Does anybody suffer with strange smells with there fibro? I wouldn't mind if they were nice smells. I've gone from chip fat ( which is horrible 😫)
Burning, fried foods, tar ,the recent one being an antiseptic smell. The strange thing is though i have no sense of smell. Which I've not had for years now. So just wondered if anyone else suffered this.
Good morning Debbs73 , I have a stronger sense of smell which I have put down to Fibro, I cannot bear being in the same room as my husband when he uses aftershave or body sprays, cooking smells are awful, as are many other smells, (which for the life of me I cannot remember at the moment - fibro fog!). I also smell phantom aromas as you describe, I just guess it's another for the long list of Fibro symptoms!
Thanks for your reply Welchcatlady. My husband and i both have had have covid. He lost his sense of smell but his as returned thankfully. Mine the same as always zilch, nothing.Its nice to know I'm not the only one with these phantom smells , they are doing my head in. Like u said , Think it's just another fibro symptom. 🤔
I am the same, not that I am in the same room as your husband, oops our secret is out. But anyone who has strong perfume, after shave on or deodorant I avoid, then you have the people who actually need a good wash yuk! It's awful when a rotten fat sweat shop walks by me. I was once driven of the house out for a day after a helpful district nurse used a well know air freshener in the apartment. She had been using surgical spirit and did not like the smell, I didn't mind it, but I did mind having a in a whole field of extremely unnaturally scented summer flowers in my tiny living room.
Hi Debs , totally different I know but when I had Covid all I could smell was burning smoke ,when it has gone the smell disappeared very strange. Xx
Yes I have this sometimes and try to track down where the smell is coming from but can not as not really there in the air or is it ? I also have like a hyper sensitivity to smells where they don't bother 'normal' people but trouble me terribly
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I have chronic migraines which makes me sensitive to smells anyway. I swim most days and i cant bare the smell of peoples perfume/ cologne in the water drifting down stream. I swear one particular lady fills the whole pool with her perfume!
I don't get phantom smells like you though but I do get phantom noises. Sometimes I feel like I'm a computer and that has just had a cat walk over the keyboard setting of all these unecessary systems....
Oh wow I've not heard about that, so what other phantom noises have or do you still suffer.
I'm really sound sensitive so I've slept with great big wax earplugs for over 30 years now, I have really bad insomnia. But sometimes I find even when they're in and everything is really quiet I start hearing things, so I'll take them out and hear nothing. Sometimes I've had to leave them out just to reassure myself there is nothing there. Aparently when they are assosiated with sleep they are called hypnagogic hallucinations..
I'm also sensitive to smell, and aerosol sprays especially drive me crazy 🤮
I often get the phantom smells- my latest being nicotine but non of us smoke.
i also have the phantom smells thing, i often smell a cigarette burning when nobody in the area is smoking or can smell petrol or burning rubber smells when nobody else can, strange . Sensitive to smell of strong perfume,bleach,vinegar too. Im glad im not alone, i dont say anything like " can you smell ..... ?" anymore , as im usually the only one that can and i get strange looks for saying it 😄
I'm so glad i asked this question, i can't believe how many people actually suffer from these smells. I sometimes feel like I'm the only one who suffers from this , which I'm sure you all do . Yeah that's one I've also suffered and as an ex smoker for over 20 years and nobody smokes in the house.
so glad i asked this question, i can't believe how many people actually suffer from these smells. I sometimes feel like I'm the only one who suffers from this , which I'm sure you all do . Yeah that's one I've also suffered and as an ex smoker for over 20 years and nobody smokes in the house.
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A lot of smells make me feel sick, which nobody else smells, windows are open in my house, artificial smells are the worst, especially the air fresheners when I go in someone’s else’s house.
The smells have thankfully never made me feel sick. I can never smell anyway which is weird why i can smell these phantom smells.
I presume if you've only lost your smell relatively recently, through covid, then your brain architecture is still set up to receive smells. Now it suddenly finds itself with no stimulus it will still be fiering off some signals giving you phantom smells a bit like phantom limb syndrome?...maybe?
I never lost it through covid i had it years before that at least 5yrs probably more my memory's not good damn fibro fog so it could be longer.
I don't like strong smells, especially those ladies and gents that wish to practice chemical warfare. I have fits sometimes and they are always preceded by a strange smell. The doctor said the smell was actually the sensory nerves in my nose misfiring as I descended into hell. You say you have no sense of smell but perhaps what is left of the nerves in your nose are picking up on something and interpreting is as a remembered smell.
Oh cricky they have actually made you have fit's that'snot good. How often has that happened? That could be quiet dangerous i guess. So do u have to take medication , and you keeping away from the smells that cause the fit's to happen. That's a thing to think about what you say about the nerves in my nose. The bad thing about having no sense of smell , is on 2 occasions my son and husband have come in and smelled gas, I'd been cooking and the gas had gone out when I'd opened and closed the cooker door.
The smell is like a warning it does not cause the fit, (there is a name for it but that eludes me at the minute. memory has been cancelled due to heavy fog). It means, get your behind in a chair, so it is a good thing. I am down to about one a year now, I used to overheat like crazy and that is when the off button got pushed. At its worst it was about one a week.
I also can smell cigarette smoke when there is no one else about, I have even looked out of my bedroom window to catch the perpratator but of course there is nobody in sight.
Sometimes I also smell burning paper or bonfire.
I have found however that if I smell it strongly it usually preceeds a headache, so a warning to get the painkillers out!
My husband cannot bear the artificial smells of the air fresheners in cars or plug ins. He says it makes him tight chested although he does not have asthma.
Neither of us have had covid, we are fully vaccinated, neither smoked and we have both had these smell problems for many years.
My husband is the same as yours can't stand the Smells. Lillies are the same, for my son also. My husband has asthma, my son doesn't. Me , my husband and son have all been fully vaccinated.. husband and i have both had covid twice son only once.
just been a strange strong smell, nose assaulting, noticed it first so went to investigate,
it was cat poo ooooo 😭 enough to make eyes water, it was sorted swiftly.
my other issue is wet cat food it stinks no matter the brand,
a dog eating tuna dog food causes doggy wind🤢 silent but deadly, can empty a room in seconds
the headache causing smells is fire lighters and a relatives pig liver cooking in frying pan yuck,
pot purri, strong candles, tomato plants when jiggled, always gives me twitchy nose.
can smell wet soot, rain on route, and generally taste the dry sweetness of garden grass.
my fibro senses have helped stop a caravan couple blowing up as smelt the leaking gas and alerted the site, so sometimes it can help.
hope get sense of smell back soon
Oh u made me laugh at the dog smells. Before i lost my sense of smell, can't remember when that was our staffy would always let of some lovely smells( not), in fact they were pretty foul, we lost him in 2016. My son has his own staffy now and he's the same leaves lovely smells.. thankfully with having no sense of smell now im glad i can't smell it.
I also suffer from a sensitivity to smells. Definitely a fybro thing.
Yeah I'm beginning to think that.
Increased sense of smell
Sense of smell change 
Sense of smell 
Certain smells 
Phantom Smells
