Dry mouth, Sjorgens syndrome. - Fibromyalgia Acti...

Fibromyalgia Action UK

59,780 members66,845 posts

Dry mouth, Sjorgens syndrome.

Sue15197 profile image
8 Replies

I woke up this morning with my mouth so dry, I could barely speak, (hubby says thanks).

I have tried normal tea/coffee, decaff tea,/coffee different flavour teas, (yuk) and still I have dried mouth. I know part is down to the Amitriptyline tablets that I take every night, and the Sjorgens, and that Auto Immune diseases can cause too. I have tried everything medicinal and non, and one thing helps, sucking on an ice lolly.

Written by
Sue15197 profile image
Sue15197
To view profiles and participate in discussions please or .
Read more about...
8 Replies
LindseyMid profile image
LindseyMid

Hi Sue. Sorry, but I'm not understanding what your question is? Are you just wanting to know how other people deal with this?

Therev profile image
Therev

I use salivix which I get on perscription

Butterfly54 profile image
Butterfly54

I have Sjogrens I didn`t know untill a couple of weeks ago.It came up in one off the bloods I had taken after being diagnosed with fibro.It answerd the dry eye and mouth.Dry eyes I just get something from boots,but dry mouth well,I`ve sucked too many sweeties in my time.If you suck anything make sure it`s sugar free.And like Therev ask your doctor for something.All the best and Hugs xxx

wednesday_focker profile image
wednesday_focker

i was tested for sjogrens, lip biopsy said no, but have every symptom going, i have a wee humidifier at side of the bed, that ehlps, tried the oral gels made me gag theyre offensive really, also palce a damp face cloth on the radiotor which heklps moisten the air, as the central heatings horrible this time of year x

wednesday_focker profile image
wednesday_focker

Also i cut hweat out my diet , it seems to greatly help my dryness , if i do eat it my mouth dries to a stick x

Cazie50 profile image
Cazie50

I have Sjogrens and use Carbomer Gel for eyes, Salivex pastilles for dry mouth and Dermol 500 for dry skin.

Sue15197 profile image
Sue15197

Thanks for all your help, I do use eye drops which are a marvel. I do sip water all day, but I was put on 1 extra Ami a night to aid with pain in legs. I think I will drop it, I am told that I am snoring enough to peel the wallpaper off the walls.

Plumcake profile image
Plumcake

I have Sjogren's too, only diagnosed a short while ago. First of all was diagnosed as sicca syndrome. I was prescribed Plaquenil (anti malaria pills) by the rheumy and they didn't agree with me at all.

Made me really ill and weak, now suffering bad depression and anxiety. So been pout on duloxetine 30 mg. Had that before but this new GP said the dose was too low.

I use cheap moisturising eye drops, and I'm afraid the gel they prescribed did nothing, it was horrid and sticky.

Just keep sipping the water and try sugar free sweets if it gets too much.

Worst thing is not being able to swallow food I find.

I'm glad I am not the only one types back to front lol happens all the time

xxx

Not what you're looking for?

You may also like...

Acceptance?

I have been really struggling with what seems a never ending flare at the moment. My pain, fatigue...

Adenomyosis

Hi Fibro friends 😊 Does any 'ladies' in the group suffer with Adenomyosis. I have been recently...

grief and pain

l lost my husband 4 weeks ago before watching him in the last stage of terminal cancer , The...

Exercise anyone?

Hi, I have just turned 29 (In June). I was diagnosed with Fibromyalgia in November 2021. I have...

PIP reward

My PIP was due to be assessed last October, I sent all the firms back before the deadline in...