Hi, Long Time Lurker

[saxcat]

Hi,

I'm saxcat, I'm 58.

I have Fibromyalgia, diagnosed around 8 years ago, but have had symptoms since in my 20's.

Long term mental health - Depression, Anxiety, Panic attacks, Health Anxiety.

Then Bpd diagnosed around 10 years ago.

Currently have 2 more diagnosis result I am waiting on.

I joined about 4 years ago I think, but have only been lurking.

There has been so many posts I have wanted to comment on but I have been too anxious to post anything after my bad experience in fibro Facebook groups.

I was scared I would annoy people and they didn't like me, which happened on Facebook.

So sorry if I do.

Facebook groups have not been good for my mental health.

But I am severely lonely so thought I would take a chance and see how I get on here.

[Welshcatlady]

Good morning, saxcat (love the name) welcome to the group. I think you'll find us a friendly lot, and many will be able to answer any questions you have about Fibro. Sorry to hear about all your ailments. I'll send you a gentle hug to be going on with this Saturday morning. x🙂

[saxcat in reply to Welshcatlady]

Hi Welshcatlady Thank you 😊. Sorry for late reply. Still feeling a bit shy atm. But looking forward to getting to know everyone. x

[Welshcatlady in reply to saxcat]

No worries, and please don't be shy, we're a lovely lot on here. 😍

[Dinkie]

Hi and welcome

Please don't feel anxious about posting, replying or asking any questions. We are a very supportive group and as you will know, discuss everything from fibro to knitting to gardening and all sorts.

We are overseen by a tremendously great team of mods should anything get heated or off topic which it seldom does and is usually due to a misunderstanding it is dealt with calmly and efficiently by the team. You won't find the problems here that you experienced on Facebook, at least I never have and I am an "oldie" on the site.

Feeling lonely is horrid and isolating and hopefully you will soon settle in with us here.

[saxcat in reply to Dinkie]

Hi Dinkie Thank you 😊. The amount of posts I've read over the 4 years of lurking I was dying to comment on, hopefully now I have made the move it will get easier. Still feeling shy atm. x

[Dinkie in reply to saxcat]

Good for you taking the leap of faith. Well done

[Smilesalot]

Hi sweetie 🙂🤗🤗🤗,I'm sorry for what Facebook did. It did it to me years ago and I no longer have an account.

You need hugs 🤗🤗🤗🙃😌😌😍

I don't feel you need to be anxious on here. Everyone has been so supportive on here so try not to be shy. I'm not anymore lol.

Good luck sweetie hugs 🤗🤗Dawn 😍🤗

[saxcat in reply to Smilesalot]

Thank you Smilesalot 😊. They got sick of me moaning even though it was supposodly a safe place we could moan lol, I don't join in on that groups now. x

[Gigiruth]

Hi SaxcatSo pleased you have posted,

It can be hard to speak up when you have had a bad experience online.

A lovely reminder that more people than reply might find a post useful.

We welcome all gentle lurkers here.

Take care

Gigi

[saxcat in reply to Gigiruth]

Thank you Gigiruth 😊. Hopefully I will post more often once I feel less shy. x

[Seascapes31]

👐

[saxcat in reply to Seascapes31]

Thank you Seascapes31 x

[Seascapes31 in reply to saxcat]

Welcome x

[Uellow22]

Good morning Saxcat,Welcome to this wonderful community.

It's great you are trying again to join a new group. This forum is wonderful with very sharp moderators.

We would love to hear from you and support you in anyway we can........we will look after you 😘.

Yellow 💛

[saxcat in reply to Uellow22]

Thank you Uellow22 😊. Looking forward joining in and to offering any support I can too. x

[Uellow22 in reply to saxcat]

Thank 😊 YOU xxxx

[Crazyangel40]

Good morning Saxcat, I am a relative newcomer as only diagnosed about 6 month ago but this group has been nothing but supportive and friendly. Please keep in touch with the group and let us all know how you are x

[saxcat in reply to Crazyangel40]

Thank you Crazyangel40 😊. Hopefully it wont take me long to get over my shyness and I will post more. Was in bed all day yesterday crying in pain with my spine but I'm feeling better today. x

[Smilesalot in reply to saxcat]

Oh no Sweetie !🤗I feel for you🙁

I sometimes feel calm being alone other times in desperate need of company.

So glad ur feeling better today

Hugs safest sweetie 🙂🤗🤗🤗😉🤗🤗🤗🤗

Dawn 🤗🤗🤗🙃😌

[Smoothie2go]

hi Saxcat and welcome, I recently joined the forum and people are really nice. We all have illnesses in varying degrees. We are empathetic and understanding in our views and comments. At least to say that has been my experience. No need to lurk my lovely. People are kind and always ready to help and advise. Hugs xxxxx

[saxcat in reply to Smoothie2go]

Thank you Smoothie2go 😊 Now I have started commenting hopefully I won't lurk anymore. x

[Applespearspeaches]

awww that’s so sad you feel like that , no one has the right to make you feel sad when you just want to share your world with others 😢 you won’t get any of that on here !! Everyone is so supportive and can offer advice to help you along the way , take care & keep smiling 😊

[saxcat in reply to Applespearspeaches]

Thank you  Applespearspeaches 😊. Yeah, For a fibro group that was supposodly a safe place for us to moan, I was quite taken aback by what a few people said about moaning about it, and just to get on with it. and was saying positive vibes only, which I do try to do,x

[E3178]

Hi, this site keeps going so I think you will be fine on here.Apart from one thing, your post covers all my problems.

I find distraction is the biggest help.

I make myself go out and mix with people and feel relief from my awful anxiety for a time.

If I stay alone i feel much worse.

It's difficult to force myself to do anything when I feel physically ill from the anxiety but manage to hide it from others as I feel ashamed of it.

Just be assured you are not alone and let's try and be positive together with all our fellow members. x

[saxcat in reply to E3178]

Thank you E3178 😊.

I do try and distract myself, I read a lot of books, watch netflix etc, play games on my mobile, probably do more stuff but can't remember atm lol, fibro fog.

Unfortunately my mobility is quite bad with fibro so don't get out much at all, even with my Motability car, I have nowhere to go even if I could get out more. nobody to visit, or anyone to visit me. Although I'm quite lonely I find socialising hard too. But I am trying to push myself to see if there is anything to go to in my tiny village. x

[E3178 in reply to saxcat]

Hi saxcat, I do understand how difficult it must be for you. I too am always busy at home with sewing, reading, games, crosswords books etc: but my brain demons never leave. I find the only thing that calms it down is conversation with other people because it takes my mind off myself. Phone calls also help.I do wish you well with it x

[Dolly6789]

Saxcat what a lovely name just like say welcome to this page it's amazing everyone on here is brilliant I was like you just sat watching till recently I put my first post they were so helpful n friendly don't be afraid to comment on here facebook is full of keyboard warriors ignore them you enjoy your weekend n welcome this page is amazing big hugs hun x

[saxcat in reply to Dolly6789]

Thank you Dolly6789 😊 The first step is always the hardest, Ive done that now so should hopefully get easier from now on.

I don't participate in that groups now. Found them very cliquee (is that spelt right lol) x

[dinkic]

Think you will find this group kind, caring and helpful if they can be. Sorry to hear about your multi ailments, I like alot of others here have similar problems. Try not to get too depressed, I find crafting helps me also read alot and like to swim when possible. Big hugs try not to let the weather get you down, its horrible in Lincs but at least the flowers are out and the bird although wet are feeding and nest making. Summer will I hope come soon.

[saxcat in reply to dinkic]

Thank you dinkic 😊 I did notice that while lurking I just don't know why it has took me all these years to start commenting/posting.

I read books, mindful colouring in when my hands let me. I do some other things when hands let me too. I can't swim, lol, I did go for lessons about 8-9 years ago but had trouble with legs going cramp in the water.

Omg the weather has been crazy here in Scotland, Mental rain & hail steens 😂 x

[Cotswolds25121 in reply to saxcat]

Hi 👋 it’s good to see you laugh 😹 and welcome 🤗

[Ellenindigo]

Hey there. I have only seen people be kind here - Facebook and Twitter seem to attract professional misery guts but here it’s a warm, cheerful place.

Give us a go, we are a nice crowd and you sound like you’ll fit in great.

Take care

🤗

[saxcat in reply to Ellenindigo]

Thank you Ellenindigo 😊. Never been on Twitter, only Facebook groups, The one I had most issues with was in my own hometown but I'm over them now. Here does seem friendlier. x

[Elaine200756]

Aww, you are very welcome saxcat. You can express yourself safely on here. No one judges or criticises you and I'm pretty sure you will be supported and respected. Let us know how you are xx

[saxcat in reply to Elaine200756]

Thank you Elaine200756 😊. That is good to hear. Hoping I can be supportive too, there's been so many posts I wanted comment on with answers & support too.

I'm doing ok today was in bed all day with my spine.

Got a MRI in 2 weeks for spine & head so looking forward to that in a way, if you know what I mean. Had been on waiting list for neurology for year n a half . x

[Elaine200756 in reply to saxcat]

You're very welcome saxcat 😊 I'm sure you have a lot to give. So sorry to hear that you are suffering so much with your spine and glad that you are having an MRI of your spine and head.I completely understand why you're looking forward to having your MRI after being on the neurology waiting list for such a long time. That's a long time to have to suffer.

I recently had the same MRI. It turns out I have a slipped disc and arthritis of the spine. I hope you will get some answers re your back pain. Please let us know how you get on. I hope you feel able to comment on the posts here and share your experience of what helps you.

Take care, I will say some prayers for you xx 🤗 🙏

[Debsdelight72]

Ohhh Bless you Saxcat,

They'll be none of that trashy trash talk on here, Well done from coming off those 💩💩 sites,

You won't get that on here, I think it's a lovely group where we all know which bit of every thing hurts, There are people on here who will jut pop in and out and don't hear from for ages, But have some handy info or something that you can relate to or find useful,

It's here for everybody and anybody' If you need a rant, Respectfully of course, If your suffering from your mental health because of this selfish 💩💩💩💩💩💩💩💩💩 illness that some have conquered, others find it hard to get through the day,

We are warriors and fight on for what is truly our given right, To be here🙂

Watch out though,,

There are people on here that come on every day and write long posts when they could of said the same chuffing thing in a couple of lines, They will be on here because this is their only way they can communicate because mental health has rendered them to a naughty step because they can't go outside without anyone with them and only do so to attend appointments,🥱🥱 Sorry to burden you with all of this babble.🙄

Welcome to the group.🫂

Oh 1 more thing, that person who comes on with all the babble is ..........................ME 😆😆😆😆

Take care of you before anyone or thing else

Debs x

[KimiJay]

All lovely people here. They really do care. It's heart warming!