A great site...: Hi all, Been on... - Fibromyalgia Acti...

Fibromyalgia Action UK

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A great site...

RhiRhi profile image
12 Replies

Hi all,

Been on here a week now and it's been great. Found out more about Fibro and people's experiences, symptoms that I've been worrying about thinking they are just me but find others have them too so helped put my mind at rest. Everyone is very friendly & supportive :)

Well, my week has been pretty miserable; spent most of the week in bed. Constantly exhausted and pain is just getting worse, take painkillers but they don't seem to touch it, whether it's because I have taken them for so long and my body has just got used to them I don't know. Back on crutches as my right hip is getting as bad as my left one was before it was replaced; really hope my right hip doesn't get as bad as needing a replacement as I certainly will be bionic before I'm 30.

Anyway, that's enough of me moaning. Hope you all have a lovely weekend and here's hoping that Wales win the Grand Slam tomorrow :) xx

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RhiRhi
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12 Replies
jazher profile image
jazher

Hi RhiRhi,

I too love this site. :)

Hope your weekend is better than your week was.

How come you had to have a hip replacement so young? Do you have other things wrong aswell as fibro?

kel xxx

RhiRhi profile image
RhiRhi in reply tojazher

Hi, thanks for your reply!

If Wales win the Grand Slam I'll be happy :) I have osteoarthritis in my hips due to congenital dislocation of the hips, didn't know til I was 24 and it just snowballed since then and had left hip replaced a year later. I suffer with depression and joint hypermobility too!

Hope you're ok x

jazher profile image
jazher

Hi RhiRhi, I wish wales luck then lol. :)

That sounds really painful.

I have hypermobility syndrome too and my right hip is agony all the time along with my knees too.

I was dx with fibro bout 3 years ago, but only found out i had hypermobility last week and it explains alot.

I cant believe how many people on here has fibro and hypermobility.

I thinki have depression too, i am going back to gp next week to see what she says.

I am ok thanx. kel xxxx

RhiRhi profile image
RhiRhi in reply tojazher

Thanks lol

Maybe hypermobility and Fibro go hand in hand? My knees are really painful too, especially my right one! Mad how many symptoms there are and there more and more just come, it's never ending! Do you work?

Def go to your doc about possible depression, they say it comes with Fibro but it's worth speaking to her about it as some anti depressants help with pain relief too! Hope appointment goes well!

Rhian x

jazher profile image
jazher

Hi Rhian,

No i dont work i had to give it up last year, i only done a little saturday cleaning job, but i loved it. My partner could of worked the sat and got more monney but i wouldnt give it up. I carried on until i started having to sit on the floor to hoover (it sounds mad but thats how painful my knees were lol).

My partner just keeps me now i have tried dla and failed but now i have hypermobility aswell as cfs/me and fibro i am going to try again.

I will let you know how i get on with my appointment.

hope your having a good day today. :)

kel xxx

RhiRhi profile image
RhiRhi in reply tojazher

Good Luck with Doctor appointment and DLA claim x

Sammicat15 profile image
Sammicat15

agree with you about the site, RhiRhi. it's a good 'un :-)

sorry to read about your hips and hypermobility issues. that must be painful. your too young to be having all this trouble, bless your heart x

RhiRhi profile image
RhiRhi in reply toSammicat15

Indeed, very good ??

Yes, very painful. Have been off work for the last 18months and prior to that I was off 6months cos of my hip replacement so really in last 30months, I've only worked for 5ish months :(

Hope you're doing ok xx

Ang01 profile image
Ang01

Agree, this site is very helpful as well as friendly and supportive. And yes, Wales to win the Grand Slam. Just watching it now and looks like we are heading that way x

RhiRhi profile image
RhiRhi in reply toAng01

They won ~ Woohoo! Something good to smile about x

RhiRhi profile image
RhiRhi

Thanks x

RhiRhi profile image
RhiRhi

Thanks x

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