all alone ...

[sadzapple]

i feel alone in this house ... in my family ....oh come on i ache in the morning ..my backs in half .. you just have to get on with it . Thats all i hear from my family that i thought would support me. Sorry for the moan but i dont really understand this illness at all i just know im in pain i dont sleep ,i forget things. .. just wish i could have people and family understand this and what im going through that i dont feel like going out through the door.

[saloudav]

Hi there,

BIG HUG !!

I know how lonely and isolating it gets when you are the one going through the pain and upset and everyone else seems not to understand and just plod on. What helped with my family was me printing some info about fibro of and giving it to them to read and they now have a bit of an understanding - some more than others cos my mum and partner have read up a lot more than other members of my family. But that helped them in supporting me, making suggestions and just knowing when to leave me a lone in my bed to try get over it. But, I am thinking about seeing my doctor/mental health team about a befriending service that I have heard about. They just spend time with you and it helps that feeling of being so alone and hopeless.

You know we are here for you and that you are not a lone.

Hugs

Sarah x

[sadzapple]

they have all read up on it my partner is great but mum and dad say " just get on with it ..we ache all the time but we have to get on with it " i feel like screaming but where would it get me

[kathlaidlaw]

hi hunyy oh i am sorry big soft hugs

most of my family are just the same as yours but now i have been given another illness they are all oh you ok but it is to late for 2 years i got all you need is a job or just come of the pills that it wat is making you ill or just pull your self together and you will be ok .

so i am sooooo sorry for you and all i can do is sofy hugs and just a little squdge we all need them so just come to us and we will give you all the suport that we can and all the soft hugs you can take soft hugs kath

[sadzapple]

thankyou so much xxx

[Hidden]

i gave my sisters in welwyn a book on it and all they said after reading itis that it was just age and they had mostof the symptoms and dont complain...... itis frustrating to be alone i am all alone ninety nine percent of the time but think that is better than 100 per cent disbelief huggies from me petal

[Hidden]

Hello Sadzapple, thank you for your post. I am so sorry you are going through a hard time. It can take time for our families and friend to understand and get to grips with Fibromyalgia. It took about a year for my hubby and three children to understand what had happened to me and why I was spending so much time exhausted and in bed. I went to a local clinic which helped me with my CFS (Chronic Fatigue) and it was there that I became familiar with The Spoon Theory. It is a brilliant story and sums up how we feel having Fibro. If you can get everyone at home to read The Spoon Theory, I am sure it will help them understand a bit better how you feel every single day. Click on the link below so you can read it. I hope it helps you as much as it has helped me, take care. Regarding being alone, have you considered perhaps a local support group for Fibro, you would have company there and a sympathetic listening ear too! Might be worth a thought when you feel up to it! Take care

[Hidden]

Oopsie, Fibro Fog moment lol, forgot to post the link - sorry Sadzapple, here it is below -

butyoudontlooksick.com/wpre...

[dizzyduck]

Hi sadzapple, so sorry you have be given this awful thing FM, some people think that having a bas day is coz their kids have not eaten their dinner, with us its I wish I had the engergy and not be in pain to be able to pick up the bloody pans to cook!!. The link that libbydee has given you is good. However of they are really really non understanding, take them to the pain clinic with you or but them 'fybromyalgia for dummies' that may work.

love and hugs (gentle) sweetie XX this site has been my life line as I believe it is for others, I live in Kent and I have joined a local FM group, My GP told me about this site, it was such a relief to know I was not alone and will never be alone again. XXX