some sort of pain : with fibromyalgia... - Fibromyalgia Acti...

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some sort of pain

Scooterz2 profile image
6 Replies

with fibromyalgia how the b***dy hell do you ever become accepting of being in some sort of pain every day?

for me it’s been decades and decades and am I “used” to the pain? nope.

can I accept living each day in pain to some degree of another? nope.

have you had this thought process?

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Scooterz2 profile image
Scooterz2
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6 Replies
ftorres18 profile image
ftorres18

I completely understand how you feel, and let me tell you that it's one of the most challenging struggles when living with fibromyalgia. Facing chronic pain every day affects not only physically but also emotionally and mentally, and no, it's not something you just "get used to."How to accept chronic pain?

First, I want to emphasise that what you're feeling is completely valid. It's not easy to accept a reality where pain is a constant, but there are ways you can learn to cope with it. More than "accepting" it, it's about finding strategies that allow you to live the best possible life despite it.

I don't know what you're doing to manage the pain, but here are some suggestions I hope will be useful:

1. Gentle exercise:

Although it might seem counterintuitive, activities like yoga, stretching, or swimming can help ease muscle tension and improve overall wellbeing.

2. Relaxation techniques:

Meditation, mindfulness, and deep breathing exercises are effective tools for relieving mental and physical tension caused by pain.

3. Establish a pain management plan:

Work with your doctor to develop a plan that combines medication, physical therapy, and a focus on mental health. A pain management specialist can help you tailor strategies.

4. Don’t hesitate to seek psychological help:

Chronic pain commonly impacts your emotional health. Speaking with a therapist can provide you with tools to manage anxiety, frustration, and sadness related to pain.

Have I had this thought process?

Yes, and I believe many people with fibromyalgia have had it. The thought of living with pain every day can be overwhelming, and there are days when it simply feels impossible to carry on. However, it's important to remember that you're not alone, and there are ways to find relief and support, even on the hardest days.

Conclusion:

Your experience is valid, and your thoughts and feelings are too. Living with fibromyalgia is not easy, but every step you take toward managing the pain is a significant advance. Don’t hesitate to seek support here in the group or with healthcare professionals. If you have more questions or need to share, there will always be someone ready to listen and help. 👍🙏💪

CheetieCat profile image
CheetieCat

Don't think you ever accept, maybe just get slightly better at dealing with it but thinking too far in the future (for me anyway) is too much.

I can't actually remember how it feels to have no pain or a full nights sleep. Often think if I woke with no pain at all I'd probably think I'd kicked the bucket & totally panic 😂

My best coping methods are working , music and copious amounts of swearing 😳

.

Labradoodlelove profile image
Labradoodlelove

I can totally relate I’m just so tired I hate the winter months not only do I have the pain of fibromyalgia but also arthritis, my right hand is so bad with arthritis and carpel tunnel that I just feel like curling up and hibernating! During the day I try and work through the pain by keeping busy I still work through hand pain by knitting ( with a compression glove) but I know that as soon as I get into bed the pain starts! I’ve got to the stage that I dread going to bed hoping if I leave it really late I will be so tired that I’ll sleep… no chance! I’m just so fed up and miserable all the time. As for doctors well ours are useless you have to wait three weeks for an appt and now we only we have only one main doctors and locums so you never see the same person! Roll on summer

Wobblygirl profile image
Wobblygirl in reply toLabradoodlelove

Hi Labradoodlelove, Your response from me is underneath as a response to Scooterz2! Obv I've got in a muddle!?!

Sorry to you both 4 muddling it up... Wxx

Wobblygirl profile image
Wobblygirl in reply toLabradoodlelove

Now my message to you has disappeared!!!Too weary to repeat it but I empathise totally with yr hand pain/arthritis! Now, I've had physio after 6months waiting, I'm getting support from kinaesthetic tape strapping!

Mine was diagnosed as Tennis Elbow originally and now inflammation of my ulna nerve... but with arthritis implications!

However, I tried to train my left hand 2do more and now that wrist+hand is in same pain!!!

Can't ever win, can we?

Wx

fmlife profile image
fmlife

am not as accepting of the condition as should be, hence why continue to change diet

its me v it, however am told there is no cure, still no cure

no further help advice from drs, have felt unsupported by the drs its you have this pain its named this they try all these meds when does not work its deal with it without any direction, think have been educating them.

guess back then no one knew.

being on own for many hours a day from being surrounded by folks was a change, having to deal with pain it makes you think of a shorter life, no one understanding, it becomes lonely in a crowded room. there are 2 paths its then you choose to fight. your stronger than what think

have been managing it by pacing, changing food eat, using tools to try make things better for me, and you all whom read because share anything discover freely.

sadly we are what eat, eat crap feel crap, eat healthy still feel crap at least trying huh

interesting have been watching some youtubes, a person whom has conditions including me/ cfs, in video showed her new wheels uses to pace it be about 7months old

in that video the lady showed her basket held her supplement, quick eyed me spotted

what was strange was I had started to eat a banana a day 2 years ago in my bid to get healthier loose weight ha

(it appears weight is less when do less i.e stay in bed due to pain, then get up move and perch to rest ? an unexplainable mystery,)

life is a set of choices

to move or not to move that is the question, you must move so not get blood clots, keep flexible it hurts more not moving then trying to after not moving )

back to video person is showing the container of rattles equivalent takes for her condition. so a quick search on nhs website reveals foods containing this, discover am already eating banana.

this is the thing am stumbling through seeing others and then learning,

others seem to be getting direction.

for anyone wanting to know i eat

chestnut mushrooms for vitamin d weekly with broccoli vit k

a banana daily

bell pepper vitamin c although its a nightshade food should stay away from, yet it higher in vit c

and gluten free

lacto free alpro almond milk

have recently discovered oat milk gives me ibs after trying the plant based Philadelphia

we are all different prefer the food to rattles, for some reason sensitive to higher med

Tablets which have all sorts in, sometimes gluten sometimes even shellac, shellac is also used in french polishing, that is an interesting read from what made from back then.

fibro is so different and variable in each of us, there is no cure because of this, our constant is food, will power, our push for a better situation.

research tools to make your life better,

dont give up yet xxxx

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