hey does anyone know if short-term paralysis is part and parcel of fibro plz???

[wiccamom]

occassionally i am completely stuck because of a problem with paralysis of either my legs only or from the waist down. i have heard conflicting info on this so far, so would love to hear from anyone who knows more about it plz.

[AnnieD]

Sorry, I have only just joined this site but my daughter suffered from various serious conditions while she was ill. Luckily, being only 11 when she 'caught' FM, she has now recovered. I believe adults aren't so lucky. Yes, is the short answer. She was paralysed over her whole body from the neck down apart from her hands. Try explaining that one! She was like this for several months but it passed and moved to the next stages of her illness. Her paralysis came on suddenly over a matter of days starting with her legs and creeping up her body.

Hope this helps.

[wiccamom]

thanks annie, i am sorry to hear what happened to your daughter, i can only imagine how i would feel if it were mine. i first experienced it (the paralysis) after i had my second child and the so-called proffessionals put me on anti-depressants and made me feel like a liar. that child is now 10 yrs old and i still experience temporary bouts! the only advice i have been given is to call 999 each time it happens! like i have said on profile, i am a single parent, my children are 7, 10 and 11 so i cannot leave them alone each time i am "stuck". i still hope it will go away but after all these years i hold no hope. BB x

[FionaP]

I often have a few hours of being paralysed. Especially when I have done too much. It lasts just a few hours and if someone moves my limbs for me I can come out of it quicker after a small time of spasms. Is this what you mean?

[wiccamom]

yes it is fiona, i have had it for minutes, then the longest was 12 hours, i love being an independant strong female who can care for my kids but this does make me feel useless, time and time again. i have no-one to move me so no idea if it helps, i have been taken to hospital with it and the movement didnt help then. but is this part of fibro or something unconnected?

[FionaP]

I see my episodes as directly linked to over exerting myself and part of fibro.

Having just moved home with no help. I am locking daily. Have had this for the past 7 years and it was worse before I started slowing down.

There needs to be more research and much more discussions between us where notes are taken to look at what goes on with us seriously.

A good idea is to keep a diary of all you have done and all you have playing up like arthritis, migraine.... Ask your children to gently move an arm or leg if you are not moving when they want you, see if it makes any difference. I am usually alone but have a PA some of the week and she knows what to do.

The first time I locked for a long time and wet myself only 3 feet from the toilet. A doctor called me lazy!

I used to be very busy working 11 hours a day and have yet to meet a fibro friend who says they led a slow life.

Best of luck. Please let me know how your notes go.

[Hidden]

Thank you for this thread. I have been formally diagnosed since 2010 but had the symptoms since my kids were very young. I developed them after a few traumatic experiences in my early 20's. Despite this i remained a strong independant working woman most of my life (apart from the depression which got severe at times), but had to finally give up work last year as the tiredness, stress and pain was too much. But the last few months my legs especially the right and back suddenly freezes up and i cant move or stand or nothing.,

But it is usually because i am getting worse when i have a bit of energy i do overdo things jujst so i feel like i have achieved something. Trouble is i usually am laid up for a couple days after. I live alone with my son who works so i am on my own all day with no one to help move me. My doc is so unsympathetic but does not want to keep giving me diazepam for the muscle seizures so she is referring me to the pain clinic although been warned a very long waiting list, in the meantime i been told to do gentle exercise regularly, How???

[LindseyMid]

I would actually say no. Not paralysis (when you cannot feel or move your limbs).

You may have episodes when your muscles will not work, quite possibly due to myofascial restrictions related to the Fibro, overuse and fatigue. But you should still be able to feel the limb if you or someone else touches it.

Low blood pressure can cause episodes of temporary paralysis, but this should be thoroughly checked out.

If it is genuine paralysis (cannot feel or move your limbs), then you really need to see a neurologist quite urgently. Temporary paralysis can be a sign of MS or something else.

[wiccamom]

i understand what you guys are saying, i have the toilet problem often, obviously made worse by being stuck. keeping a diary sounds a good idea! I have been to physio, back clinic, hydro, and more, none of which helped at all. i have tried the gentle excercise but it makes things worse, there really is so much to this damn condition!

Regarding the comment from lindsey, i either cannot move my legs or sometimes it is from waist down, but wen in hosp i could feel the doc pricking my legs and feet with something but had no movement, even when they did the tickle test. one doc said it was my fibro but another specialist says it is not. thanks for the info though lindsey, it at least seems that i have less to worry about. i do have even worse pain in hips and legs when it happens too!

Glad i found this site, at least i also know now it is not just me it happens to