Fibromyalgia Action UK
38,667 members50,927 posts


Thankyou all again for the valuable advice. I'm just going to my surgery now, hoping to gat a letter. When I get there my pain will have doubled. Like many of us say. I feel as though they think I am lying or exaggerating my pain. I don't have anyone to go to the appeal with me, as I am cut off from everyone since my fibromyalgia got worse. My workmates an friends do try to get me to meet up with them but I'm perhaps ashamed as I was a very active person before this nightmare begin. Hoping everyone has a good day, well as good as the dreaded fibromyalgia let's us. Lots of hugs

6 Replies

Hi Dianne,

You have absolutely nothing to be ashamed of, you didn't choose to have fibro, not do want to continue having it. I get so cross that people are being made to feel like they are exaggerating when that is the last thing in the world we would do. I wouldn't wish this condition on my worst enemy, (not that I have any luckily) as the saying goes and I think no one here would either.

Hold your head high Dianne when you are with your surgery and remember that they are there to serve you and are accountable to you, a lot of people forget this.

Please keep your work friends and don't feel you have to push them away because of your condition, you like many of us need as much helpful friendship as we can on our journey through this rotten illness.

Sending lots of positive vibes your way 😊😊

Foggy x


Hugs and I hope everything works out great for you!

1 like

Good luck I'll keep you in my thoughts.


I want to genuinely and sincerely wish you all the best of luck.

All my hopes and dreams for you



Don't shut yourself off . A dinner with friends will lift your spirits and help your mind focus on something besides pain . I know, just getting dressed is hard but you have to push yourself and keep moving and getting out !


Praying everything goes well sweetheart, Hug's to you. I know what it's like to be alone. You can private message me when you are up to it. Hug's, Mitzi


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