that I have to sell my house because I have no money coming in, but due to my fatigue I’m going to have to hire someone to clean and pack for me. (Thank God for credit cards) My plan is to live off the money from the house and hope that my disability is approved before my money runs out. However my doctor told me last week that most people with fibromyalgia get turned down because, on paper, there is nothing wrong with me. The doctors cannot find the cause of my problem, (no disease) so on paper I’m fine. That also goes with my insomnia and my anxiety.
I then went to my therapist and told him my situation hoping for some useful advise. You know what he said? “Be like water.” He knows I have been though some tough times in my past and got through it so he tried to convince me to adapt and be like water. How can I adapt when my life goes from body aches to sleep and back again. I have no energy to adapt. If I were to be like water, I would soon find myself in the street.
Is this the life that people with fibromyalgia get to live? If so, it sure dose suck.