Can’t believe how much drugs people are taking and the doctors keep prescribing. I would feel like a zombie. Pain is difficult to describe and no amount of drugs are helping so I survive on ibuprofen and paracetamol and amitriptyline at night but only 20mg. Yes I’m still in pain but functioning. I make sure I get a good night sleep do my mindfulness and stop and think what is my body telling me? Take a break love yourself. Try not get stressed and worried this makes it worse. I work full time and it makes me sad when I see younger people getting this awful disease. Keep plodding on everyone.
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Essential247
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Hi, just a little heads up with Ibuprofen, long term use can affect the kidneys. I've ended up with Ckd through NSAID's, also you need to protect your stomach with something like Omeprazole or similar if you're not doing already and drink plenty of water. Take care x
Wow! I have only just decided to do exactly the same thing, I am so fed up from all the side effects, I have also been messed around with my meds( Duloxetine) one GP telling me there was a shortage and to go cold turkey, which was horrendous! Then another GP prescribed sertraline, which did nothing, caused awful sweats, to only then being told by another GP there wasn't a shortage of duloxetine and I could start taking it again.Hope you can continue on your journey, I am going to look into natural self help.
Your experience is not everyone's . Some people are taking one drug and some are taking 5 due to having other conditions. You would not tell a diabetic that they are taking too much insulin.
Also doctors "keep prescribing" as they think their patients presentation requires it. We have the opposite happening with doctors removing medications that work for patients and others not being offered anything. There is no right amount of meds across our community but on an individual level there is what that individual requires to function and sometimes that is X amount of medications that allow them to work alongside other tools like activity and mindfulness for example.
Really appreciate your general message and apologise if I have read the drugs bit wrong but there are definitely people that feel shamed for getting treatments that help by health professionals and others.
Well done you .positive attitude is such a help towards long term illnesses. I stopped my pain killers 6months ago because I been on then years and didn't work anymore.
I gained weight and also felt so tried and many side effects of these drugs . In total I was taking four different painkillers therefore I described to come off them and use other ways to support my pain.
I lost weight without trying and feel 100% alive in my head. Any pain is hard to manged and at times i get overwhelmed trying to control my mindset of dealing with sweating and high pain levels
I now look to relax and deal with the pain and slowly keep going . After years of this illness I am just learning how to deal with the symptoms in other ways. Listen to my body in different ways and it's working so far.
You sound you are doing all the right things to self help yourself which is such a great Achievement. 👍 big hug. X
I chose not to take the drugs offered for fibro because of the side effects. My decision and GP backed me.I live by pacing+rest and it's a very diminished lifestyle and there's not always too much positivity in my case...
This 2024 year I've had so many extra ill health diagnoses and it's been pretty dire making me very sad in slow recovery but recent virus causing sinusitis, herpes, impetigo needed A/Bs...
Wow! What a terrible impact???
It was like every pill made me feel I was causing my own distress; almost like deliberately taking a poison!!!
Aftr 8wks I'm still recovering from prescription drugs...
My own GP rarely offers a prescription because of fibro implications but this time I was seen by different practitioners...
A lesson to consider 4 me???
Taking more and more drugs isn't for me and like you I take paracetamol when needed for chronic headaches mostly...
It's a tricky decision to make, whether more drugs can help fibro folk???
Good luck to everyone here for as stressfree day as possible...
Hi, I only take amitriptyline, 75 mg in the evening. Paracetamol only helps if my head or neck hurt and can’t take ibuprofen due to another condition. I walk most days, do a yoga class and have a reflexology treatment once a month and also work. I’m always in pain but not going to be defined by this condition either. Getting better with pacing myself and that really helps. Gentle hugs to all 🙏
Hello, Well done you for working full time with fibro - mine started when I was 43 and had to give up a brilliant well paid job to work two days a week for my husband as his clerical assistant - fortunately we work well together though I am now retired. I was on amitriptyline for 8 years on 5-10mg for the nights but gave up because of side effects with my increasing heart rate and eye problems. Sorted my diet out, no alcohol and paracetamol nightly - cannot take ibuprofen as I am allergic. Have been seeing an acupuncturist for many years as this really helps. Did not want to take any other drugs as I seem to suffer from most side effects and bad enough living with fibro. I have reasonable and not so reasonable days with a rare brilliant day unless I have a virus/flare then it all goes out of the window. Everyone seems to deal or suffer from this awful condition so differently. Take care
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Fibro 
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is this fibro ?
I dont have Fibro.....
Explaining fibro to others...
