Hello all hope Your all well I’ve recently been diagnosed with fibromyalgia on the 7th of October I think I’ve had it forever

[Animalover39]

my story I was recently diagnosed with fybromalgia and I was surprised I was diagnosed with fybro I thought it was arthritis my pains not that bad but my neck was the worst for me it’s ok at the minute its mild but I’d rather not have it I’m going to try the atripilin

[keokar]

Hi Animalover, I have had Fibro for 18 years, and previously CFS, from late 20s. Fibro and arthritis and others, have similar symptoms and can mask what you have. I also suffer with my neck, it's probably my worse part of body, with back and legs. I good pillow shaped for neck, cold spray and heat pads help a bit, lots of different medications, which on a few, but you have to find what helps you. Knowing your energy levels, pacing and managing your daily chores and outings. Take care.

[Animalover39 in reply to keokar]

Hello keokar sorry to hear that hope the medicine helps I’ve not tried any yet, what cfs? Ahh so you find the neck the worst aswell

[keokar in reply to Animalover39]

Cfs, is chronic fatigue syndrome, they say you get these illnesses from trauma, stress and illnesses, I had glandular fever in 20s, and felt burnt out of energy. I still have the fatigue, which is worse now, and comes with they everything, just finding what you can do each day. Hope you find what helps you, as everyone different. x

[Animalover39 in reply to keokar]

Ahh ok I do suffer with fatigue I kept saying tiredness lol and someone said no it’s fatigue I sleep really well tbh only if I pee I can’t get back to sleep so I have to try nod of sometimes I feel like I haven’t had a good nights sleep even though I slept well now I know why sometimes I struggle to get out of bed it’s so weird I sleep well but still feel fatigued, my doctor wants to test me for thyroid problems my dad has it and my nanna did to, think I’ve had every test going I’m only 39 🤣🤧 I’ll be 40 Christmas please give me back my 20,s any day

[keokar in reply to Animalover39]

It's ok, I say tiredness sometimes, means just the same, depends how memory is, alot of time, when trying to remember something, it's gone out head 🙄🤣. It's good you sleep well, alot of us have rubbish sleep, I have not much sleep, and like said, still feel tired, how ever you sleep. If you feel you need a sleep or rest, just do what body says, you can't help feeling like this, it's part of it, and finding your energy levels, it could be thyroid if family has it, but they can help you with that. I had X-rays and MRIs, and blood tests, but they rarely find infection, or inflammation, as fibro don't show anything in bloods. Most people don't understand it, but there are leaflets for it, to help with friends and family, as some can think you look ok, so you are, but your close people will understand and be there, so can be lonely sometimes. You look after yourself and I am here is want to say hello . x

[Animalover39 in reply to keokar]

My doctor put in for a blood test for thyroid issues I got to go back on the 6th of November I had blood test not long ago I’m happy them test were ok as my blood test was high so I’m happy it’s not high, aww thank you ahh not good you don’t sleep well 😴 by 10 am I’m gone I try watch s film I just nod of after a while I wake up again and then go sleep 😂 my brother says you’ve forgot to turn your light of 🤣 thank you and same to you I’m here to chat if you need advice to I’m a bit of loner don’t have friends I hang out with really just my male friend he’s a good listener I try help anyone wether it’s there health or relationship issues etc I keep saying I should of been a therapist

[Animalover39 in reply to keokar]

I got a heat pack from physio I bought one do you find they help

[Animalover39 in reply to keokar]

thank you I’ll get that pillow I think payday

[keokar]

Hi Animalover, yes I find heat pads help, put on every morning and if shoulders and back having a worse day, but I love mine and cosy about 8p to run, so good if heating too expensive. Mum bought me pillow years ago, but bought a new one now, not as good, the memory foam one good, with a shape, and have the memory foam mattress as well, a bit old now, could do with a new one, a present from my late mum as well. Acupuncture also worked years ago, but so expensive, which sad, had a few from docs. x

[Animalover39 in reply to keokar]

Acupuncture yes I’ve heard it’s really good I use my hot water bottle for my back and my heat pads for my neck sorry to hear about your mum I lost my mum to 12 years ago I wonder if trauma can bring on fybro thanks for the advice also

[keokar]

Sorry about mum , yes they say it can be brought on by stress and trauma in life. I've just come out of a relationship of 25 years , I don't know how I am getting by, but I've had alot of things in past, and I am very tough and strong, but still hard and life very different. If weren't for my cat, I would be a mess and living in new town, with people I don't know, and family in old town, is life changing. x

[Animalover39 in reply to keokar]

thank you ☺️ did you get fybro after your mum

I think I’ve had this for years tbh

That’s tough and 25. Years wow long time sorry to hear that and animals are the best there family and will never let you down

[keokar]

No mum never had fibro, but arthritis, but she always believed me, and helped me. I know sometimes you know how you feel and wonder what it is. I love animals, have had dogs, my son has lizards and cats, but I've had my black cat since a baby, and now 10, an indoor cat, I have never felt so loved by her, she is so special. x

[Animalover39]

it seems like your surrounded by your dear family ☺️ yes it’s tough isn’t it and I guess it can affect your health

[Animalover39]

hope your well at keokar