Embarassed to ask...but here goes. Toilet question.

[Ruth14]

I've had IBS as long as I can remember, but since having FM find that after a 'poo' (soft or hard), I have no energy. Every bit of strength I had just goes.... excuse the pun, but I'm just wiped out! Do any fellow members have this problem? Sorry but waited months to ask this.

[Kasha]

I dont have this problem so cant help I'm affraid But I do have IBS, I wonder if IBS is common in people who suffer Fybro?....I would speak to your doctor about this because it doesnt sound right...hope your feeling better very soon xxxxx

[LindseyMid in reply to Kasha]

Yes, IBS is a common symptom or comorbid condition (occurs alongside) of Fibro.

[lulu09 in reply to LindseyMid]

im either cant go to the loo or ave the trots is tht also due to fibro x

[Hidden]

Hey Ruth, gentle hugs.

I'm in the same boat - IBS is a pain in the bum! Pun intended! Once I've had a sit on the Throne - am wiped out and am no good for at least an hour and a half.

It drives me mad a lot of the time - Once I even fell asleep as IBS was so bad and exhausted me there and then into Zzzzland right where I was sat!

Love,

Carol xx

[Ruth14 in reply to Hidden]

I'm not alone then thanks xx Will add this to my tribunal answers perhaps. Thought I was the only one with this and that it was 'in my head'. Your answer has really helped, thanks Cadee, off for a nap now

Luv ya back

Ruth xx

[Hidden in reply to Ruth14]

Glad I could be of help! Enjoy your nap xx

[Hidden]

I've had IBS since I was little , and to be honest it's caused me as many - if not more- problems than Fibro.

For years I had constant diarrhoea , and then once I hit the menopause it switched to constipation.

Going to the loo everyday for me is total exhaustion now , I have anal fissures which are really painful and bleed a lot too .

Trying to find a balance of food that won't either have me running to the loo 10 times a day or not going for days on end is a challenge ! I have to take Lactulose every day so I go and then codeine if I go too much . I'm sick to death of it !

I've got 2 specialist appointments coming up next month , one to deal with a rectocele and one to deal with the fissures and I'm dreading them as surgery for both seems the only viable options .

I'm actually so scared when I do go now that I shake like a leaf and am absolutely exhausted afterwards , I plan my life around going to the loo !

Hugs

xx

[Ruth14 in reply to Hidden]

Helen, I have the same problems. When I was a teenager the doctor would say to eat more roughage, but I soon learned that this made things 100 times worse.... in agony with cramps. I had no problems for years due to watching what I ate, but since having fibro the pains and exhaustion are worse. At the moment I am waiting for a tribunal for ESA and have had diarrhea for the past 3 weeks.... sure it's the stress of all of it!! Can't concentrate on anything that needs done in the house!

Be kind to yourself xx

[Hidden in reply to Ruth14]

Oh I hate that , as soon as something has to be done or you have to be there the diarrhoea starts . I have to plan appointments for afternoons to give me enough time to be able to " go " and then get enough pain meds down me to enable me to sit !

I'd say it;s definitely stress related.

xx

[lulu09 in reply to Hidden]

me to hun i feel like im the only one its horrid i feel for you to xx

[Hidden]

hi yes it is a common sympton of fibro (ibs that is ) i have it too and sometimes in a flare you do feel wiped out it is awful isnt it what some people do in there normal daily lives can have such a stupid effect on us love diddle x

[floozy]

Hi , me too makes me feel even more exhausted than normal, ive been referred to a bladder and bowel clinic so hope they can help x

[Hidden in reply to floozy]

I went to an incontinence clinic floozy and thank god I did , the nurse there was far more helpful than my GP and referred me straight to specialists . I'd just been putting up with it .

Although it might mean surgery to sort out, at least I'll have options.

Hope you find the clinic helpful

xx

[Hidden]

Interesting points there folks - I've found the hardest thing to come to terms with since I've had Fibro is that I consciously have to think about the toilet whereas before I just went and never thought about it at all! Everything with Fibro has to be a conscious effort doesn't it, even the most natural functions! I find that on my bad days going to the bathroom can be quite an epic whereas on my good days I think less about it, I think that's probably the same for most of us. I sympathise with IBS sufferers as this can be so invasive on a person's life.

[soulsusie]

Hi guys, just imagine having IBS and flying long haul, just pray you are near the toilet and have a spray with you, I have had many embarrassing momments!!

Hugs x x x

[sadzapple]

i have no control over my ibs and sometimes have accidents that i get very frustrated over so i totally understand what your going through xx

[cxs957]

I find it very difficult to deal with my ibs, all of my friends are guys and.I'm meant to be the cute lil girl (that is how I see my self lol) and yet when we are out for dinner I tend to disappear for.a while. they all know but I find it embarrassing

in terms of fatigued afterwards, yes I would say so, other than when I have diarrhea it is difficult to go and seems to take a lot of energy.

[bbfreak]

My IBS also changed from going all the time to constipation after the menopause, I actually feel better once i've been because being constipated makes me so sluggish and tired. Thinking of asking for stool softener.

[molkosmissus]

Urgh...i hear ya..dont b embarased...u ar.defo not alone. I get soft poo a.lot with my.ibs..on mon i had gone 6.times by 11am.exhausting x

[foggyness]

Hi all - I'm a fellow Fibro sufferer who also has IBS and Ulcerative Colitis. I fully understand the problems you all mention. Over the years I have sat in silent agony as been too embarrassed to use the loo . . . . can only wait sooo long tho!!!!!

The IBS and UC mean I have an urgent need for the loo and the Fibro stops me getting there at any speed or they can cause me to be in the loo for 45mins or more and then the fibro stops me being able to do anything due to pure exhaustion.

I'm getting ESA but have had DLA turned down - the fight continues I guess.

Hugs to all of you.

[cerin]

yes I'm the same....it's knackering hun.x