Fed up with pain

[Shartaylor0264]

Hi all not been on here for a while just feel so fed up with constant pain with fibro .My life has change so much .i was active and worked full time now i struggle to even get out of bed .seem to have more flare ups just doesn't give me a break .sorry for moaning 😋

[Themanwithnoname]

Same it's a horrid condition that destroys lives. Pretty sure the so called experts don't understand the half of it. We have to somehow soldier on.

This is a good site for hints and tips.

Side note I like the profile pic of the Highland.

[Blearyeyed]

Never feel sorry for reaching out , we all need to get things off our chests and what place is better than here on the forum with people whom really understand how you feel.Post whenever you need to let things out or need a virtual hug, we are here for you.

My pain seems to be raging at the moment as usual during the cold weather , I sometimes wish I could be like a swallow and just fly to warmer climes for the Winter.

Have you got any help at home ?

[Shartaylor0264 in reply to Blearyeyed]

Yes i have got help my partner he's great at time but i don't think understands the pain i get in .Just been having so many flare ups .

[Yassytina FMA UK Volunteer]

it’s okay too have a dam good moan , I will be 62 yrs in July and I was reflecting on how much life had changed in the last few years , the frustration of it all we differently understand here. Not at work as well and I thought with my husband retiring early life would be fantastic with days out ,trips too look forward too , but having been diagnosed with Fibro then Cfs things gradually changed ☹️in my mind I’m 50 still (I wish) but a body that dosent play ball and literally having too see each day what you are going too manage, or like you say fatigue and not able too get out of bed. Good we can shout from the hill tops and let it out so too speak xx

[saj01]

Hi ... I know the feeling only too well. I'm not the person I used to be since it started. I feel as though I'm just existing, not living anymore. It's changed my life and me completely. Maybe it's a combination of going through lockdown, fibro starting and all the worries with cost of living going through the ceiling. Plus I don't have a family? So take heart you certainly are not alone. x

[Turquoisesummer]

I feel you. So sorry for what you're going through. I've been experiencing the same thing and I'm struggling to cope with the pain and the loss of career, hopes and dreams and just the ability to do things I want to do. I'm 34 and can't imagine living like this for the rest of my life. It's awful. I hope things get better for you somehow. ❤

[Debsdelight72]

Your not moaning, Having a rant can release some pent up Gggrrrrrr,

so release away.I was a full time bus driver (1 of the good lady ones) Id be in the gym 3 days a week ,

Party time every week with friends, Long walks with Hubby and our dogs (the cat used to come too just a part) People would say I had c.o.d, Iwould start at the top of my house,(3 floors) and clean the whole house as well as other chores, Tuesday chores I called it HaHa, I even had a part time job cleaning in the bus garage VOLUNTARY

Now?? I'll save that for another time, I think it helps that we know there are others who know exactly what we are going through

Take care

Debs

[Bossy14]

HI I hope this may help you guys who like myself live in misery constant pain tiredness feel life is so debilitating.i have had fibro for the past 20 years .and after a really bad flare up 4 months ago i was in so much pain bad thoughts seemed to me the only way to end this misery .eventually i researched all my pain points and why was this happening i told my rheumatologist.of my findings that i could have polymyalgia because the symptoms were exactly the same i had blood test that did not indicate this but rheumatologist said it wont always show in blood test . I broke down in tears .after my second appointment he decided to try me on steroids .for a 14 day trial he said if i feel almost brand new after the trial we will know if its working .they are reluctant to give the medication and i will be on it for 2 years if it is successful .well fingers crossed i have been on the medication for 4 days and i can see a improvement already i pray it going to work.I just wanted to let you know in case any one else is in the same place i was .Take care

[Shartaylor0264 in reply to Bossy14]

Hi My doctor has put me on Steroids this week for My Asthma . But i have notice i am sleeping alot less and my heart rate going so fast .

[Bossy14 in reply to Shartaylor0264]

The steroids I am on are predisonal. The ones I were given for my asthma were different one. I have to carry a clinical card with me having being prescribed this particular drug I hope I continue to feel relief for my condition I know the journey will never end but at least if its a bit easier it will be a bonus. Take care

[Bossy14 in reply to Bossy14]

Predisonole is my medication 75mg daily at the moment x