Fibromyalgia Action UK

How bad does it have to get before I claim DLA?

I am not well enough to work. I have countless flares triggered by a myriad of things - loads of symptoms - everything seems haywire and systems are out of balance.

There are days when I am housebound - I am suffering financially and may loose my home. I do not seem to fall in the categories for DLA and even scored zero points for ESA and have the stress of a tribunal. I do not seem to be able to express how it is for me.

Any advice please.

13 Replies

I'd say seek the help of The Citizen's Advice Bureau or similar and ask for some help to fill out the forms for DLA .

It seems lately that the DWP are determined to make sure nobody gets it first time of asking .

When you go to tribunal for ESA can you take someone along for support ? Or maybe CAB could help you with that too, not sure if that's the case but it's worth asking.




Thank you.


You really have to keep on at the DLA, I had to. I had a 2 year fight before they actually agreed to the lower end DLA. Don't give up and take/send as much medical support confirming how you are managing. I believe that even DLA staff are VERY uneducated when it comes to how debilitating Fibro actually is. When I was diagnosed, the Rheumatologist likened the Fibro pain to the pain of Rheumatoid Arthritis - just without the visual physical disabilities - Hence the "invisible disease" we know as Fibro - so less sympathy and understanding.

Gentle hugs,

Carol xx


Thank you. Difficult isn't it.


Fight for whay you believe in but you will need someone by your side.

HUgs, Sue x x x


I hope to get support. Thankyou.


I went to a tribunal for dla was turned down but I will try again


Hope you are successful the next time round. Thank you.


Hi again Reflections,

Take a look at the tags for DLA, ESA and Tribunals, there are a number of previous threads you might find helpful.

Also, go to the Fibro Action site and email them with a request for any info they have access to, free from Benefits and Work. There is loads and all their stuff is fantastic.

more happy hugs, kate :)


Thanks - I'll contact the site.


Thank you everyone for your advice.


hi well i am claiming on 21 may i am going to my local DIAL centre to help do the forms and i asked my gp about it and she asaid i think you should apply so i am and fingeres crossed love to and go for it theworst they can say is no love diddle x


As so many on here have said get an advisor - they will go through the criteria with you. For example, to qualify for lower rate care to need to stress that you are unable to cook a meal for yourself.

As for mobility - the lower rate DLA requires you to need help ion going to places you are unfamiliar with.

There are more criteria, check out the benefits section on the FibroAction website - they will be able to point you in the right direction of getting more help.


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