lupus or fibromyalgia?: hi can anyone... - Fibromyalgia Acti...

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lupus or fibromyalgia?

Geeforce99 profile image
10 Replies

hi can anyone advise please

a few times a day or at night I get random crushing pains across chest or like a vice across arms crushing them into shoulders then right hand fingers then it’s like my sight brightness level is turned up for 10-15mins and at same time hearing is more sensitive.

once this passes have to goto bed and rest as feel wiped out.

have you had this experience and what can help?

Thank you 🙏

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Geeforce99 profile image
Geeforce99
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10 Replies
Dizzytwo profile image
Dizzytwo

Hi there, may I ask do you suffer from anxiety or panic attacks? My panic attacks make me feel like you describe. And it definitely makes me feel wiped out after.

I would say its not a fibro symptom. Just because the chest pain is so short in duration. If it was costochondritis for example it would last more than 15 mins.

Momo

Geeforce99 profile image
Geeforce99 in reply toDizzytwo

Thank you for replies my rheumatologist advised is fatigue/anxiety caused by fibromyalgia.

Dizzytwo profile image
Dizzytwo in reply toGeeforce99

Hi there, yes I can understand that. Have you tried CBT for the anxiety. For me it was very helpful.

Geeforce99 profile image
Geeforce99 in reply toDizzytwo

Thank you for reply and advice. I tried it before and it was more difficult to wake up took the whole morning lol could try it again in the hope of a different result.

🙏

Dizzytwo profile image
Dizzytwo in reply toGeeforce99

I have tried it a few times. But I will say it all depends on the person you see. Some seem to have better understanding than others.

I always stress I would prefer to speak with someone in their late 30s early 40s or older for example. I also stress I prefer to see a man. I was always offered an appointment time to suit my needs. Like you I just don't do mornings. Maybe something to think about.

desquinn profile image
desquinnPartnerVolunteerFMAUK Trustee in reply toGeeforce99

We would spend more time choosing a favourite restaraunt than a CBT therapist. This is partly down to NHS options but the point I am trying to get to is that a "bad" restaurant does not stop us eating out and it takes a number of visits to find a good or favourite one. So see if you can find a "favourite" CBT therapist :)

Geeforce99 profile image
Geeforce99 in reply toDizzytwo

hi it’s worsened and hands stiffen and hurt so have it arranged by GP thank you

Debsdelight72 profile image
Debsdelight72

🚑🚑🚑🚑🚑🚑🚑🚑🚑🚑

Phgc profile image
Phgc

honestly you have described it so well i go through exactly the same as you

I-love-libraries26 profile image
I-love-libraries26

I recently had a vice like feeling in my throat and shoulders when out for a stroll. I find I cannot breathe properly and can only stand still and gasp for air for about 5 mins. It's a new sympton after 30 years of fibro, one of my worst. I now cannot even have a short stroll, so less exercise than normal.

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