I can empathise, I have suffered with agoraphobia all my life. I hate having to go to the hospital or any where there's going to be more people than just me and my hubby lol
It's been a difficult morning. I just want to go to bed but I'm waiting for a potential new carer to contact Jon. She let us down yesterday. And I'm disappointed 😞.
Anyway the nurses were great but I struggled up the step with little to hold on to. For positioning.
Had shaking body throughout.
I'm home now that's what matters. Everywhere hurts🙄😫. Anyway I'm moaning I you lol.
Hugs sweetie Dawn 🤗🤗🤗🤗🤗
I hope you're ok and your hubby.
My GP gave me a bottle of morphine even though she told me she stopped it????????? Little confused here. Again hugs 🤗
We're all out there Sweetie, Mad as a box of frogs, Nobody get offended,
NO FROGS WERE HURT AND WERE PAID MINIMAL WAGE!! I never realised there were so many of us suffered from the outside, I have not been out for any social occasion for over 10yrs now,Like Dizzytwo but My GP prescribes 7 diazapam a month so I have to plan very carefully, Needless to say I have a nice little stash now, I take 2 before I can even think about getting in the van, Then another to get out of it
I think If I don't want to go outside that's my call, Everything is on line anyway, Including face to face, I have to cross the road if someone is coming towards me to attend Docs, Dentist and so on
I'm aiming to be able to sit in my garden this year and spend more time downstairs, But I don't agree if someone just says, come outside, It's good for you???
That's where all the crapness is!
Did the other carer turn up? I'd be a bit worried she wouldn't turn up when you need her,
I hope the rest of the day gets better for you Dawn, Things should be so much better for all of us and yet we push on in because we are strong enough to cope with Fibro and our Fibro family keep on pushing and helping each other cope just that knowing we are not on our own,
Aww sweetie thank you🤗🤗🤗I hate it when people say you must be bored never going out.
I'm not. If Jon thinks I'm bored he makes me laugh.
No my other carer never showed or rang . I'm v disappointed 😞.
But !!! Janice my podiatrist is contacting her mother's ex carer to ask if she would consider me😊. Fingers crossed🤗🤗🤗🙏
I have lorazepam every day but an extra for Drs hospital and dentists. I have a good view from the back of my house. A fishing lake and all the wildlife. I'm v lucky. I pay the extra rent out of my own money and Jon pays his half.
It's getting spooky now!!! MY John is from Scotland, Glasgow We holiday'ed In Gairloch every year and had our wedding vows redone in Dingwall I wanted to stay forever, I really miss it as we havn't been away for a good few years now,
We lived in Basingstoke at the time and I was so pleased I'd driven all the way😂, So much beauty,
We stopped near a loch on our way up and washed our faces and took a small drink,It was sooooo cold🥶, I was glad I'd packed our winter clothes,
Until we had a mini heatwave in May and fell asleep outside then de-ticked each other😥 (that was an experience that I don't ever want to have again)
I'd get so excited the closer we got,We'd count the birds of prey and stopped to watch the osprey sat on her nest, We didn't think we'd be half eaten by the infamous Scottish midge, I still say they were there to welcome us,
The only thing I really wasn't pleased with were the RAF flying over and the submarines 😟 With sea looking 1 way and mountains looking the other I'd be right at home in Largs,
I'm from Glasgow. Born there.left when 2 or 3.Jon and his mate Rich rent remote cottages to have 2 weeks holiday. They used to hike up the mountain's. They cycle now instead but mainly have great food and lots of booze😂😂😂😅😋.
Oh and listen to loud music 🎶.
I'll be able to sleep I hope.
Rich tends to get chewed up by cleggs and midges. Jon was gotten badly here in Oxford Standlake.
John was born in Provan mill, We've both lived in Oxford for many years, We both rented a room each in a shared house 20yrs ago and never looked back, Of course we were both in our prime back then We have 6 kids, 2 John's live in London and the other spends 5 mths working in Miami,Cuba and Jamaica,
Sounds like he is some high flying gangster drug dealer lol😆 The company he works for sell high end tyres and they are offering him to be a Director, Such a hard worker and deserves every thing and more, They are our pride and joy,
The other 4 are still living in oxford with all their very large family, Unfortunately they all got together and decided they could manage just fine with out me, It's been 12yrs😒
Blooming heck.... sorry It has been said I write a lot??What??? Me????? Lol,
I hope you have a relaxing evening and gentle hugs 🤗🤗🤗🤗🤗🤗🤗
When they decided they wanted to live with their father I think it was for money rather than Mama's love 😭, There were so much lies and total devastation, I tried again to see if they wanted to try again, their in their 20s and 30s but I got the brush off again, It 💔again, They are no longer the children I ❤️d so much or taught them to be thoughtful, respectful,thankful and polite and kind to animals and people,
Sorry not about them,
4am ???? well done you, Why?? haha,
I hope this 1 goes better and you click let us know how you get on 🤗🤗🤗
Haha we're responding on different lines, I am having difficult and extreme pain at the mo.
taken all the meds and heat rub, Nothings working yet every time I look down as well I feel it pulling on my spine, I've slipped down the bed now but don't want to call out for John to help me, He's asleep now so I'll let him rest Bless him I've found a position where if I don't breathe,I'm okay 🤗🤗 Hope the interview goes well 😊 Let us know x
what will happen if she can't get there because of her Fibro??
Is she giving your Jon a break?? Or do you need 2 carers?
It's my Hubby who takes care of me but he does such a wonderful job for me, I really don't know what I would do if he wasn't here for me, I feel guilty at the situation because John isn't exactly got a full bill of health himself also we forget that John is in his late 60's,, So I feel I should care for him,
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I keep fainting when I go out
going out again
Off we go for a fun day out
Is it worth going out?
Yeahhhh, i am going out whoopieeee. lol
