My rheumatologist wants me to go for this test as my skin has a mottled appearance (attractive...NOT)
lucy xx
My rheumatologist wants me to go for this test as my skin has a mottled appearance (attractive...NOT)
lucy xx
Yes, these should be done on everyone being diagnosed with Fibro to check for Lupus, and Hughes/APS, etc
Hi Lucy
Yes hon, I have antiphospholipid syndrome otherwise known as Aps/Hughes syndrome as well as the fibro.
The ana is an autoimmune indicator!
Glad that you have a rheumy who's on the ball and ruling other things out. The mottled skin can sometimes be an indicator of Aps! Please don't scare yourself with all the info out their.
Health unlocked also has a Hughes forum, started by the Hughes syndrome foundation. I'm a member and admin on their, have a look, but as I say lots of patients on their have other conditions too, so symptoms are varied!
Take care gentle hugs love Sheena xxxxx
okay great thanks for that...ive always had corned beef legs....especially when cold...when i was a little girl i was very good at ballet, gymnastics albeit with spam/corned beef legs...i have been dianosed with hypermobility syndrome scored 7/9 beighton test....i used to be able to put my hands flat on the floor but not now (cant get past my fat stomach) Anyhow...had 2 chidren, no problems no miscarriages,no headaches and no symptoms of Hughs syndrome so i reckon its just my normal mottley look....
My rheumy is fab and quite handsome too
Hi.
Sorry to but in but ive got a similar question. I had a blood test a few months ago and it came back normal except for a high ana reading so was sent back for another test a couple of months later. It was still high. I was told it can be a sign of an infection and if i got a sore throat or my glands came up to make an appointment with my GP. Do you think i should question this? I havent had any of the tests to rule out anything else as fm runs in my family. My rheumy also kind of signed me off saying they would see me in 12 months unless i had a problem and then i could make an appointment to see her again.
Thanks
Love and huggles
Chilli xx
Hi, I have never heard of this. x x x x
Thanks for all this info, crikey, i learn loads from here about this vile condition that robbed me of an active healthy life....i am a determined kinda gal and refuse to give in even though i hurt so much...im going to be pacing myself from now on and will be doing gentle yoga, swimming and some pilates to make my core stronger so i can hold my body up properly .
Had a look on the hpermobility syndrome forum and loads of people are mottled ....it seems quite 'normal' for hypermobiles to be spam legged