HI everyone, I'm relatively new here, I've been diagnosed with fm foe about a yr even though I've suffered longer.

[mld79]

I also suffer from chronic pain, depression, anxiety and post traumatic stress disorder. My question is: Does anyone else suffer from bladder problems? I have just had a bladder scan, and a urodynamics test on my bladder and the result is my bladder has suffered some nerve damage at some point?? so I'm going to have to self catheterise 3 to 4 times a day from here on in, now this on top of my 28 tablets a day to try and manage my other ailments, I'm starting to wonder what more life can throw at me? ramble over! I'd appreciate any feedback about bladder probs and whether its connected to fm as its also a nerve disorder?? Thanks :@

[Celticmoon]

Welcome

Oh poor you!!

It sounds as if you have more than your fair share of problems but, I do believe, that bladder problems are fairly common for people with Fibro... I don't know what others think..???

I don't get anywhere near the severity of the problems that you experience but would say that I do have what I would call "frequency" (a urge to pass water almost constantly at times!) and general pain in that area. I also sometimes find that I feel like I have a urinary tract infection or cystitis but know that I haven't, if that makes sense. Sometimes the pain is quite severe, while at others it's more like an ache. I also can't hold on when I need the loo - when I need it, I need it NOW!!! Most nights I will get up around 4 times to the loo then pass a very small amount, which is infuriating!!! I, too, have nerve damage to my bladder from surgery I had for gynae problems some years ago but believe that many of my symptoms do relate to Fibro. I have read others feeling the same & am sure you'll get a good response here.

Hope that helps... And I hope you find a way of managing your problems.

Wishing you wellness &

[mld79 in reply to Celticmoon]

thank you

[Hidden]

im so sorry for this both me and my partner suffer with bladder probs but never been about it.i get alot of water infections too which ive believe alot of woman on here get too coz of this damn illness.

it sounds a nightmare for you.is there nothing else they can do for you?x

[Hidden]

Hi Mid 79, yes I think bladder problems are quite common with Fibro. There was a post about it quite recently which you might be able to find via the forum tags. I have the opposite problem to CelticMoon in that I can't feel my bladder any more and have to sit on the loo with the bathroom taps running to be able to perform Good job we don't have a water meter!!

All best wishes. Jane x

[mld79 in reply to Hidden]

HI, I'm exactly the same which prompted me to ask my GP, I was referred rather quickly from speaking to my GP to diagnosis!! with tests and scans inbetween. Go and get it checked you never know

[Homer]

Hi, I had a hysterectomy last October, overuse left, since then I've experienced bladder probs, had all the test, they damaged the nerves , I've had physio, meds, and I still leak urine, I don't empty my bladder properly which results in leakage constantly, next step is to lift my bladder up, I don't have to self cauterize, can't spell that, so maybe second opinion ? I'm sure fibro has made it worse, didn't have fibro at the time either !!!! Hope this helps you

Regards nicki xxxxx

[Hidden]

Hello Mld - This is known as having a Neurogenic Bladder. It is possible to have this with Fibromyalgia as it's all to do with nerves and nerve damage resulting in your bladder filling, possibly feeling numb and not having the need to empty - hence the need to self catheterise.

Overactive or irritable bladder is often a problem for people with Fibromyalgia also. With Fibro some people also experience a painful bladder with inflammation where not only pain is felt, but spasm and a feeling of pressure.

Cystitis and UTI's (Urinary Tract Infections) are also common in those who have Fibromyalgia. So it isn't at all unusual for there to be urinary problems with Fibro too.

Please click on the link below which goes into detail about bladder and bowel problems, I hope it's helpful -

thebladderandbowelfoundatio...

[Hidden in reply to Hidden]

My apologies, I should have said welcome first - it's great to have you here with us Mld, we are all here for you. I hope you enjoy your time with us.

[mld79 in reply to Hidden]

Thank you, it's very much appreciated x

[julieevh]

Welcome Mld79

I have the sudden urgency thing too, characterised by a little dance when I get to the toilet to pull my pants down and hope I get to the loo in time .... sometimes I'm a wee bit late though (pun intended)!

I tend to use the disabled toilets when I can ... that way if I have a little accident I can get undies swilled and dried!

(((( gentle hugs ))))

Julie xx

[ArctoLindy in reply to julieevh]

I know the steps to that dance too I don't understand why you're not aware of needing to go until you're really aware of NEEDING to go...?

[debuk]

i have bladder problems or did.touch wood.i saw a specialst after going docs after tv programme...did the requsets he asked...i never gt signal from bladder didnt make toilet...even if nt full bladder.which showed in hw amount wee came out when wetting myself,since going on a water tablet for hypertenison which scared me knowing i had problem...i have nt wet myself..less fliud comes out.dont even pee as much witch dont make sense 2 me.xx

[Hidden]

Hello

Yes it sounds all too familiar, those steps are so easy to learn!! I was told some of my problem was to do with the tabs I take. Not only do they numb the nerve endings to our bodies to help with the pain but they numb our bladders too. Also Amitripyline is used to stop bed wetting. Another wonderful symptom to have to live with grrrr.

Hugs xxxx

[mld79]

Thank you to you all for your answers, fortunately I don't have the loo dance I have the time to read the encyclopedia start to finish before I start and finish

I did however have it confirmed by my specialist that my medication isn't responsible for my bladder problems or my muscle spasms/twitches.

Michelle xxx