Chronic Fatigue long before Fibro?? - Fibromyalgia Acti...

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Chronic Fatigue long before Fibro??

WorldOHurt profile image
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I've suffered from chronic fatigue since I was a teen....so most of my life. I am 71 now. The fibromyalgia didn't come on full blast until I was 63. It has been very severe since then. But prior to that I just had sporadic "episodes" like some part of my body was "short circuiting", like weakness or pain in one limb at a time or one leg giving out on me. One of my first symptoms of fibro before the excruciating pain was my legs feeling like "jello" legs and becoming very weak and spastic feeling. This started in my late 50's and only happened every once and a while....but that sure made me wonder "what the heck was going on" with my body. Does anyone else here feel like they had chronic fatigue first?

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WorldOHurt profile image
WorldOHurt
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5 Replies
honeybug profile image
honeybug

Hi World OHurt🤗🌸🌿🦋

Yes I did too. I couldn’t understand why I got so tired when I should’ve been stronger. The simplest things would exhaust me to where I had to lay down and recharge my energy. Then as the years went by it turned into fibromyalgia. I’m 67 now and am amazed at the evolution of my decline over the decades.

I’m so sorry 😐 you are suffering. Sending you hugs 🤗 love 💕 and kisses 😘

🤗🌸🌿🦋

WorldOHurt profile image
WorldOHurt in reply tohoneybug

Right back to you Honeybug. I could never understand why I was so tired all the time. When I woke up in the morning it would take me 2-3 hours to wake up. And then I was constantly napping.

honeybug profile image
honeybug in reply toWorldOHurt

I did that too. So hard to make sense of how we can’t function like others for the simplest things. Hope you have a good day. Pace yourself

😊🌸🌿🦋

YASMINTINA profile image
YASMINTINAFMA UK Volunteer

Differently think cfs first been going on properly last 7years , fibro got diagnosed first though this year my chronic fatique has got worse I’m 56 and struggle having them both together I also have sleep apnea(have cpap machine) I have to miss out on so much I got to spend 2/3 hours on a farm with my grandchildren today I’m so happy but boy when I got through the door the aches pains fatique has laid me out for the rest of the day. My flares have been happening every week this year some days laid up a day but can range 2 to 3 days sometimes . I do feel for you I’m hoping you have some supportive family/friends we all need loving support take care xxx

Mdaisy profile image
Mdaisy

Mine was the other way around (Fibro then ME) however saying that I'm sure I had Post Viral Fatigue (CFS) after Mono/Glandular Fever (EBV) at University. I seemed to have a time when not to bad then developed Fibro then around 6 years later symptoms of ME but wonder if both were coming and going throughout! The symptoms are so very similar and I often thought whether people with ME could be misdiagnosed with Fibro and vice versa. Therefore this is difficult to answer until we get diagnostic tests and see actually figures.

There are MD's (America) who post online giving the hypothesis that if these symptoms occur post viral infection that viruses are latent within the body taking advantage when we are weak but this is an unproven theory but interesting I suppose :)

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