Does anyone else suffer from memory l... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,987 members67,154 posts

Does anyone else suffer from memory loss with fybro?

angela2284 profile image
33 Replies
Written by
angela2284 profile image
angela2284
To view profiles and participate in discussions please or .
33 Replies
Bacaloca profile image
Bacaloca

Yes I do sometimes I think I am getting Dementia it's so bad.

I think it is a common problem among us it is often referred to as " fibro fog"

So don't worry .

Yep, we all do I think.

If you click on Tags at the top - next to Home Blogs Questions etc and then click on Tags A-Z, you will see Browse Tags Beginning with. Put in whatever letter you want to look at and have a read there.

I'm not very good at explaining! LOL :)

Sue x

complete momory loss, I can forget most things, I now keep a diary, notebook by the phoneetc

panther237 profile image
panther237 in reply to

Lol I forget where I put my diary. X

sarah-d profile image
sarah-d

im the same a lally i keep a diary to i forget alsorts of things so i carry the diary all the time so i know what im doing most days

Me too i have bought a project notebook with seperate sections which i carry around, got addresses in one section, web sites and passwords in another, things to do, calls i make and answers etc. I cant remember what i go in another room for half the time, usually because i see something else that takes my mind off it but then dont have a clue. I've also started to keep a mood diary, and a food one so i can show my doc so hopefully she can advise and maybe understand better.

But yes i believe it is called fibro fog!

dinkydo profile image
dinkydo

All the time. Sometimes I even forget by the end of the sentence what I was meaning to talk about. It can be rather embarrassing :-(

rubywhiplash profile image
rubywhiplash

Umm What was the question!!! God yes I do all the time I actually thought I had Alzehimers can't spell it! and my Dr did a test I was fine stumbled on a few questions but she assured me was just the fibro I was very worried actually, I am always forgetting whaI am saying mid sentence and yes can be embarrassing at times and yes Fibro fog is deff the term!

Hugs Ruby xx

my kids think Ive lost the plot I repeat myself or forget the thread of what Im saying

angela2284 profile image
angela2284 in reply to

I cannot remember what my family tells me and the most dangerous i find is forgetting to turn things off ie cooker and iron, My iron was on all day and I had been taken out for 2 hours. I have had alcheimers test

angela2284 profile image
angela2284 in reply toangela2284

oh forgot thank you for your replies lol

jayjay profile image
jayjay

I have this all the time to, a number of years ago i put toast on and forgot, it caused a fire, but lucky for me it was a small one and the fire alarm went off,then i realized what i had done, also done same thing with a pot on the hob,i havent been able to cook for a number of years now my partner does all the cooking. I also forget what i'm saying in the middle of a sentence, and yes it is very embarassing. And all this is down to fibromyalgia........ your not on your own xxxxx

err i think i do i just cant remember

what was the question again?

sorry angela could not resist if we dont laugh about it we will cry kialaya is right i too have a notebook i call my brain it seems simple but it works.

shopaholic profile image
shopaholic in reply todobby-the-house-elf

ha ha yes i agree weve gotta laugh!!!!!!!

babebatista profile image
babebatista

I also suffer from 'Fibro Fog' lols, hate it sometimes. I keep all my apts on my phone now and my passwords and stuff in a note book. It's awful isn't really. You have to laugh or you'll cry, that's what I say. I forget what I'm talking about, forget names for things and where i've been where I have to go ect. Luckily my beautiful husband/carer, helps me soooo much. I'd sure be lost without him. Keep strong Fibro peeps big hugs and much love to you all :) xxxxxx

annemcc profile image
annemcc

I suffer badly from this also, my job doesnt help, i manage a cafe, the customer will ask for a filled roll, by the time i get to the roll box, i have to ask again, they look at me as if im stupid but i laugh it off. my daughter bought me a note pad to keep by the phone, to let them know who has called, because ive forgot that many messages, lol :)

shopaholic profile image
shopaholic

yes i cant remember much theses days but yes i believe its all part of this fibro thing...fibro fog..........awful isnt it ...xx

coops profile image
coops

Hi, i'm that bad I've just had to reset my password, i cant even tell you who the prime minister is, we were at a dinner party on sat night, with people i had never met, i said when we sat down at the table before we start i wont remember anybody's name, so please forgive me, all the guests were fine, the only problem is trying to attract peoples attention because you don't know there name, i have stopped my antidepressants today to see if this will help, i feel everybody is getting fed up, my husband said i kept repeating myself, if i had to do an Alzheimer's test it would score bad, don't know whether i have spelt it right, never mind you all know what it says x

dobby-the-house-elf profile image
dobby-the-house-elf in reply tocoops

don't worry coops i asked 3 friends who the prime minister is and none of them could tell me and they dont have fibre. xx

Ang01 profile image
Ang01

Hi Angela, be assured you are not alone with your memory loss. Sometimes I can remember things and other times I struggle to hold a conversation without having to ask the other person to prompt me because I have forgotton what we are talking about. I put it all down to the fibro fog!!.

Take care, Angela x

angela2284 profile image
angela2284 in reply toAng01

thank you all so much I have felt as though I should be locked up for my own safety lol

yes i do sometimes i just cannot think of something its awful i only 46 love to you diddle x

sheelagh profile image
sheelagh

I also suffer from 'Fibro Fog' lols, hate it sometimes I am 46 and i write things down in a book to remind me what i have to go and where,then i forget to look the book.my friends now know o remind me over and over again,my family love the word Brain Fog /fibro fog so when i forget or say something silly they just laugh now .

trisha64 profile image
trisha64

i know its a bad day when my daughter phones and has to go in under five mins lol ... but on a serious note i have forgotten which is my house before today ,, i think that was the worst ever time

angela2284 profile image
angela2284

My worst day was being sacked for incompetance when I struggled with typing a phone number and copied it wrong purely memory did not remember number so typed what I thought geez I was sacked that was soooooo embarressing

bumblebee57 profile image
bumblebee57

Hi all. Its a bit of a joke with my kids now, that I keep asking the same questions over and over.My son says "The answer is still the same as every other time you asked"!! I say "Awww, shut up" and laugh,mainly at myself. And I agree, you have to laugh or youll lose the plot altogether. My worst experiences of "the fog" is when Im on the phone to people I dont know (and who dont know me and what Ive got) I struggle through the conversation trying to will myself not to forget words and info.I dont succeed most times and I feel like a real idiot, but hey, I cant help it.I also fall over my words or stutter them out.That is SO frustrating.I hate it when people say "we all forget things sometimes". I want to scream at them "But ive got Fibro and I do it ALL THE BLOODY TIME !!". I thought I was losing my marbles too. It was a relief, in a way, that so many of you have the same "affliction". (you know what I mean,!!) It takes me so long to write letters and blogs and stuff, coz I have to keep checking that Im not writing absolute rubbish. So no, youre not alone with that.Bye for now.x hugs

in reply tobumblebee57

My name is Claire and I am 53, I have been diagnosed with F.M. in Feb., after a year long illness, that resulted after a virus, and I find one of the most annoying things are my smudgy memory and intellect, and I suffer from all the memory lapses you speak of here, isint it embarrasing, I always make an ass of myself at the post office, and always get muddled up with my money and words, I even had to give the cash register attendend my money once to take out what I owed her because I kept making mistakes, i always make a mistake when i'm dialing on my telephone and have to do it at least 3/4 times before I got it right. Now I find I'm finding it hard to type on my computer and it annoys me when I have to keep correcting my mistakes. My family are used to me mostly by now and are very patient with me muddling my sentences up, isint it awful? I was always proud of my speech and intellect, it seems stunted now, take care everyone and keep your hopes up xxx

panther237 profile image
panther237 in reply tobumblebee57

I know that feeling, your not alone, try explaining to your kids how your illness makes you feel, find an article that explains symptoms and let them read it, I did this with my husband after months of embarrassing situations and why are you acting like this, at the time I thought I had Alzeimers, being diagnosed explained a lot, there is lots of info on Internet about fm. Try this and let me know how you get on, it could take a while but don't worry you will get there in the end. Hugs x

Kerry29 profile image
Kerry29

Hi,

yes i suffer from memory loss too!

From kerry29

trisha64 profile image
trisha64

i only see my older daughter once a month as they live in manchester so its a shock to her to see if i have deteriorated she now calls me every twenty mins when i go to see her to make sure im on the right route ,, i have ended up in york in stead of manchester as i dozed off after morning meds ,, x

panther237 profile image
panther237

I know it's a personal question, I was diagnosed with fibro 4 years ago. My doctor puts all my symptoms down to having a hysterectomy in my 30s. I have also been diagnosed with a severe vitamin D deficiency, which has caused osteoporosis, they say that toxins build up in your liver with fibro, I was advised to take milk thistle and q10 complex together to help, alcohol makes things worse too, I'm not a drinker anyway but enjoy odd glass if red wine, I struggle with forms now too, they seem confusing to me, this is not like me as I am very well educated in college etc. I am struggling holding any information in my brain, it frustrates me. I want to learn to drive, so difficult as I can't concentrate in anything for more than 5 mins. Does anyone else feel this way with fibro. I know it's down to brain fog, but I get too confused and it worries me. I am an upbeat and try to feel happy person, I have my feel like crying days ( I do that in private). I also have been a qualified chef for 20 years, had to give it up, finding it too strenuous in my muscles. I am due to lose my 12 month ESA contributions payments due to government changes to ruin the sick and disabled (another story). We are surviving on my husbands money at present, I feel useless, I have tried changing my career got to level 2 in conselling, but can't go to level 3 as I can't get help to pay for the course. My mobility is not good, in so much pain when I move, but get on with it anyway, as you do. Feel like I have been ranting on, sorry for that , good to get it off my chest. Hope no one else is going through hard times, I am here to listen if anyone else wants to get things off there chest, look after yourselves it's a horrible illness, I know just wish More doctors realised that. Hugs to you all xx

panther237 profile image
panther237

Brain fats and oils

Humans evolved on the East Coast of Africa eating a diet rich in sea food. It is suggested that the high levels of oils, particularly DHA (Docosahexanoic acid), allowed the brain to develop fast, thus allowing humans to outstrip other mammals. So Homo Sapiens came to have bigger brains allowing intelligence to develop. There is lots of research showing that essential fatty acids are indeed "essential" for normal brain function; so oils that would be helpful in addition to coconut oil would be omega 3 (fish), omega 6 (evening primrose) and omega 9 (olive), together with lecithin (which is phosphatidylcholine – i.e. the main component of all cell membranes).

Oils to treat foggy brain and dementia

A suggested regime to start off would be:

Lecithin - one teaspoon (5 ml) twice daily (raw material for basic building blocks of membrane).

Coconut oil - one dessertspoonful (10 ml) twice daily (perfect fuel for brain cells).

Hemp oil which has the right proportion of omega 6 to 3 (4 to 1) (ensures membranes are of perfect consistency - not too stiff, not too elastic). Read this on doctors site, hope it's useful.

panther237 profile image
panther237 in reply topanther237

drmyhill.co.uk/wiki/Brain_f...

Further reading about fibro fog

Not what you're looking for?

You may also like...

DOES ANYONE ELSE SUFFER WITH THIS???

IVE HAD FIBRO FOR 7 YEARS AND FOR THE LAST 8 MONTHS IVE BEEN HAVING CONSTANT URINE INFECTIONS WHICH...
haribo36 profile image

TMJ. Does anyone else suffer?

Hi, I have suffered from this for years, but as I get older it seems to be worse. It affects my...
Funkyfaerie profile image

Does anyone else suffer with other illnesses?

Along with Fybromyalgia, I also suffer from Chronic Ulcerative Colitis, Rheumatoid Arthritis,...
Babylons profile image

Does anyone else suffer from very shaky hands?

I am coming to terms with this condition very slowly as it has had quite a major impact on the life...
Lruk profile image

Does anyone else suffer with terrible mood swings?

Morning all I am just wondering if its just me or does anyone else have bad mood swings. I am so...

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.