Ouch...

[issylot]

I should be enjoying the sunshine but right now am suffering from a chronic flare up, even just typing this causes agony in my hands and arms...have been suffering all the usual aches and pains but the fatigue is really getting me down at the moment....I was also wondering does anyone have trouble with developing rashes across the face and chest after being in strong sunlight? I am suspicious as I have alot of symptoms associated with Lupus and wonder if the doctors are missing something here?? I have been told that the blood tests for lupus can give a false negative.....all i know is the cocktail of drugs given to me over the years to treat my fibro have not worked maybe this is the reason?? any thoughts?? xxxxxxxxxxxxxxxxxxx

[Butterfly54]

I also blister in the sun,this is the only time of year I can sit out in it eor a little while.But like you I have been stuck in bed as my back is so bad.

Come june onwards I have to cover up and keep my face out of it as much as possible or I would come up in very sore blisters that itch but you can`t touch.This started for me 30yrs ago.I had lived in south africa with no problems.

I have in the past had regular ANA blood checks but am always just below for lupus.But when diagnosed with fibro in feb I was also diagnosed with Sjogrens.which is in the lupus,rheumatoid arthritis family.

I like you you was told I had 5 of the 7 pointers for lupus,but all I can say is I hope the bugger doe`snt get me.I don`t reckon I could stand much more.

Hugs Butterfly xxx

[gypsycrafter]

it could be to do with medication! some of them react to sunlight but i am not sure which they are. you would be better looking them up or seeing gp or chemist. hope you both feel better soon. (((hugs))) xxx

[sulugirl]

It definitely might be one of the medications you are on. When I was on Tegrotol I was supposed to avoid the sun and could feel it's burn really quickly. Be careful and definitely bring this up with your doctor!

I'm sorry you're stuck inside today. Big gentle hugs for you.

[trisha64]

i have had this for years my gp is sure its lupus but the bloods say no ,, i had a biopsy and was told i had jessners something or other which is symptomless, when i said well thats all fine and well cept i habve symptoms they just said oh lol , so now i have three sets of test a year till we find out it is ,, but lupus apparently mimics a lot fo other conditions

[jazher]

Hi issylot,

Yeah as soon as igo out in the sun i have the the butterfly like red rash across my nose, and it does look like the lupus rash and my chest and neck go bright red too. My gp has done the test twice and it has came back normal. So i dont know but i was also told that it can show up a negative unless your in a flare at the time your bloods get took.

I do have multiple conditions tho and like someone has said tablets might have something to do with it.

kel xxx

[issylot]

Thanks guys for the support and advice, the only meds i am taking right now is nurofen.....i was on dosupelin but they had upped my dose and all it did was get me to sleep intially it didn't help me stay asleep. I have been trying to manage my condition through diet and exercise but some of the symptoms i have been having since xmas have been quite severe so back to gp week after next to try and get some help......must learn to pace myself alot better than I have been......thanks for the support, means alot to know i am not alone...xxxxxxxxxxxxxxxxxxxxxxxxxx