Fibromyalgia Action UK

Raise money and raise awareness

If you're wondering how to make a difference for Fibro in the UK this year, with the International Awareness Day coming up on May 12th, please consider doing some fundraising for FibroAction!

It's an unfortunate fact of life that without money, charities are limited in what they can achieve. FibroAction receives no Government funding and currently receives no grant funding either*. Since I started FibroAction 4 years ago, the charity has been run on donations alone. We've always made a point of trying to achieve the maximum impact with the minimum amount of money and I think we haven't done badly, but lack of money has and does limit what we can do.

The big charities that have managed to make a huge difference over the years to their causes, such as Cancer Research UK and Help for Heroes, have so many people fundraising for them every year. Not just professionals, but individuals like yourself who have decided to do something for charity and have gone out and done it.

Fibro affects around 2 million people in the UK. If every one of us raised even a very small amount for FibroAction, what couldn't we achieve?

You don't have to be an official part of the FibroAction team. You don't have to run a marathon. Here are 10 ideas for fundraising, from the serious to the wacky:

1. Sponsored events - These can be almost anything. Maybe a walk or 5K race if you're up to it. Perhaps a "virtual challenge" of swimming the English Channel in your local pool. Or shave your head or dye your hair. If you're a guy then sponsored waxings or fish pedicures can be popular! Or get a tattoo. Or get sponsored to sit in a bath of beans. Or hold a sponsored video gaming marathon! Or just give up chocolate for a month. It almost doesn't matter what you do, so have fun!

2. Open garden. Some supporters did this in aid of FibroAction and Help for Heroes jointly a few years back. They asked for a small sum on entry and then took donations for cakes and tea as well.

3. Ask for donations instead of presents at a special event.

4. If you're artistic or crafty, ask for donations in return for a piece of your work. Or organise a local craft fair.

5. Put your cooking to the test and host a dinner for friends, asking them to donate what they think the meal is worth to FibroAction!

6. "Guess the..." competitions. These work best when you have a group of people easily available - e.g. your local support group or at work (ask your boss first!). Whether it's identifying who the baby photo is of, or how many jellybeans are in a jar, or how much a colleague's new baby weighs, you may be surprised how many people will pay a couple of quid to have a guess!

7. If you or friends are beauty therapists or complementary health practitioners, host a pamper day or evening, maybe for your local support group members and ask them to donate a small amount for each therapy - you could ask for donations for refreshments as well.

8. Hold a bake sale, maybe at your local support group or a local event.

9. Organise a quiz evening.

10. Bucket collections. Maybe ask your work if you could take a collection bucket around (the UK Awareness Week could be a good opportunity for this). Or see if you can apply for a collection slot on behalf of FibroAction at your local store or sporting venue. Do remember to contact us so we know you're doing this on our behalf though - and we should be able to loan the buckets if you can organise this and get a few volunteers locally.

If you're fundraising for FibroAction, we can send you out a fundraising pack with a t-shirt, flyers, sponsorship forms and details of online fundraising. Email us at with details.

And remember

Small Amounts x Lots of People = A Big Difference

*If you have experience of grant funding applications and would be interested in helping us out, we'd be very interested to hear form you - please email

10 Replies

Hi Lindsay....if you manage to get a marathon place next year, my husband will definately run for FA....he raised £2000 for a charity this year.....

Or failing that if there are other events that you would like him to run or cycle in then please get in touch. I'd love to say I'd do the marathon, however I think it would kill me.

However when my work position changes( complicated story), I could do the marathon, however if you got me massive media attention and maybe asked a top Fibro Dr to do it too with me we could increase awareness. I'd do it like Evil Kenevil...may take me a long time!!!! x


Hi Rach

We're still waiting to hear on the London Marathon - getting charity slots now is really really hard. If we're lucky we'll get 1 every few years.

If you know of other runs we could apply for charity places for, please do let us know. Or if he wanted to enter any local races individually and then fundraise for us, we have the online fundraising set-up and would promote it as much as we could.

We're hoping to bring a volunteer fundraiser onto the team over the few months and one of their first jobs will be sorting it out so that people can do parachute jumps and major challenges (like Kilimanjaro!) for FibroAction.


He's up for fundraising, however the problem is that he can't keep asking people to sponsor him, people generally get annoyed with it. So it's best if he can run for big events, then people are more likely to give money!!

However if he did one event and everyone on HU sponsored him £1 that would make quite a bit of money!!!


Do let us know if there are other races we could get places for (or just ask someone to do for us!). For some people, a 5K might be a major challenge.


Ok will do. Looks like it's just us two doing the fund raising!!!!!!


Just an observation......everyone on here wants help and raised awareness of FM, however I am the only person who has commented on this blog and come up with a few ideas!!!!

If you guys want help, then you have to help yourself and contribute rather than sit back and let others do it for you!!!!!

Don't take offence anyone......however positivity and thinking ahead makes life easier!!


If you shop online, you can raise money for FibroAction whilst shopping, at no cost to you. Find details here: fibroaction.healthunlocked....


I have bought a fibro action Tshirt to help with funds

all the very best to all



Can you tell me where I can get purple wrist bands to buy



We don't sell wristbands atm. Purple is the International colour for Fibro but when we started FibroAction, another UK charity had already decided to use yellow with black dots instead of the international colour and this was then being used by other UK groups and campaigns. Hence our yellow & black butterfly (a bit more attractive than black dots on everything I thought!).

If you'd like a purple wristband you can buy them from many of the wristband manufacturers (do an internet search) or some American charities.


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