trial

[Astonvilla68]

I’m going on a new Fibromyalgia drug trial in July , I will report back. New research suggests it may be an antibody problem. The new trial is to do with the antibodies so a completely different way of doing things as before. 🤞🤞🤞

[Dizzytwo Moderator]

Good luck, I am sure we all will look forward to your updates. How long is the trial for?

Momo

[Astonvilla68 in reply to Dizzytwo]

thank you 37 weeks

[Purplelife123 in reply to Astonvilla68]

wow that’s a long time but I suppose nothing happens quickly and fingers crossed. How wonderful if they have found something. Good luck. I’m sure everyone here is waiting in anticipation.

[Yassytina FMA UK Volunteer]

Good luck 😀

[SlothMode]

Hiya Astonvilla,

I hope u return with good results. Hold On Pain Ends. Gentle hugs 😊🤗

[Welshcatlady]

Good luck hope it all goes well for you.

[Bakery40]

Good luck and Thank you for volunteering. Help us kick fybro in the bum !🙂Do let us know how it's going/end result.

Take care.

[Uellow22]

Wow 😍 excellent 👍 news!

Good luck 💪 and well done for taking part.

Looking forward to hearing about the journey.

Yellow 💛

[Needsoda]

sounds interesting good luck with it and can anyone do this with fibro x

[Astonvilla68 in reply to Needsoda]

there is a certain criteria if you contact Mac research and hopefully they can help you

[Iamthemedicalmystery]

Good luck 👍 💓

[Cotswolds25121]

thank you is not enough for you and others that do this for the benefit of others❤️it’s because of people such as you that headway can be made so a huge heartfelt thank you🤗and I look forward to hearing the results and how you got on. It’s no mean feat to do this when you are unwell from any chronic condition and I take my hat off to you, thank you xx

[Cat00]

Are you allowed to tell us anything about it, like what the drug is called?

[Astonvilla68 in reply to Cat00]

rozanolixizumab.

[Cat00 in reply to Astonvilla68]

I've been on Fremanezumab and Galcanezumab for migraines which sadly didn't work on my migraines and I know there were people hoping it would be good for fibromyalgia too but it didn't help that either so let's hope this one is sufficiently different good luck!!

[Astonvilla68 in reply to Cat00]

I had headaches every day , now I don’t get any. I first tried Migra-Eeze I went from headaches every day to only two/three times a week . My neurologist then recommended me for Botox injections. I now have no headaches and I’m still on the Margaret ease too, which is 100% natural. I do hope some of this information helps you because I know it’s horrible having headaches all the time.

Game changer

[Cat00 in reply to Astonvilla68]

Yes I've tried feverfew a long time ago but it didn't work sadly and I'm back on Botox now too, still have migraine over 50% time though but it's worse without treatment.

[Astonvilla68 in reply to Cat00]

sorry to hear they didn’t work

[Marj16]

Hello.That sounds fantastic. Can you tell me where you found this trial and how I might join, please?

Thank you.

[Astonvilla68 in reply to Marj16]

MAC research

[Loobielu]

Wonderful!! Well done for taking part ⭐⭐. Here's to finally understanding this life changing condition. I for one am fed up with not being taken seriously, fobbed off with nasty medication and all its side effects and being made to feel that I've some how brought this on myself and that I'm being dramatic 😡

[1whitestar]

I will look forward to finding out how you get on.

[Greyt]

Great that you are giving it a go . Look forward to following how you are going with it.

[Poppy1647]

Amazing! Looking forward yo the results. Take care of yourself

[Ace2011]

Good luck, Hope it all goes well.

[Lisajane747]

Good luck and hopefully it will work and not too many side effects.

[KimiJay]

Brave soul! Thank you. Long live and Prosper!

[Lillylilac]

Wow good luck and I so hope it works for you. Brave lady. 🫂

[Astonvilla68 in reply to Lillylilac]

I’m a brave man 😉😊

[Lillylilac in reply to Astonvilla68]

Oh dear so very sorry. Should have guessed with your title. Please forgive me. You are one brave man. X

[Astonvilla68 in reply to Lillylilac]

don’t be silly no harm done , it made me chuckle 🤭 x

[saj01]

Hi..

That's interesting news. Funnily enough I read an article way back on some research one of the university hospitals was doing on fibro, as they though it might be to do with auto immune problems. Suffice to say, have just read an update on the same research and yes it is to do with our auto immune responses, hence the trial. That makes sense to me as most of my 'ailments' are autoimmune problems. ... spooky that. Let's keep our fingers crossed and hope that you get on okay with the meds... no doubt we'll be hearing from you in due.

Good luck.x

[CheetieCat]

Really hope it all goes well for you! 😊

[Mazymoo]

Make sure you tell us how you get on hun. Do you know what the drug is called? I have tried to find in formation about our condition, but all I keep getting and being told, that there's no cure, you have to find a way of living with it or they don't even know what causes it. 😥 Im glad there's finally something out there now. Xx

[Astonvilla68 in reply to Mazymoo]

rozanolixizumab, thank you x