Is anyone else fed up with this chronic pain ?

[Mrdiagnosis]

I'm bored with constantly feeling off. I'm exhausted. People don't understand how much energy you have to exert just to function daily . They look at you but don't feel your pain, don't feel the exhaustion just living ....it's really got me down today. Just feeling sorry for myself......

[Dizzytwo Moderator]

Hi,to be honest I think everyone who suffers with fibro feels the same at some point.

But then I guess that goes for all those who have a chronic illness. Thankfully it's not terminal x

[CheetieCat]

Hi

As Dizzy says it's not terminal, it's not going to kill us, just most days it feels like it's having a good go!

And, Yes, it is exhausting 😔

We spend so much energy pretending to be well, to be 'normal' it's crazy 😵‍💫

I think the only people who can really understand are people who 'walk the walk' so there are loads of people on here that totally get what you mean and how you're feeling straight away.

Plenty 'talk the talk' but can never possibly understand how it feels to live with chronic pain, sleep deprivation, foggy brain and all the weird & wonderful symptoms that we seem to accumulate willy nilly 🤕

Always think though if I don't really understand it, (I know how I feel 💩🤕🥵🥱) but if I don't, how can I expect anyone else to.

Take Care & Feel better soon x

Gentle ((((hugs)))) 🤗🤗

[Fibroguy66]

Please never feel sorry for yourself or see yourself as a burden etc.I know to well the pain what fibromyalgia gives.

Fibromyalgia to me is like 24/7 pain.

I'm on Buprenorphine Patches of 20mg & they only take away between 6 to 10% of pain out of a 100 so hardly nothing.

I hate this chronic illness/decease.

I to am exhausted, fatigued & breathless amongst other things.

Kindest Regards

[Uellow22]

Hello MrDiagnosis,

You have every right to feel sorry for yourself, you can't keep going 24/7 without self empathie....only we know how we feel and I think its one of the toughest symptoms to deal with, folk not understanding it. So, allow yourself to be fed-up but yes it is SO tiresome & boring,.this is exactly how I feel at the moment too.

Just getting over a nasty virus & now my sinuses are suffering, which in turn triggers face nerve pain & I just want to scream!!!!! Oh and then there's the................the list goes on.

Take care of yourself as much as you can Mrdiagnosis.

Yellow22

[hazelcats]

Yes! Exhausting both with the physical\mental symptoms and having to try to find daily energy to put in place any little things we try to do to help ourselves, like heat bags, or ice or gentle stretches and the long time it takes to do even basic tasks sometimes.But i try to take each day as it comes, on the better days i appreciate what I can do rather than whet I cant do. Ive had to accept this is what I live with now, along with other conditions. And thats made it easier - i dont like it but I cant waste precious energy on fighting it if that makes sense.

But of course I get those totally painful frustrating days and just hope it gradually passes.

So again, a gentle hug - we all deserve those.

[caico]

As I always say to my husband - I just want to be a normal girl not a wooden puppet whose strings are constantly being tugged by fibromyalgia! I wish I could turn back time to when I looked forward to getting out of bed without 24/7 pain. Unfortunately, this condition is invisible to onlookers so they either think we are fibbing or making a meal of it! It also puts a lot of pressure on your relationships with friends (if they are still willing to hang around) and family. I realise fibromyalgia is not a terminal illness but we still selfishly think why me? Anyway, just wanted to respond to your post as we (fibromites) truly understand what you have to put up with every day. Take care

[Mrdiagnosis in reply to caico]

Thank you for your message. I don't know why people comment that it's not terminal. A terminal diagnosis while as awful as that can be ( and before anyone comments on that I've had 3 close friends and family lost to terminal illness so Im aware what that feels like) we are all suffering from the human condition and we all will go at some point. Some people don't get any advance warning.. they go on the spot ...

However living with chronic pain for the rest of your life certainty can feel like a terminal diagnosis as we know it's never getting better and you live like the invisible man or woman for most of it.

I'm feeling better this morning I'm sure we all know that feeling as it's a struggle to stay positive..that in itself takes so much energy.

I appreciate everyone's responses and time taken .

Be well everyone