hello i'm new here . is there anyone else aged 38 and living alone with this illness .
as i'm look or friends that will understand the lonelyness that comes will this illness not being able to get out, no friends around , no boyfriend or husband and children left home
hi and a very warm welcomre to the site i hope that you will find so much help and support on here and will never be alone again we are all here for you and each other . i am 47 got 2 girls and 2 grandchildren but just myself and 19 year old here but she works 9 to 5 5 days a week gets home tea/bath and out or goes straight out after work and then i am in bed when she gets homw so i know how you feel bless you i have got a partner he comes every night we dont live together we been together 8 years
i hope that we can become friends on hre and sure you will meet alot of other people you must have some friends or old work collegues around you ?
anyway thats the last time you will put alone in your blogs as you are now a part of this community we will chat again soon love to you diddle x
Hi Tracy and a warm welcome to this lovely site. 
I think everyone understands how you feel, it's a horrible illness isn't it.
We're all very friendly and a lot of us spend more time than we should on here too lol.
I still work, I'm very lucky. I have aches and pains and was diagnosed in August last year but I'm very fortunate in that I don't have too much pain. I work from home as a childminder.
Hope to get to know you better......
Hugs Sue x
Hi!! I think the illness itself is a lonely one, because you can't see it, sometimes you feel like its all in your head, because your the only one that feels its existence, I live with my partner and my 13year old daughter, but still always feel lonely, I joined this group not too long ago, for that reason, so I can chat to people that actually understand. I don't often talk to my partner about it because I feel like I'm just moaning, because he can't see it, I'm sure he thinks I exaggerate. You are among friends now, since joining, Ive felt a lot better about things, the people on here are so friendly an helpful, So from now on, remember, you are not on your own anymore, we are all here for you as well. xx
HI tracyj,
I am so sorry you are feeling you are alone, this illness really is horrible.
This site is brilliant as evn though i have friends and a partner and kids at home, i still feel nobody gets what i actually go through iun the day. This is where this site is brilliant, i have met so many friends and had so much good advice and support its unbelievable.
I hope you will not feel so alone with this site now, i warn you it can be very addictive lol.
I am 31 with a busy house and most days i cant cope.
hugs, kel xxxx
hi and welcome
sorry you are feeling alone.
I was alone for years with my children and a single mum was not fun
however this is a great home .. for all people however they feel its the nicest group of people who understands xx
gentle dyslexic hugs
hi tracy im new to im a very young 53year old and i know how your feeling iv got 5 adults in my house an still feel lonely with this horrible illness .sorry my names linda ,now u are on here like me hope we make some lovely friends,try to keep smilingi no its hard iv been crying all evening ,run out of butter for my toast how silly is that lol.xx
Hi Tracy,i am glad you found this site, its awful when you feel like that, but your not alone, there are some lovely people here to talk to and who will help you all they can, sending love and hugs, Sue.xxx
Hi and welcome. I know I am a lot older than you but I find living on my own with this condition has its upside. I dont have to make any appologies to anyone if I am to exhausted to do the dishes, I can spend the bad days in my PJ's (today is one of those days) when I need to. My children visit regularly and I love to see them. But when they go I can curl up on the couch and sleep. Chin up hugs xx
Hello from a fellow Tracy x now you've found this site you will probably find that you dint feel so alone. If I start feeling like that I boot up my computer and come on here x it's been the best help ever!
Sending you gentle hugs xxx
im 38 single for 5 years have 2 children 4 and 8,
i know what loneliness is hun si i empathise withu xx
thank you for the lovely messages it's helps to kow that people understand a little on how i'm feeling .
someone asked about family and friends . most of my close friends are no longer living near me they do try to keep in touch . other so called friends just don't both because they don't understand the illness nor what to try to .
family , my parents are just 10 mins down the road so not far but thet are not in good health themselfs or are busy working not they not around .
my daughter in 300 mils away at uni so i only get to see her every 3 months for about 2 weeks maybe 3 (we've never been apart from eacj other for more than a week ) this has to be the hardest of it all ( at the min can't get in touch with her and it's killing me not hearing from her .
i spend all my time in one room alone with the same four walls
Hi Tracy,
Why dont you look for a fibro support group in your area where you can go and meet people with the same illness and have a chat and a cuppa, they usually hold a meeting once a month and its a place you can find out more info on the condition and advice on treatment, you never know you may meet some new friends that understand exactly what your going through and in the same position as you.
hope this helps
Irene x
welcome to this helpful friendly people on here... i have a husband and 3 adult children at home... but... i still feel very lonely... sometimes i wish i lived alone.. as i make myself do things here at home that i really shouldnt and cant do. because i feel guilty... i do appreciate i have kids and a lovely husband.. but i get so much out of this site.. so please come on.. and join us. xx
I highly recommend getting a free Twitter account. It is instant access to hundreds of ppl just like us who are probably wide awake in the middle of the night due to pain (aka #painsomnia). Search Twitter for "Fibro" or "Fibromyalgia" and especially for "spoonies". If it wasn't for my Twitter friends, i'd have been in a much darker place.
There is an excellent article on how to describe what it is like to have a chronic illness, called The Spoon Theory
butyoudontlooksick.com/arti...
I have a hubby, no family close by, but I understand loneliness all the same. If it were not for my hubby I'd be so screwed. He practically does everything for me and I am so very grateful for that. I tell him all the time, too.
There are many support forums/sites like this one online. Though I can't say all of them are friendly. Many run in "cliques" and have ridiculous rules. This site seems pretty friendly so far. I'm new here too.
Sunshine and smiles,
Shannon
@LDYLARKE
Hi and welcome Yes this awful illness leaves you feeling so isolated...I know exactly how you feel as I suspect everyone elese does...No rest No play No pain relief....Just awful...Sending you gentle healing hugs Jo
Hello Tracy, good to see you here, welcome!
We are always here for you as we are here for everyone, it also helps us as we have Fibro too! Take a look around, you will soon get to know us! Any questions or things you are particularly worried about just ask and someone will get back to you asap. It's lovely having you here, I hope we all keep you company and make things a little easier for you! Take care and see you around I hope!
Tough being the fighter
Just feeling so down and alone!!!
Billy no mates
all alone ...
