WELL DONE GUYS HOSPITAL - EVERYONE NEW TREATMENT TEAM AT GUYS HOSPITAL, INCLUDES, RHEUMATOLOGISTM, PHYSIO AND NEUROLOGIST

WELL DONE GUYS HOSPITAL - EVERYONE NEW TREATMENT TEAM AT GUYS HOSPITAL, INCLUDES, RHEUMATOLOGISTM, PHYSIO AND NEUROLOGIST

Hello everyone,

well i can not believe the conversation i have just had with Guys Hospital Rheumatology fibro clinic. i had been signed off by rheumotologist and referred back to GP re fibromyalgia. i know Prof Davis and Guys intention were to create a clinic of excellence on fibromyalgia. well, i have just been told when i recieve my appointment next week, it will include an appointment with rhuematology, physio and neurologist!!!

this is definately a step in the right direction.

as some of you might remember i was very happy last week as i was sent to Barts hospital neuorology in relation to my headaches. they have agreed to conduct tests re mri of blood flow in brain and a cognatiive test to start with.

i was very happy with consulation to be having tests on blood flow as i am concerned with severity of headaches, blood pressure and possible stroke.

also i think the cognitive test (100 questions) may be helpful to us re ESA, DLA and appeals. arrangement have been made and i am awaiting letter for the london hospital whitechapel. i promise to keep you all up to date on this.

however expecting my guys appointment was purely for professor davis rheumologist only. i know guys hospital intentions was to create a centre of excellence and it now appears they have. i know the firbo groups work closely with prof davis so i would like to say well done to fibro action etc too.

so my advice, anyone signed off back to gp and worried about symptoms, should ask their gp for referral to guys hospital fibromyalgia clinic, through the click and book methods.

NB my GP had trouble locating guys dedicated fibro clinic on line, however found it under (gp form states) rhuematology sports, guys site-rheumatology - guys & st thomas - RJI Guys Hospital. so it might be worth telling your gp this info too.

good luck everyone

9 Replies

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  • Wow Happe, I am so pleased for you, that sounds fantastic everything all together at Guys, will you get to see Prof Davis or don't you know?

    Good Luck anyway

    Soft Hugs,

    Sue x x x x

  • they chap in appointments said it may be professor or one of their other consultants who focus on fibro. i would like it to be prof davis but as long as the rheumologist is knowing and understanding of our condition i will be fine with this also. physio and neurological under one clinic is definitely a progressive step in the right direction. it will be interesting to hear what this neurologist will suggest in terms of possible tests and treatment.

  • LOL apologies for my grammer and wrong words. stupid firbo cogs....

  • I've had my appointment with the new team at Guy's and found it very helpful,a step in the right direction and it made me feel so much better,so I too congratulate them

  • This is great news. I look forward to hearing about the improvements that they can make to your quality of life :-)

  • this is great news!im sure my sister was in guys hospital years ago when no one knew wot fb was?lets hope a break through is made&also they help your headachs&blood presure.hugs xxx

  • Hopefully more of these clinics will spring up around the country, they will be overloaded if they get referrals from everywhere. Sounds like an excellent idea though xx

  • deal all, fingers crossed a dedicated clinic will soon show effectiveness and hopefully identify any possible co existing conditions. as lyndsey says small steps x

  • So please do tell us how your appointment went!

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