Which consultant can help Fibro/ME

[Jeannie]

I was diagnosed by an endocrinologist but wondered if I should ask to see a neurologist or Rheumatologist ???? Endocrinology has given me treatment for thyroid. And GP gave Pregapentin and Amipritimine and strong pain killer but

I feel very poorly and may lose my job

[bobbin]

my gp sent me to an ME specialist and i am now waiting to see a Chronic Pain specialist, hope this is a little help x

[fibrodave]

Hi

You need to ask your own GP to refer you to a Rheumatologist, who should examine you and then decide if you have got Fibromyalgia. I would suggest you tell us what area you are from and then someone in your area could suggest a local specialist, I was referred to Blackburn Royal and was seen by a senior Rheumatologist and then sent to the pain clinic at the same hospital, there is nothing they can do, as Fibfromyalgia has no cure as of today, I take lots of pain medication just to get through the day, if you lose your job because of this illness then you need to complain and again I am sure there is someone on this site that could help you, I can offer you moral support, take care

[Jeannie]

I am from West Midlands. As far as I'm aware the endocrinologist I saw is one of the few people in my area with an ME/Fibro clinic. He says there is no cure and when the tablets he gave me didn't work he didn't offer an alternative (Gabapentin) GP gave me Pregapentin which is better. I'm not even seeing him again until August. Are pain clinics useful

I'm struggling to believe this awful pain has no actual cause. It's affecting my mobility and seems to me no one gives a stuff and I can't believe it's happening keep thinking one day I'll wake up and be normal again

If u know any docs in my area would appreciate to know

Thanks

[Hidden]

The best thing to do Jeannie would be to see your GP and discuss it with them to see who best it would be to refer you to, either a Rheumatologist or perhaps a Neurologist. That would be a starting point for you. As you are feeling so poorly at the moment, it would be a good idea to see your GP anyway to discuss this as well. I really hope you feel better very soon, take care.

[LindseyMid]

Your GP may be able to work with you to get a better treatment regime going. If he's not confident in doing so, even with information (e.g. from FibroAction and NHS Choices), then a referral to Pain Management may be of use. Your GP can also refer you to physiotherapy (see the FibroAction blog on Physiotherapy first).

Rheumatologists have traditionally dealt with Fibro, but it isn't like all the other conditions they treat, so unless they have a personal interest in Fibro and have chosen to specialise in it, they may not know much about treating it. Many neuros don't realise that Fibro is their kind of condition.