I've lived with fibro for 11 years and have come to terms with it although there are days like today when I question my faith but thats another story, apart from fibro I have other health conditions that don't help.
When I was first diagnosed with this I thought ok give me the magic pill to take it away as I have a life, job, kids and a relationship that didn't last as they couldn't understand what was happening to the woman I once was reduced to a crumbling mess hiding curled up in my room moaning in pain.
There was no magic pill but meds that made me into a zombie, for years I carried on living like a zombie, going to the doctors who would say there was nothing more they could do but told that it may go away by it self so I lived in hope.
I joined a fibro group where I learned tips and met others and yes some recovered free from fibro I didn't understand I did everything that was asked of me if not more, "yes I was jealious" why them and not me so for days I would be miserable but I was lucky I have kids that put me right.
Now I still live with it, but I make everyday count if there was one thing I have learned its pacing myself even when I have good days I do what I can and not more as its going to be there tomorrow.
Todays a bad day as you can tell!!
Tomorrow will be better
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Tinkerbell96
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Hi Tinkerbell96Sorry to hear you are having a tough day.
I could sense how weary you feel. You do all you can and this is hard.
I was diagnosed 2010 and tried some medications that affected other conditions.
For me seems hard to find balance between acceptance and the fight I need to have the enery to keep going. I sometimes expect too much from myself, I tell myself I should have more grace.
Fibro is hard to understand for those around me and I have met toxic positivity of looking at the positives and being grateful. I may have done this to myself sometimes too. This didn't let me grieve all the things,activities and people I had lost.
Can you talk about your faith with someone you trust.
That peaked my interest too. Have people recovered? Or perhaps been misdiagnosed in the first instance? Be interesting to hear what op has experienced before xx
Hi there, I have lived with fibro for 40+ years and I'm not aware of anyone recovering from fibro.
What I think may be happening is some people can go into a kind of remission. Many woman seem to go into remission when pregnant for example. This happened to me.
I think those who truly believed they made a full recovery IMO are those who never really had fibro in the first place. Or those who are trying to make money out of the vulnerable and sick.
But that's just my personal opinion. All I would say is be aware of people peddling miracles xx
I was so much worse when I was pregnant blimey, but then I have other conditions too and had to come off all my meds and I was old to have children. I used to worry that if I was in so much pain that the pain would be going through the baby too. I was told definitely not but I doubt they know really.
If I do a lot of exercise I can almost feel like I don't have fibro but I'm so used to being in pain all the time you forget that other people just aren't, I'm sure the gym buddies think I'm not in pain but then I wouldn't have any gym buddies if I expressed pain all the time.
Still wondering if there are doctors out there telling people your fibro might go one day, maybe the guidance has changed?
I hope you are proud of yourself to balance what you can when you can. Life with fibromyalgia is unpredictable and therefore your life is not always as flexible because of plans if cancelled affect others. It very hard for friends and family to always understand any illnesses and fibromyalgia is not something others can see . The pains are inside you and many other symptoms that people don't see.
One of the things that have helped me was research into my diet and food and lifestyle which brought on flare-ups and doing that has worked for me. I never really 100%each day but I do feel better. Think about signing up with talking therapist website they are good to give you support and suggestions of other ways to help yourself.
The key thing with fibromyalgia is to keep moving when possible as this does ease pain.
My mobility has been affected by Fibromyalgia and Osteoarthritis which Is very painful when they both kick in however my mindset is to keep moving with sticks to support me but who cares I am moving.
Look at vitamins for Fibromyalgia you can buy them on amazon and they do help for some .
Wear a Tens machine they also help with pain. Chair exercises also relax the muscles to ease pain. There loads of good ones on YouTube.
I love your attitude of determination and wish you hugs and warm wishes. You are never alone with all the members on this site who totally understand and accept you as you are with no judgement ✨️ they are all shining stars ✨️ just like you. God bless xxx stay in touch
Personally I have found that the doctors and Medication are just crutches; until you find the courage to dispense with the meds in particular, and strike out on your own.
I had to do it 30+ years ago after my husband took his own life. He was violent and abusive in every possible manner. It took me ten years, but I eventually thought 'I've had enough of this malarky' took the bull by the horns and started unravelling the enormous knot I had inside.
I had no choice, my kids were suffering. I started with getting rid if his voice in my head, telling me I was a total failure, as a wife, mother and even as a nurse. So I got sick of the voice, got really angry at it and cursed it out of my head, and it left for a week, then tried to get back in,so I gave it another blast and it left for a month. I kept going, each time it tried to worm back in I chucked it out again, and eventually it gave up.
It worked for me, maybe it will work for you, but you must persist. Fibro has it's own problems, the pain, stiffness, exhaustion, brain fog, and everything else it will throw at you. I can work with it now I have the 'voice' under control. Last time I saw my doctor was about 6 years ago, and I told him 'I'm not in pain because I am depressed, I'm depressed because I'm in pain'.
My fibro is relatively under control now, OK, at 76 I've got the start of arthritis to add to the mix, and I find myself very Weather affected; Good weather will improve my pain and ease my mind, but bad weather, even drizzle, will make my pains increase and cause me to be a massive Grump!
I'm on very little medication (good thing as I have lived in my current bungalow 5 years now, and not been able to get to see a doctor yet!) Surgery big enough to run a Walk in centre from, but only 6 doctors, and they appear to be part time! There used to be 20! The whole place appears to be run by the nurses, as my son and carer has Diabetes so gets seen regularly! I get by with over the counter Ibuprofen or Paracetamol. (You don't take the knowledge off with the uniform!)😉
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Written in one of my quiet, thoughtful moments - mainly feeling alone and very lonely
Why Fatigue?
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Slideshow: A Visual Guide to Fibromyalgia
