Over here for help or support. Also when I go to the drs there is little knowledge of it only my specialist at the hospital seems to recognise it. Having three children I struggle and am often in lots of pain and vey tired. I feel at present unable to work but I feel that when I speak to a dr in order to try and get help financially via invalidity support I feel that they don't see it as a disability at all so I Am getting no help whatsoever. Does anyone have this problem or any advice please?