suffering terrible headpains feeling like i got a ride and legs going tight and tingling arms mouth tinglings breathless exhausted , just want to scream atm .had mri sat got to wait till aug for follow up anyone else like this
not good ! getting very black eyes wi... - Fibromyalgia Acti...
not good ! getting very black eyes with head aches


i would go back to your GP and add this more than your fms playing up and insist they make you a prority ... i know its difficult but not every thing is linked to our fms and we can get other things too ... look after your self the best you can ... xx gentle dyslexic hugs xx
Hi fibrojude, I get a lot of headaches too, I usually wake up with one most days. You certainly have a few symptoms there that as Lexie so rightly says, it's best to get checked out. It's so hard to isolate symptoms to just being Fibro as cases can be so different and variable. Were you told what your MRI was specifically for, as I'm not aware this is specifically for Fibro, I haven't heard of that before. It sounds unfair on you to have to wait until August, I would definitely go back to your GP as soon as possible and ask what is happening and you are very worried, describe your symptoms fully and see what your GP suggests. I hope you get some answers and also some help. Hope to hear back from you soon. Take care in the meantime, gentle hugs
Hi, sorry to hear you suffer from these awful headaches. I also do and wake up feeling like an elephant is sat on my head. I have head them fro years and my GP and pain clinic just put the problems down to whiplash.
However I have now learnt that there are different types of headaches and the World Health Organisation state that a diagnosis needs to be made and then the headache needs to be treated accordingly.
WHO states that headaches themselves can be disabling and they are among the most common disorders of the nervous system.
I never knew that headache specialists existed , however you have a right to have a diagnosis and treatment.
It is crazy that you have to wait until August for the results. If I were you I would go back to your GP and ask to be fast tracked. I have learnt that we need to be hard and strong and sometimes give eveidence as to what drs need to be doing.
I am still waiting to see a Headache specialist and when I requested my GP to refer me I said I didn't even know they existed, he laughed and said " oh yes there are specialists for verything". I was so annoyed that I nealry said to him, well I have been having disabling headaches for atleast 7-8 years so why have you never referred me!!!???
I am learning new things daily and will not let Drs fob me off anymore.
xxxx good luck xxxx
i see you put black eyes..i also have every headache going and my eyes go black to.....i think its stress the fibro or the m.e. and lack of sleep..good luck....xxxxxxxx
Hi Jude, this doesn't sound like fibro symptoms to me. I think you have 2 routes to go.
The first more conservative, is to go back to your GP and tell him that you can't possibly be expected to last until August without intervention and that you want him to get you an urgent follow-up appointment.
Also that you want to know the results of the MRI as soon as they are available, again he can intervene and tell them the results are required urgently. That way at least you will have the peace of mind to know if there is anything amiss.
The second way is far more proactive. Pitch up at A&E at the hospital where the MRI was done. Tell them your symptoms relating to the problem and that you had the MRI done. Unless anyone asks about other medical conditions don't mention your FMS. If they do ask, then of course tell them, but make it very plain that the symptoms are new.
That way you should be seen by a Neuro doctor, or at the very least find out something about your MRI and are not being touched by your normal pain relief.
Extreme, but you cannot mess around where your brain is concerned. You will know which route is most appropriate for the symptoms you have.
Lots of luck & hugs, kate