This flare up has been going on for nearly a month and the only advise I'm being given is to try and get his sleeping pattern back to normal.
He's in an awful lot of pain lower stomach and chest, very weak, pain is worse during the night, most night it's between 4 and 5 am before he falls to sleep and he'll then not be able to waken for 12/14 hours.
He lost his appitite over 3 years ago and now only eats about 5/6 different types of food, he cannot bare fruit or veg. He also has Sensory Intergration Disorder which makes things a lot worse re sight, sound, hearing, touch, texture and taste.Each time he has a flare up he develops new symptoms. last month was restless leg syndrome.
The GP is understanding but doesn't have knowledge regarding M.E./CFS.
I'm feeling totally hopeless at the moment and would welcome any advice from fellow sufferers.
Wishing you all can have a peaceful day. Jackie