2 Months!!!: So, because my... - Fibromyalgia Acti...

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2 Months!!!

cincin profile image
12 Replies

So, because my Rheumatologist "forgot" to refer me to the Pain Clinic, I now have to wait another long, drawn out not to mention painful 2 months for my 1st appointment, I wonder if she'd have forgot if she knew the pain I have to go through everyday....yeah...massive help that, thanks alot! (just having a moan) feel better now...lol.x

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cincin profile image
cincin
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12 Replies
Ang01 profile image
Ang01

Aw thats disappointing for you. No consolation but I suppose he/she is only human though. Hope the appointment won't be too long in coming through. Love Angela xx

sorry to hear .. hope you get the appointment soon xx gentle dyslexic hugs

cincin profile image
cincin

It's a she, I understand that angela, but you begin to lose faith when they keep cocking up, as they have with me for many years now, wrong diagnosis, cancelled appointments, after waiting for 6 months in the 1st place, forgotten my referrals etc, the list is endless, I have my appointment now, its for the 26th June, that just seems years off, thats just another 2months of being on the wrong painkillers and no meds.....not good, just having a rant though really, trust me, I've waited longer! We'll get there in the end, i'm sure of that..x

cincin profile image
cincin

Thanks Lexie, I needed that! xx

aligriff profile image
aligriff

what is the pain clinic i have had to wait a year for my second appointment was allergic to medication he prescribed surviving on cocodamol and ibubefren which doesn`t help much

cincin profile image
cincin in reply to aligriff

sounds like me that, not too sure what the Pain Clinic is yet, this will be my 1st appointment, but from what I can gather, they have people better qualified to help with your condition, and they advise/help you to manage and deal with your pain better, mentally and physically, so I'm pinning alot on this, and hopefully i'll get somewhere at last. x

jazher profile image
jazher

Cincin, thats terrible.

Honestly how would they like it, it makes me mad as its not them suffering is it.

My friend is in the middle of being diagnosed with MS and the waiting times for her is disgusting. Its been since november for her and she is still waitning for her second appointment, so its not just us left waitning hun. :(

hope it goes in quick for you.

hugs, kel xxxxx

cincin profile image
cincin in reply to jazher

I know, I try to keep positive, but some days it just gets hard to maintain it, I wouldn't mind, but i wait for these appointments and get my hopes up, just to go straight back to square one again, anyway, fingers crossed eh? cheers Kel xxx

diane63 profile image
diane63

my daughter sent me to pain clinic,, i went and they said there is nothing more they can do for me.... so about 6 months later i was back at doc one day when he said.. i think u should go back to pain clinic, i explained they couldnt help.. but he wanted me to go back.. si i did.. and guess what.... there is nothing more they can do more me.... aaaaaaagggrrr lol

cincin profile image
cincin in reply to diane63

It's just a vicious circle isn't it, I don't believe there is nothing they can do, I've had drugs before that have made me feel like bionic woman, there was just too many side effects that I had to come off them, steroids also make me pain free (imagine that), so you would think knowing all this, that there would be an alternative, one that didnt damage all my internal organs! We can't give up though, even if it means going back and forwards, its up to us to make them listen and take us seriously, Have you tried asking your Doctor to refer you somewhere else, because they can't refuse you if you ask, it might help seeing somebody new. Just a thought...xx

Hi i was referred to pain clinic about 2 tears ago before i aw rheumatologist and he was lovely but didnt want to see me any more said there was no point as he could not do any ore for me than my doctor so please dont get too excited we are different but i was so hopefull about seeing rheumy was in there 20 mins max qnd was discharged so jus warning you i would hate youto be so excited only to be let down love to you diddle x d

cincin profile image
cincin in reply to

Oh i'm aware of this diddle, and sadly used to it as well, but if I don't have hope, then I think I would of give up a long time ago, I have spoke to people that have also been where I live, and they tell me it's just what I need, this is the last resort for me, and if I don't get anywhere, I'm either just going to stop seeing all these people that do nothing for me, and just carry on trying to manage it myself, or, I'm going to go back to my Doctor, and get him to refer me to another Specialist!

xx

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