Benefits and support

Hi, I'm new to the group as a recently diagnosed fibro and cfs sufferer. I was wondering whether anybody had had any success with regards to personal Independence payments. I have been given daily living allowance at low-level and I'm hoping to receive mobility however at my medical, once reading the medical details given by the nurse she has completely disregarded any pain or anxiety that I miss somethin or anxiety that I mat suffer when I leave the house alone, which is a very very rare occurrence. As my husband works I am unable to receive many benefits that are income basked and I am finding the whole claim process exhausting. I have worked since I was 14-year-old and have never needed to claim before. Does anybody have any advice as to where I can turn for support I have contacted welfare rights however they will only give generic information at this point. (Just so you know I have just typed this by microphone, it's a first for me) 😊

9 Replies

  • No experience. But have you thought of contacting citizen advise? Good luck chuck.

  • I've heard other members on here mention a website called - I think they are good at giving advice re benefits. Turn2us is also good. I hope you get what need. Keep us posted in how you get on x

  • There is another site which has welfare and benefit in the title, but sorry fog means I don't remember full name.

    Have you seen anyone higher than a nurse? I submitted reports from three specialist when I applied. I was successful the second time I applied for DLA.

  • Hi, I've been under a neurologist for the past 2 years and a neuropsychologist for last 6 months. I am waiting for an appointment with a chronic pain specialist and also if fibromyalgia worker in my local hospital fingers crossed I won't have to wait too long and hopefully a decision will be made Once I have all the information from them too x

  • Well hope one of them is able to help you but get and submit as many reports as you can. Other people words will cover more weight. X

  • There's also

  • Hello Annette,

    There's Benefits and Work - even before you become a member there is free advice and guidance and also, the members' forum may be able to advise:

    There's also Action for ME who offer guidance and support that is both informed and informative:

    Hope this helps :)

  • I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I genuinely hope that you find the forum useful, informative and loads of fun!

    As the others have said, the CAB are usually quite helpful with PIP forms and they are always worth a try. I have pasted you a link to their benefits section to have a look at, so I hope that you find this useful:

    CAB Benefits

    I can see that you have been given some wonderful help and advice so I want to genuinely and sincerely wish you all the best of luck.

    I have also pasted you a link to our mother site, Fibromyalgia Action UK below:

    Fibromyalgia Action UK

    All my hopes and dreams for you


  • Mobility is much harder to get under PIP than it was under DLA. I know several people with Fibromyalgia who have lost their Motability cars after being awarded standard rate Mobility rather than Enhanced Rate. The key criterion for Standard rate is whether you can walk 50 metres reliably, safely and repeatedly. For enhanced rate it is 20 metres.

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