I dont know: I dont really know if I... - Fibromyalgia Acti...

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I dont know

KageMorgan
KageMorgan

I dont really know if I have fibromyalgia I got a concussion a few months ago in February and ever since then my body has kind of gone to crap well that what I thought. I have been to the doctors countless times and they say nothing is wrong. I have gained anxiety since my concussion sometimes thinking that this night is my last night here. But the problem recently is I keep getting random pains all over my body mainly in my legs but sometimes on chest arms and back. I just wish that this issue is solved I just want to sleep. And I'm not sure who to ask as my doctors just keeps sending me away

13 Replies
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Hidden
Hidden

Hi there,can I ask how you got concussed?

KageMorgan
KageMorgan
in reply to Hidden

My blood pressure dropped so I passed out and went head first I to the floor paramedics came over said it. Was fine and that was common also I gained whip lash from the fall

General low blood pressure can make you feel rubbish. I remember a nurse once commenting on mine. She said 'you've got such low blood pressure I bet you feel crap but happily it will mean you will live a long time.

YASMINTINA
YASMINTINAFMA UK Volunteer

Hi there , I would definitely go back to your surgery be firm and say can I be referred to a rheumatologist you need some answers as to if you have Fibro or not, and of course not feeling well Is adding to your anxiety. You may feel that you need some help in the way of meds from your doctor and when we don’t sleep that’s not too good either. Pick up the phone tomorrow and hopefully getting an appointment will move you a step forward. If you would like to lock your posts here’s a link healthunlocked.com/fibromya... take care . ps did you go to hospital when you had concussion to be checked out

My blood pressure dropped then went head first into the flow paramedics came over said its common I have been to the hospital but not because of the concussion a few week later I had extreme chest pains thought it was something worst but the doctors said I was fine and I also gained whip lash from the fall

YASMINTINA
YASMINTINAFMA UK Volunteer
in reply to KageMorgan

You did the right thing by going to hospital but differently follow up doc s appointment if he can order blood tests and they come back clear then they might book to see a rheumatologist . Everybody has a different path. Eventually after a few years of not getting anywhere I saw different doctor at my surgery who diagnosed me with the pressure point test, clear blood results and was diagnosed , this doc was differently clued up on Fibro where as other doc didn’t even check these things would have been nice to find out much quicker so I could get my head around everything but you will sometimes read members seem to have to go through this process. As someone as already said a physical trauma could have started this off.

When I went to the hospital they did a blood test and I came back clear my heart and lungs were also fine he asked about my family history and my dad has acid reflux from a young age so he ruled it down as that but even if that was what it was I'm get pains all over my chest to higher and lower back and mainly in my legs recently a vein has not come more visible the doctors checked out and said its fine just age but that is where the pain source of pain is right now. I'm not if my mind is making up the pain or if something is wrong because this is really taking over my life. I went to the doctors recently and they just gave me propranol to help me sleep and stop my mind rushing but that isn't helping. The pain is still here and it effecting me so much. I went to to the doctors the other day that was the last time but I guess I should keep going

As far as I can remember they will only diagnose Fibro if you've had all over body pain for 3-6 months or more. Keep a diary of your symptoms and sadly you will have fight your corner. Dr's like to dismiss people with anxiety and vague pains as hypochondriacs. I had a terrible time getting a diagnosis in 2006.You'd think we would've moved on! After the 3 month time go back to your doc or another more sympathetic one in the practise and ask for a second opinion.You have a right to a second opinion so dont let them fob you off. Or you could do as I did,if you're able, and find a private Rheumatologist. I got my diagnosis this way. I stumbled by accident on the local Fibro/M.E expert. At the time it cost me £130 for an initial consultation, then I had everything else on the NHS. But at least I got my diagnosis. Good luck

Meant to say. Fibro often starts after a physical trauma so its very possible your Concussion has set it off.

Hazel_Angelstar
Hazel_AngelstarAdministrator

Your symptoms *could * be fibromyalgia but a diagnosis should only be made if all other conditions Enid could cause symptoms have been tested for and ruled out.

The diagnosis journey can be very frustrating..... You get all these tests only for everything to come back clear, and are left feeling that there is nothing wrong with you..... However fibromyalgia will not show up on any regular tests. So clear test results often = fibro diagnosis xxx

i am sorry about your fall and its aftermath. I was diagnosed with fibro by a rheumatologist 38 years ago after he had ruled out Lupus and when knowledge about fibro was in its infancy. What he said was that if I wake up in the morning feeling as if I'd been hit by a truck, morning after morning, then anecdotally, that was fibro. There are many tender and trigger points on your body that will tell the specialist if fibro is a possible diagnosis as there are currently no blood tests that will confirm it.

Hidden
Hidden

Go back ,see different Dr,see what third opinion is then if same tell them you want referred to orthopaedic Dr which deals with neck back,spine&legs and arms,sometimes if you get a jilt it can pinch nerve or slip disc and it can effect nerves throughout your body or just legs or just arms and neck.but that orthopedics doctor is fastest way to solve it,they will check you over then get you in for MRI appointment instead of 8_12month waiting list.best of luck,please keep me updated.

you could try breathing oxygen under pressure in a hyperbaric chamber, as it seems to have a good record with post concussion situations ( google it). if you are interested there are 60 odd centres of multiple sclerosis charities around the country and you can become a member of the charity and use their chamber, ( it’s much cheaper that way.) that’s what I do and it worked for my particular set of ailments.

I'm in same position sweetheart! But it's taken nearly 16yrs of being in pain and anxiety to even get doctor to listen. In last six months I've become almost house bound. I'm hoping get diagnose soon but I should of been stronger and stood up for myself a lot sooner. I didn't want to make a fuss seem like a hypercondreact waste time thinking other people with real problems need the appointment. Don't be like me push the issue and don't get brushed off keep pushing. You know how you feel and the pain is very very real. And lack of sleep in itself is a killer! Be strong and determined.

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