Who do i go to for support ie benefits? - Fibromyalgia Acti...

Fibromyalgia Action UK

60,322 members67,539 posts

Who do i go to for support ie benefits?

jennie1979 profile image
8 Replies

I am all new to this lifestyle and i feel that i am given no help by hospitals and gp's. All i know is that its called fibromyalgia and was given a leaflet which was useless. please feel free to give me some hints towards what i should be doing generally.

Written by
jennie1979 profile image
jennie1979
To view profiles and participate in discussions please or .
8 Replies
jazher profile image
jazher

Hi jennie,

You are in the best hands for support on here hun, it is so good and there is so many people on here to help you and advise you.

There is always someone on. :)

Benefits is tricky and i am sure you will have someone who knows what they are talking about as i dont. sorry.

CAB would advise you on what to do hun.

Good luck and we are always here.

kel xxx

lynnie2010 profile image
lynnie2010

if you have an indepentant livin centre where you live they can be very helpful as they normally have a benefit advice person there that will help you and help you with your forms etc.... or you should have a money matters help team in your area that can help.... if you live in a housin ass porperty they normally have a help team for disabled people etc that can give you advice and help with forms tooo x x

lynnie2010 profile image
lynnie2010

sorry of that didnt make much sense or i repeated myself but i just took me tabs lol.... make me feel bit woozy!! lol cant think straight x

jennie1979 profile image
jennie1979 in reply tolynnie2010

I have moments like that, glad im not alone on the one Lynnie lol.

I've still not had full diagnosis. My doctors, osteopath and consultant agree that i have fibro but how do i prove to benefits agency and housing association i have it?

Kizzie profile image
Kizzie

Jennie

Do you have a support group near you? My support group is brilliant and they always email any new information etc.

Of course, this site is brilliant and anything you want to know there will always be someone to help, ask away :) x

jennie1979 profile image
jennie1979 in reply toKizzie

Hi Kizzie,

I dont know idf there is i have googled it a few times for my area but so far away from where i live, i can not access them.

I must look harder, thing is im a bit old fashioned i like to see people face to face situation.

rubywhiplash profile image
rubywhiplash

Hi Jennie try the benefits and work website it is brilliant you do have to make a one off payment but a wealth of advice and info and help for filling in forms worth a try.

Ruby xx

Kizzie profile image
Kizzie

The meetings are face to face, once a month but in between times I get sent any new info. x

Not what you're looking for?

You may also like...

Benefits and support

Hi, I'm new to the group as a recently diagnosed fibro and cfs sufferer. I was wondering whether...
Annette_D profile image

i have to go to job centre for assessment what can i expect

i am going to the job centre today,for back to work assessment,i have been given esa till...
sylviajones profile image

What help, support and benefits am I entitled to?

I was diagnosed with Fibromyalgia in February 2012, but have probably had it as long as 20 years,...
LovelyLiz profile image

Do I stay or do I go.....

So very tired this week I can hardly keep my eyes open. I am due to go away with friends tomorrow...
bubsy47 profile image

Applying for benefits

Hello all, I would really appreciate some help. I have applied for pip before but did not get...
Dendarling profile image

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.