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Fibromyalgia Face Pain Etc

Fibroguy66 profile image
12 Replies

Pain like jaw & toothache & electric ⚡ shocks inside the mouth & head ?Also face & head & eyes pulling & under pressure (no headache though)

Eyes feeling blurry & misty vision.

Feeling constantly tired to.

B.oody fibromyalgia 😡

Any ideas good friends ?

Kindest Regards

Oh & it's not the medication just remembered

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Fibroguy66 profile image
Fibroguy66
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12 Replies
Yassytina profile image
YassytinaFMA UK Volunteer

Sorry too read your struggling , sometimes when I’ve had pain in teeth , cheek bones, etc it’s been a dry Sinus infection,I would differently try get seen by doctor and mention the blurry vision, hope you dont mind me asking have you has an eye test recently xx

Fibroguy66 profile image
Fibroguy66 in reply to Yassytina

Hi & thankyou for writing.Yes I've had a recent eye test & new glasses 🕶️ etc.

Think it's definitely a fibromyalgia flare up issue.

It's strange how this condition just takes over.

Kindest Regards

Pippyclarks profile image
Pippyclarks

I get jaw pain, along with a tightness or altered sensation in my face, as well as blurry misty vision and abshaky feeling in my head! Its annoying! Ive noticed mine is worse at different stages of my cycle. Ive had eye tests and lots of scans and tests too.

Fibroguy66 profile image
Fibroguy66 in reply to Pippyclarks

I've lost count on my scans 😂 it's b.oody horrible & weird & disconcerting to say the least.How do you cope or deal with it ?

Kindest Regards

bookish profile image
bookish

Vit B12 deficiency or Vit B cycle metabolism issue?

Pippyclarks profile image
Pippyclarks

I just keep going as best I can, Im eating clean, Im not currently taking any meds other than paracetamol and ibuprofen when I need as I feel like the more meds the more side effects and more meda to counteract them. Its hard! I have 2 little ones and a strenuous Jobs, but I just keep pushing forward as best I can. Somedays are better than others. I get anxious and scared but it doesn’t serve me so I just keep trying. Thats all I can do right now x

Smilesalot profile image
Smilesalot

Go to bed and try to sleep or at least relax. I've only just got up and it 3 pm. I feel terrible too so I understand.

I keep getting those symptoms in the night. Gosh does it hurt.

I really hope it goes away for you 🙁 sweetie !

I don't know what meds you take maybe you have something to help.

If not speak to your GP. Hopefully they'll help ???🤗

🤗🤗🤗🤗🤗🤗🤗🤗😍🤗🤗🤗🤗🤗

honeybug profile image
honeybug

Hi Fibro 1966 😊🌿🌸🦋

It sounds like trigeminal neuralgia. I have this and a light breeze or a stand of hair or a light brush against something will set it off.

It also is triggered when I brush my teeth and tongue.

Stress and my Ehlers Danlos will flare and cause it.

Recently had to stop my dentist working in my mouth due to a flare of it.

I hate when it happens. I don’t take anything for it I just apply pressure until it stops.

I’m diabetic. Also it could be due to your transmandibular joint dysfunction / TMJ. Maybe that contributes too.

Hope this helps at least a little.

Love and prayers.

EJ 🤗♥️🥰🙏🕊🌿🌸🦋

Midori profile image
Midori in reply to honeybug

I agree, it does sound like Trigeminal Neuralgia.

Cheers, Midori

Elaine200756 profile image
Elaine200756

Hi Fibro, sorry to hear about your flare. Can I ask you, do you grind your teeth? I do. I went to my GP recently for pain in my jaw and she told me to see my dentist. I have a mouth guard to protect my teeth and she said it may need replacing, or it may be TMJ. Just a thought. I have rhinosinusitis, which causes a lot of pain in my face and head, so could be something to also be explored. You know if you are having a flare or not but not all your symptoms are necessarily due to your flare.

Hope you get to the bottom of your symptoms, especially the blurred vision xx 😘

Debsdelight72 profile image
Debsdelight72

Oh my gosh,Fibro1966

what I cant tell you about teeth!! It,s been a long,hard and painful (on top of Fibro) couple of years I'm still waiting for surgery,I was screaming out at the Dentist, No matter how much pin jab she gave, nothing, This is where the hospital got involved,

I will be totally under so I won't feel any pain, I'm trying not to think about after the meds wear off🦷🦷🦷🦷😶‍🌫️😶‍🌫️😭😭😭😭

Dreamgreen profile image
Dreamgreen

Hello Fibro1966,sorry to hear you're in so much pain.

I would get it checked by your doctor.

I have pain in my jaw with electric shocks going off in my mouth & face.

Thought it was part of the fybro, my doctor sent me to a specialist & it was diagnosed as trigeminal neuralgia.

I'm on medication for it now, which really helps.

I also find a hot water bottle helps, if I'm out I take a scarf with me as the wind can set it off.

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