Fibromyalgia or Polymyalgia - Fibromyalgia Acti...

Fibromyalgia Action UK

59,873 members67,001 posts

Fibromyalgia or Polymyalgia

Elizabeth-D profile image
6 Replies

I have yet to find a Polymyagia Society, which is why I tag on to Fibromyalgia, but I do have tinnitus, again you have to belong to Deaf Society for that, because there is no TInnitus Society!!!!

Written by
Elizabeth-D profile image
Elizabeth-D
To view profiles and participate in discussions please or .
Read more about...
6 Replies
Greenpeace profile image
Greenpeace

Good morning Elizabeth.

 Sorry to hear that you have Polymayalgia Rhuematica, and I hope that you will get it under control quickly.  There is a dedicated support group on Health Unlocked for PMR, but I've still got on my foggy head, and I cant quite remember how to access other forums.

Please don't feel bad about coming on to our forum as we're happy to help in whatever way we can.  The advantage of being on a Dedicated Condition Site is that you will get help and advice from people who have that condition.

I hope that you will begin to feel a lot better soon, and the good news is......I believe if you have PMR and get the right treatment (usually Prednisilone) it can be brought to a manageable level.

Take care.

GP. 😊

Greenpeace profile image
Greenpeace in reply to Greenpeace

Hi again,

Brain Fog has cleared.  If you go to the top of the page where your posts are displayed, you will see a choice of My communities and a small arrow.  Click on the arrow and then click on "other communities " and that should take you to all the other forums for different conditions.

😊

ryanbone10 profile image
ryanbone10 in reply to Greenpeace

Hi Elizabeth,

If you click on MY COMMUNITIES at the top of your Health Unlocked page. It will show you:

+ Browse Communities

Click on this, and all the Community forums will appear.

Click on those you'd like to be apart off xx

Lou1062 profile image
Lou1062

There is a community on Health Unlocked for your condition, you are also very welcome here of course, many of us have other health problems too xxx

Newquay profile image
Newquay

Hiya Elizibeth.

Glad you asked about that because I have both Fibro and ploymyagia.

From what I have found out so far which is not a lot they are both very similar but I find that the polymyalgia more debilitating for me,the reason being I used to love creating things Knitting etc and swimming but because polymyalgia seems to effect my shoulder,neck,arms much more I am restrict to very little at a time.

I am still waiting to go hospital to see the specialist as the Steriods they put me on put me in hospital for 3 days.

I think you will find this forum very helpful in all aspects of any myalgia.

Take care 

Glynis

TheAuthor profile image
TheAuthor

Hi again Elizabeth-D

I have pasted you a link below to the Polymyalgia forum.

healthunlocked.com/pmrgcauk

All my hopes and dreams for you

Ken

Not what you're looking for?

You may also like...

Is it Fibromyalgia or Polymyalgia

Hello my name is Linda I am 61 and for years I have been having a great deal of pain in my joints...

Polymyalgia v's Fibromyalgia

The differences between Polymyalgia Rheumatica (PMR) and Fibromyalgia (FM or FMS) Polymyalgia...

Fibromyalgia Awareness Day

I found out today that it is Fibromyalgia Awareness Day on 11th May.... It may well have been put...

UC50 form for Fibromyalgia and chronic insomnia

Hello, is there anyone who can help me fill in UC50 form who specializes in Fibromyalgia? My brain...

Fibromyalgia is for me

Fibromyalgia for me is horrible stiffness and pain to my feet, legs , arms and fingers . Also...