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What is the longest you have had flare up

6 Replies

Hi i have been in a flare up for weeks now has anyone else had this ? if so how long is the lngest you have been in flare for ?

love diddle x

6 Replies

I don't think I get flares really diddle . Since this first came on it's pretty much stayed with me . I feel worse if I don't pace myself or get enough sleep but as that's most of the time I feel grotty most of the time.

The longest I've felt OK for is probably around 4 weeks ( out of the last 4 years or so ) . It was like having a holiday from Fibro and was wonderful... then I woke up one morning and bang it was back. I'd had a really restless night with very little sleep and it's been like that since, that was a couple of years ago now .

xx

i have to confess i never seen a time limit before i had a diagnosis it just come and go and stayed ..

trying to be kind to yourself and look after yourself xx gentle dyslexic hugs

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dimfunsize

Hi, I dont get flares ups since I was diagnosed 11 yrs ago, sorry to say it has got worse and worse Its there all the time I have to just live with it really x

My experience is that the flare-up cycles have varied in frequency and severity in 2 + half years. I understand more about what the triggers can be (and also there being no apparent reason) - I feel severe stress is the main culprit and may even have caused FM in the first place. At a few stages it was months of a continuous flare up now it seems more to be in days - at varying intensity.

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siver52

I dont know if this is a flare up or if fibro actually gets worse as time goes on. I have been out of work for 13mnths, and will not be going back

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Mills

Hi Diddle, bit late with this answer but I don't have flare up's I have it all the time now, at first it was a day or 2 a week but over the years it's gone to permanent. I once went to the doctors & said " I though FM was flare ups every so often but I am like this all the time" he said some people have it permanently & unfortunately I am one of them. I used to have good days every week but now it's once in a blue moon! all I seem to do is chase sleep which I only get in bit & bobs. I can wake up after a few mins but it gets longer as the night day goes on but I very rarely get more than 1 hr before waking & if I'm really lucky I have been know to get to 2 hours!!! lol

Take care Diddle. Gwen xx

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