i was diagnosed with fm about 6yrs ago, the past few weeks its become very

[mimsysmum]

much worse, dr sending me again to rheumatologist, neurologist AND neurosurgeon, and catscan on head!!wanted mri but i have pacemaker. what on earth else can they be looking for? i have numb arm, hand, fingers, pain, blurred vision, very poor balance all of a sudden. ideas please?!?! x

[kraftyk8]

Hi mimsysmum,

Please don't panic, it sounds like you have a very conscientious, organized GP who is covering all the bases.

I can't tell you what it might be, there's so many things, but as they didn't bundle you into an ambulance with all the sirens going, your GP doesn't think it is that desperately urgent.

I would phone the surgery, tell them how worried it has made you (because the additional stress won't help) and ask them to get the GP to call you, to put your mind at rest.

hope that helps a bit

gentle hugs, kate

[Hidden]

its good to check things out what ever you have better safe than sorry at least your doctor is taking things forward and checking you out .. maybe your having a flare up ( extra stress or illness can cause this ) you may not have anything new but you will find support here take care of you xx

[BlueBunny]

Hi, keep with the Dr's, but it might be worth looking at b12d.org, get them to check out your B12 levels, in other countries they set the level at 550pg/ml not the 200pg/ml we have set here, I have also got a book by Sally Pacholok on amazon which really helped, I now take high doses and it helps,(my nan, my mum, me and my 10 yr old all have symptoms which are varied) but like I said listen to your Dr but just check it out for yourself, VitD deficiency is becoming more prominent and I think B12 will too.

Any questions just ask

hope all goes well

xx

[Hidden]

hi and so sorry you are suffering at the min it is a really awful thing and i am so glad hat i found this site i have had so much good advice on here and nade some lovely friends who have helped me enoumously i do hope someone can relate to the things you are talking about it is horrible thing i stumble and lose my balance i feel like i am choking on food i ache all over have burning in my muscles pains around my heart it is just awful then i go get ibs too what more can it throw at us / love to you diddlle x

[mimsysmum in reply to Hidden]

thanks for the reply, it helps to know we are not alone with this awful condition. i have severe ibs too, its very painful. lots of love to you, keep well!!! x

[mimsysmum in reply to mimsysmum]

to all of you who have taken the time to reply to me, thank you all so much. i will check all these things out pronto!!!