I found out i my vit d level was only 15 a couple of months ago. I have been taking vitd and calcium tablets since then and i dont feel any better for it. I never used to beable to sit in the sun but i catually managed it this weekend. I actually have a tan even on my legs lol.
May be speaking too soon but I have been on high dosage vit d for a few weeks and there is no doubt that I am having less pain. But no difference to the fatigue though.
Hi annemcc,it`s not always that people with fibro have vit d deficieny,but being deficient can cause fibro or fibro like syptoms.
If you read up on it you will get the explanation as to why darker skined people are more prone to it.I`m no good at doing links so cant help there.
I actually have been thinking the more I read on here that I don`t hve fibro.I do have sjogrens and that has some of the symptoms of fibro,but it is an auto immune syndrome which causes inflamation,where as fibro does`nt.
Reading about it,it has made me think that when we see our g.p`s in the begining,a simple test for vit d deficieny should be done.
The reason a lot of people are now deficient is that we have been told to slip,slapand slop on the sun factor.Where really we need to have at least 1/2 an hours sun before covering up.Even with a low factor it stops us absorbing natural D by a drastic ammount.
I blister in the sun so avoid as much as poss or use factor 50.Hence my problem,although I have always tried to make up for it with my diet.
Vitamin D deficiency is one of the simpler things that should be checked for during the diagnostic process and again during any flares (particularly in winter/spring) but rarely is checked for.
hi i am fair skinned have fibro vit d deficiency and thyriod problems. It is very common with fibro pts but is getting more common with children, new guidelines say we should get thirty minutes in the sun before putting sun block on. take your meds as when you are older you will end up being diagnosed with brittle bones and broken hips x
Hi glochessum and welcome, as I haven't seen you before,
Funnily enough, my GP told me the day before yesteday that my vitD was low..
Like you I went home and googled it. Below are two links, one to the Fibro Action Main site, a wealth of info and a link to a US blog, that contains a lot of really useful info on, skin types, how much sun you need, foods that help and supplements. Worth a look anyway.
I had a blood test about four months ago and my Dr phoned and told me to pick up a prescription he had done for me because i too was extremely low in Vit D.
I have to take 3 slow release capsules once a week for 12 weeks then have my blood test done again. I have just taken the 11th dose this morning.
I musy admit i have been feeling a bit better for the last few days but thought it was just having the sun out - it always makes me feel more up.
hi my consultant done blood test on me and everyone who has fibro has a very low vitamin d. my doctor give me ad-cal which i take 2 times a day for life. i told my friend and her doctor has also put her on vitamin d. so please all get tested for vitamin d.
Hi roslyn,I`ve been given ad-cal quite yummy arne`t they.
My g.p also said I would have them for life now as I do have a thing about breaking toe`s and fingers,how I didn`t break something major easter sunday when I fell down 7 steps I will never know.
I did have a bone density scan back in the early 90`s and was told I had the bones of a woman twice my age.I was 35 at the time,but no one followed up on it.
So maybe my next step is a scan again.
Would be interested to know how you start to feel on them.
hi butterfly54, i have been on ad-cal for over a year nail the things i noticed was my body hair has started to come back Grr not happy as i have to shave my legs and under arms. also my hair has started to grow again it was getting thin on top also lost loads of hair it just fell out. also my nails are growing and i can use nail polish again every one at our support group asked if they are false. i also am asthmatic and always get a chest infection when i get flu this year had a bad cough but no chest infection so vitamin d must be working . i have never had any scan's but had a x-ray on my knees and it just gave way all the time it showed i have oa so that's not good also have inflammatory arthritis. i have had a few bad fall's luckily i never broke anything.hope you recover soon from fall. love and gentle hugs rosylyn. [:))]xxx
Thanks for that roslyn,my hair has been coming out in handfuls and my nails are a mess,so got something to look forward to.
My main hope is it will help the fatigue some,but I reckon I`m banging my head against a brick wall on that one.
I have sjogrens on top of all the osteo arthritis and everything else.
And that causes chronic fatigue,so don`t hold out much hope.
Anyway I will look forward to keeping my hair and nice nails LOL
Love and hugs Butterfly54 xxxx
Its a fact that people with our conditions do not absorb the vitamins like a normal healthy person .
My consultant told me this 22 yrs ago , he sent to a Lady in Southend called Erica White , i spent over £300 ,but i found i couldn't take all of them , they made me be sick , so since then iv been finding out other vitamins that are the Super Vitamins .i can say i Deff feel better an when i don't take them , im ill in bed , can't move so much pain.
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