Extreme leg pain.

[Smilesalot]

I d like to get advice from other Fibro sufferers.In. the additional heat my legs are in extra pain.

And are very weak. Walking is difficult anyway and that's just chair to loo n back.

They hurt so much I cry.

Getting upstairs at night is chuffin difficult. But standing n walking round my chair I almost collapse. I can feel today is one of those days.

My carer has to push me half way up the stairs n I sit in the chair to rest . Then the same to the top.

My carer then puts his arms under my armpits and we shuffle to my bed n I throw myself on it.

My carer has a bad back and ankle so I feel terrible.

I've got mobility aids but I'm too weak to use them.

It's not just my legs that hurts.

I don't know what to do. We can't move just yet that's a future thing.

Moving permanently downstairs would mean being alone all the time😢😟. And we can't get help to move out furniture around.

I've forgotten what I wanted to ask meh.

Sorry for how long the moan was

As always hugs n love to all Dawn xxxxx

[misspicky82]

Hey baby cakes,

I've been like this for the last 3 days as you know. It's horrible isn't it. I've come off my crutch now though, I just feel so drained and tired 😫

I wish I could take your pain away, I really do! I'm in so much pain since the doc took my off the duloxetine so it must have been doing something for me. I have to stay like this until early September too. It's time to request my dhc next week but it states on my repeat script papers in bold that review now overdue (19.06.24).

I told him he should have just completed the review in my files but he'd booked x3 of us in at the same time that day so was rushing. I'm going to go up the practice next week and demand that the receptionist takes my request to him and he provides me with a paper copy bcoz it's definitely going to get flashed up. He comes out to greet his patients in the waiting room anyway so I'm going to sit there and grab him myself!

Take it way but definitely speak to your GP babe, it's been going on for too long now xxx

[Smilesalot in reply to misspicky82]

Thanks sweets Angela.So you have been like this for weeks. Oh babe so have I do I understand . So you have weeks to go ?

Yes hijack ur Dr asap.

I thought it was the heat but it's cooler today.

I'm really sorry for saying give the venlafaxine a go.

I'm on 3 60 mg duloxetine naughty. 2 weren't enough

For pain and sleep or depression.

Today nothing helps.

Treat time😃

You look after yourself Mrs hugs Dawn

[Blue-52]

hi Dawn,

Sorry you are having such a hard time of it, I feel your pain, before we moved in to a bungalow, I use to have to go up the stairs on my bottom, same coming down, use to take for ever, if you are in council property, you may be able to get moved, on medical grounds, for a bungalow, that’s what we did, but it was more for my husband, than my disability, so I am thankful, for the move, now that I have become worse, like you, you could also ask your doctor, for a occasional therapist, who will come and access your home, and help with adaptions to help you.

Sending lots of healing hugs. 🤗🤗🤗🤗🤗

[Smilesalot in reply to Blue-52]

I rent privately somewhere v quiet which I desperately need.We want to get a bungalow in Scotland😍

Jon is very worried about me but seems angry too

We don't know anyone to help rearrange the the house. Our neighbours are all elders. And our friends are all over the country 😯.

I feel like I'm giving in if I go downstairs. Plus id never see Jon. His humour keeps me sane lol.

Thank you for your reply 🤗 it means a lot😍

[Blue-52 in reply to Smilesalot]

Grr , I typed a reply, and it disappeared 😡.

Try helping hands charity, they might be able to help you move to Scotland,, if you find the right bungalow, seeing as you are privately renting, it may be easier for you, to find somewhere.

I get where ur Jon is coming from, it’s frustrating for him, he can’t help you in the way he wants to, my hubs gets the same, and he works, so sometimes, trying to push him out of the door, not literally lol, they find it hard to, when they see how much we are struggling.

Have a look at a few charities, see how much help and support you can get, and also help with money issues for the move.

Good luck.

[Cockerspaniels2]

Hi,

Do you suffer with Chronic Fatigue? Only I have had the same problem with my legs and have waited since last September to see a physio, they are now coming to my home to see me as I can’t walk more than 20 steps before collapsing. The lady I spoke to on the phone was really nice and she said that leg pain/weak legs are a symptom of Chronic Fatigue. If you look under Chronic Fatigue on the NHS website you will see that it is. Now I’m no doctor/expert so it may be worth checking with your doctor to rule out anything else.

Hope you get things sorted, but check out some charities as they may be able to help with a move or even if they can rearrange your furniture for you.

Take care, gentle hugs

Sue x

[Smilesalot in reply to Cockerspaniels2]

Thank you Sue,I'm sorry u have chronic fatigue syndrome😢.

I have f

Fibromyalgia. Excuse the winky writing

Just got back from hospital and I'm not feeling brilliant.

Did the severe leg thing come on suddenly ?

Mine did. I will do the reading you suggested as I'm now 😟worried. But thank you for opening up

Hugs Due Dawn 🤗

[Cockerspaniels2 in reply to Smilesalot]

Hi Dawn, yes it did come on suddenly, started as I said last September. I had weak legs, found walking up stairs near impossible. Then I found my legs started shaking if I stood for too long or tried to walk too far to the point when I was out with my dog at 06.30 my legs gave way and I ended up on the floor and couldn’t get up for an hour. My husband bought me a rollator with a seat so at least I could get out and also an electric wheelchair so I could go out further where I didn’t have to stop every few steps.

I have a physio coming in on Monday for the first time since September and a rheumatology appointment 20th this month too!

All I can say is bug the life out of your doctor and ask for a full blood count, also to check your iron and vit d levels, scans everything you can to rule out things and get to the bottom of things.

Let me know how you get on, I’m always available if you need to vent just message me.

Take care Sue x