Running out of patience. Where do yo... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,987 members67,154 posts

Running out of patience. Where do you turn to next?

tulips123 profile image
10 Replies

I've been housebound since last summer. I am lucky in so far as I live in local council adapted bungalow, with nice neighbours, and the most wonderful 2 daughters anyone could wish for + 2 very special, lifelong-friends I couldn't imagine living without. I would challenge anyone to find a more caring and considerate g.p. + consultant. So why do I still have the nerve to complain? The walls are closing in on me. I have mobility scooter that i've used 3 times, because I can no longer manage the 3 steps in/out my front door! A ramp/gate widening/weather-safe socket to charge scooter was approved last November. For hospital admissions/outpatients they have to send 2 ambulance crews to collect/bring me back again. Well last night I snapped, and e.mailed my local M.P. I was stunned to receive a reply this morning confirming he would look into my case and get back to me!!! So I thank you Mr Conor Burns (Conservative - I know, who would've guessed) for giving me some hope for improving my quality of life for which my family, friends and I cant thank you enough. Just please, please, please dont let me down!

Written by
tulips123 profile image
tulips123
To view profiles and participate in discussions please or .
10 Replies

good on you for going into action, I hope this matter can be resolved soon good luck

tulips123 profile image
tulips123 in reply to

I cant tell if I sent my reply so forgive me if I'm repeating myself, thank you for good luck wishes. Suspect we could all use some good luck at the moment!

beth2 profile image
beth2

well done tulip I wish you luck love beth x

tulips123 profile image
tulips123 in reply tobeth2

Thank you. Just wish I'd gone for it before now. Fingers, and everything we have that wont hurt, well and truly crossed!

scrumie profile image
scrumie

Hi tulips well done you hope MP does what he says good luck will keep everything crossed for you. soft hugs xxx

tulips123 profile image
tulips123

Many thanks scrumie, will post when i have news. If I get good result, perhaps all should start pestering M.P.'s, from Lands End to John O'Groats! Some unfortunate people have always slipped through the system, but it seems to be getting worse. Too many people who already have more than enough to cope with are facing horrendous battles to prove obvious entitlement. Take care.

poppy-03 profile image
poppy-03

hi you need to get your OT to inspect your living conditions and if the adaptions to the front steps cant be changed they can upgrade your banding so you can move toa more suitable accomadation which is what i did. I am A band , high priority and am finally going to view a level access bungalow with my OT who will see if any further things need doing. your GP can refer you also adult care can often provide support too.

good luck,

hugs poppy xx

jayjay profile image
jayjay

Hi tulips,

I also had to have a ramp so i could get in and out of my home in my wheelchair, my OT sorted it all out although it took about 3 months before it was done and finnished, hope it gets done soon, love and hugs xxxxxx

tulips123 profile image
tulips123

thank you jayjay. I'm more hopeful now than i've been for a while, and I do appreciate the words of encouragement. :) xx

linksy profile image
linksy

Hope you get the help you need maybe a ramp outside to help you be able to get outside more often asap as it makes so much difference if i can get outside to sit in the fresh air lesley x

Not what you're looking for?

You may also like...

Where do I turn

Hi all I was diagnosed with Fibromyalgia back in 2019 after seeing a specialist in...

Who do I turn to. (Please don't judge)

I really did not want to bother anyone with this, and the fear of being judged because I have been...
saxcat profile image

Advice on what to do next please.....

Hi Guy's I hope today isn't too painful for you? t's the first time I have written into the site, I...

I feel like I am running out of options

Since the opioid epidemic hit crisis status in the US it has been extremely difficult to get...

Always foggy and don’t know where to turn...

I’m hoping people will able to help me understand what I need to do, I’ve not posted before but...
Mads3696 profile image

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.