i know its personal but....

[Jannieyes]

does anyone else find their libido is affected more than just by the exhaustion and pain?

[amanda38]

i have no libido is very hard especially when u love someone and cant be intimate but i think to myself what if my partner has enough could be all the tablets as well. If we are intimate i suffer with really bad pelvic pain.

gentle (((hugs))) xx amanda xx

[Cleaner]

I am the same I also think its becauce of all the tablets I'm on. Xxx

[BlueBunny]

Yes non existant, glad someone was braver than me, Its not fair on my hubby xx no tablet and I dont think depression helps, I've had a difficult time and a lot to deal with and I'm just exhausted full stop, so thank you for reminding me I have a question to ask about antidepressants for fibro suffers so i'll do that while I remember.

Be well xx

[SuzySparkle]

I too have no real desire - I think it is a hormonal thing as much as the tablets. I think fibro interferes with hormones. I feel fortunate that I am single sometimes so you don't feel as if you are hurting your partner emotionally and this just adds to feeling down. *{}* xx best wishes all xx

[glochessum]

Libido!! what is that I really can't remember. I think I had some once. We can live in hope that one day it will return.

Keep your chin up.

Gloria

[Hidden]

I can join in with that, have never told anyone before but we actually sleep in seperate rooms,

we get on fine but more like good friends mine is due to having a lot of medical issues, and medications and over 9 surgeries so there is always something hurting, but the biggest one was losing a breast to cancer then having a hystorectomy never really went throught menapause the treatment shut down my hormones in less than 2 weeks so it was the fastest libido crash ever it just never came back .

And I was 53 yesterday so not that old but my body feels it is.

Maybee there are a lot of us the same but its not just something we can talk about face to face? x

[Hidden]

hi def you are not alone i have been with my partner for 8 years we dont live together and he used to stay at weekends the last time he stayed was at christmas so that is 5 months now and he never says anything to me so i am lucky there

the thing is we are going away to london end of may for 5 days in a hotel with my parents it will be the 1st time we have slept in same bed for 5 months as i am up / dpown fidgetting about or awake it is not worth him sataying as it will distueb him and as for being close to each otther well i am in pain and i really dont feel like anyone toching me but i do think alsoi have now got in arut with that side of it and the longer it goes on the longer i am letting it go on so perhaps the london trip will do us good will leave the jury out on that one

but jus wanted you to know you are not alone but hope your patrtner is sympathetic to you too love diddle x

[fairylady]

Yes same here I have no desire at all,

I am single now and hapy to be I couldn't deal with the pressure of feeling that I should perform and the guilt, It is another stress I dont need but then I suffer really bad with depression too I am sure it happens to alot of us, xx

[catleigh]

I have no desire either but its partly the Fibro (pain) and partly my weight

[jazher]

Yes mine has gone too.

I have had problems for a couple of years now and i havent done anything for over a year now. I have a partner of 15 years so its not a really big problem at the minute. I just hope it will come back but i know that my meds have a big part of it and of course then thers the pain and i am useless by night and i am always first up to bed.

hugs, kel xxx

[dizzyduck]

The desire has gone, I have spoken with my GP, I have even asked for female viagra, whcih they say is not available. My poor devoted husband has been living with my illness for over 20 years, the poor man. we've tried everything.

I have real empathy with you all, When you love someone so much, you feel like you are letting them down. However when they love you back so much they are happy just you being there. XXXXXXOXXO

[retiredpharm]

Yes---------------. Very frustrating thinking I ought to try but then if nothing works it is even more depressing

[Hidden]

mine comes and goes, at the moment its not too bad, but being married for 36 yrs and always having a good sex life, its tough to keep it going, we do try

[Larke]

losing your libido when you have FM is very common apparently, it's a side effect to most of the drugs I'm taking lol. it's not an issue for hubby and I, we both have chronic pain. we sleep in single beds (in same room) even. It works for us and we're doing just fine

[mrsdepp]

i dont seem to have much of a libido any more it used to be much higher,im lucky because my bf has a very low libido as hes got older!

[Hidden]

I must b the exception to the rule, mine has increased as I got older, tho having a bf who is 20 yrs younger than me probs helps the last 11 months anyways lol. Can't always act on my horniyness but honestly hope this isn't too much put when we are able to orgasm gives me the best pain relief I've ever had, guess its the total relaxation of the muscles n mad rush of endorphines that does it ;0) just wanted to put the other point at 48

& having chronic pain problems since I was 15, being in love, someone who can still fancy me , see the real me past the pain, medication & hospital visits is such a wonderful thing, sometimes we get so destroyed by this terrible animal called Fibrovthat sweeps into our lives uninvited and reaks havoc day in day out, its good to b reminded that we are all incredible women & men , who are more than our illness. Hope I haven't upset anyone that was never my intention having a rough few days , so sleep has been on it's holidays for days hopefully it will come back to visit me soon lol gentle hugs Karen

[Jannieyes]

karen, what a relief to hear such a positive story!!! i have to say the sweet release moment never hurts just straight after the cramps in my hips do hahaha.

im very happy for you and thank you for sharing, i think to often we can get bogged down by our pain and misery but i find it heartening to hear a happy story...go you