Constant sweating when you do even the slightest thing.Trouble breathing when eating being chewing and swallowing food etc (feels like your mouth run the marathon)
Zero energy levels 😞 feeling fatigued and exhausted.
Toothache feeling in one side of your face and head.
Please does anyone else experience any of these symptoms ?
Yes I do and more, although they come and go and get replaced by pain elsewhere. 🤗
Hi I am the same I can not control my body temperature I get so hot it takes my breath and the sweat is unreal and I don't have to do anything. I am the same with the fatigue shattered all the time.
Hello Fibroguy👋🏻
You’re definitely not alone. The heat inside me drives me crazy & the sweating it causes is definitely not ladylike. I liken it to wearing winter woollies in searing 35.c temperatures only the heat is inside me as well as the outside of my body.
I frequently struggle with toothache since I have the myofascial pain syndrome part of Fibro in crazy full body amounts & the tightness of my face crushes my teeth & gums. Somehow, don’t know the mechanics, but it triggers my trigeminal nerve that runs along the jaw/teethline. I never know when I’m going to bite down and hit toothache! Is that familiar?
And many days the coffee doesn’t get anywhere near pulling me out of the exhaustion(which is constant) to be able to do anything. Also familiar?
I know how the eating/breathing thing feels too. My jaw gets so exhausted I just give up eating my meal. It sounds like you might have TMJD too! Temporomandibular joint disorder is pretty common in people with Fibro.
I take it you use a heat pack on your face for the toothache?
So you see you really aren’t alone and you have my sympathies .
Anyway, feel free to message me with any questions.
Bye for now
Bm
Hi
Thankyou so much for the wonderful information & lovely letter.
The pain when biting on food is definitely beyond words & it makes you want to scream.
As said eating affects my breathing,so much extra time chewing is essential otherwise I end up choking etc.
I definitely hate this overheating issue as the sweating 🥵 is vile & you constantly have to keep changing & washing etc.
Just doing anything simple gives me extreme exhaustion & fatigue then I start overthinking & then I get frightened & worried etc,as you don't really know what is happening within or to your body.
I also suffer from chronic prostitas to,so with fibromyalgia it's all connected & over lapping.
Also have IBS,ibd, severe inoperable lower spine damage,Cervical c1 to C6 spine issues.
I'm tolerant to all painkillers so they do not work.
I'm now on Buprenorphine Patches which are 60 to 100 % more powerful than morphine.
Have tried 5mg,10mg,15mg & now on 20mg and with no side effects etc,to be honest 20mg takes away between 6 & 10 % of pain from 100% so hardly scratching the surface of anything etc.
My pharmacist says that any Buprenorphine Patches between 10 & 20mg are used for palliative care🥺also.
This fibromyalgia is also making my hair full out but I've been told this is caused by the pain throughout my body.
Do hope you can write back please as it would mean so much.
Kindest Regards
Hi I know exactly how you feel ..I suffer badly from excessive sweating while doing the simplest thing ..even just putting shopping away has sweat literally running down my face to the extent that i can't even see ..its so embarrassing ..I don't go anywhere without a fan ....also get out of breath even getting myself into bed ..truly awful..you have my deepest sympathy .only those of us who have this illness can fully understand how awful it is ... just keep taking the meds and put a smile on....its all we can do..... keep your chin up from a fibro friend
HiHas anyone you've seen been able to throw any lights on the sweating issues from a medical point of view
Kindest Regards
I'm exactly the same with not been able to regulate my body temperature,constantly hot, coming and going through out the day and night, I never go anywhere with out my fan, even in the winter😔 keep going, we are all in this together xx
Hi Fibroguy66, yes all of those particularly the overheating hence the tag. I try to stay positive with lots of hobbies but sometimes it gets you down. it helps to know other people have the same symptoms as the list is so long you sometimes think you are going crazy. 🤪 Keep on going. Good luck..
Thanking you kindly for your lovely 🌹 words
I did at one time. I had tmj too. Sweating still a problem 30+ years
Hi Fybro guy yes the sweats are horrible I carry a fan everywhere, it's so embarrassing seems to come on al of a sudden, although I've noticed less frequent since stopped some of my medication, you can also get cold towels that go cool when put water on carry around in sealed plastic bag(amazon/ebay)Or damp flannel,( can also put in freezer).no answers from GP for sweats, don't give much advice at all
tooth pain, I have been diagnosed with TMJ at dentist, issued with lower teeth night guard, it has helped a lot.
Fatigue unfortunately meds also contribute to this, you have to learn to listen to your body, rest when you can, try meditation, lot of free relaxation meditation on you tube, unfortunately Fybromyalgia is a very frustrating multi symptom syndrome, Dr's not very helpful, which adds to frustration, but stress just makes symptoms worse, wishing you well on your journey 💜🦋
Thanking you for your lovely calming wordsKindest Regards
All of them plus a myriad of other pains
Yes, all of them and more too.
Like Welshcat lady says they come and go and get replaced elsewhere with different pains and areas.
With Fibro our interenal temperature thing is all to pot.
Past couple days ive had that terrible neck pain, headache/faceache/ toothache/jaw pain.
I want all my teeth out but dentist won't do it ,lol,
Not sure if it would help anyway.
The eating & swallowing thing , horrible pains in face,
And consuming food, liquid, meds is so painful, all of it sticks,
I was referred to hospital just before lockdown for it and had a a barium drink, then was turned upside down, round and round, they discovered I was full of acid reflux put me on omeprazole.
But even with omeprazole I am still very bothered with this all these years on so been reffered back to hospital.
I haven't been able to eat in public for years because of it, not that I'm in the public much anyway.
Had periods of extreme sweating when whole bed sheets are just saturated.
Also anxiety sweat too which tends to stink more too.
Fibro has turned me in to a grumpy, dottled, stinky old lady, 😳
Hi
Im exactly the same with the symptoms you have. I saw my rheumatologist last Friday, who diagnosed me with another condition.
Erythromelalgia It's where your feet feel like there's on fire; it also effects my hands and face. I tend to sweat a lot more with this flare-up.
Even having a warm shower, I get out sweating like mad, but I now know reading up on
Erythromelalgia: Warm and heat trigger this condition of even eating spicy foods. I never heard of this condition till the doctor told me apparently people with Raynards and fibromyalgia can also be effective with it.
Take care; we're all here with you.
Fully understand those strange symptoms that when you try to explain to people, they probably think you’re mad! Big hugs xx
Hi
It's horrible & embarrassing etc (Being The Sweating)
I'm a mega clean person
Kindest Regards
sleep lack of 
Lack of sleep
Lack of sympathy
lack of sleep
