Headache : Hi everyone just wondering... - Fibromyalgia Acti...

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Headache

Shartaylor0264 profile image
15 Replies

Hi everyone just wondering does anyone suffer with bad headaches 😩 with Fibromyalgia i have been suffering all week .my body hurts all the time just feeling so depressed with it just don't know what to do x

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Shartaylor0264 profile image
Shartaylor0264
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15 Replies
Blue-52 profile image
Blue-52

Morning, sorry to hear about your headaches, yes I suffer them too, mine is from nerve damage in my neck and spine, it travels up and boy are the headaches bad, the only thing I do is wear dark glasses, and lay in a dark room, and just try to relax. I hope you feel better soon.x

Shartaylor0264 profile image
Shartaylor0264 in reply to Blue-52

I had a spinal operation fusion decompression in 2020 have nerve damage so lost some feeling in my legs .just so fed up i get alot of headaches but this one i have had this week has been the worst. Thank you for replying x

Blue-52 profile image
Blue-52 in reply to Shartaylor0264

I am supposed to be having that operation, but I’m so badly claustrophobic I can’t do the MRI, and they said they can’t do the procedure without it, I asked them to send me somewhere, which had an open MRI, but apparently it’s too expensive.

I know how bad these headaches can get, o also suffer from migraines, have you thought about seeing your doctor, seeing as it’s going on so long .

Shartaylor0264 profile image
Shartaylor0264 in reply to Blue-52

Yeah should make an appointment. I know what you mean aboit MRI i have panic attacks i hate them .

Blue-52 profile image
Blue-52 in reply to Shartaylor0264

nooo I’m not going through that machine, although I’m in pain, I seriously can’t do it.

Suegault profile image
Suegault

Hi, yes I do,their constant and have been for year's.I have cerviogenic neck which is extremely painful, when I do anything to trigger it the pain comes over my face and can't really do anything.Had trigger point injections lidocaine,accupunture,physio, chiropractor, nothing helps.When it's not that facial pain I can just about put up with it.Headaches are miserable and not being able to find a solution to them is even worse.Really hope you find something to help you.

Purplelife123 profile image
Purplelife123

unfortunately I wake most mornings with a headache, I think is probably because I have a lot of pain in my neck. I am fortunate enough to be retired so I have ibuprofen beside my bed and take them whenever I wake and can stay in bed till it starts to go. I hope you find something suitable soon. Fibro is all about planning ahead.

Astonvilla68 profile image
Astonvilla68

Sorry to hear you’re struggling. I had bad head every day. It’s a now a thing of the past couple of things that I’ve helped me one of them. Migra-Eeze after two day of taking these I went from BH every day to 1/2 a week. I also have Botox injections in my skull and neck now I very rarely get headaches. It was the neurologist that recommended me to have the Botox injections. I don’t hurt bit of a sting but worth it. I have them every four months. Don’t stress, there is help out there try these things and I hope they help as much as they have helped me. Have a great weekend, love and strength

Game changer
Purplelife123 profile image
Purplelife123 in reply to Astonvilla68

Are these online I would like to give them a try.

Astonvilla68 profile image
Astonvilla68 in reply to Purplelife123

yep on Amazon 100% natural too which is a bonus, I hope they bring some relief 🤞

Cotswolds25121 profile image
Cotswolds25121

Ditto, sorry reason for short reply 🤦‍♀️🤷‍♀️🥰hope you are feeling free of them very soon 🤗x

Wobblygirl profile image
Wobblygirl

Almost every day I wake with a headache... I depend upon morning hydration in a big way, bananas for breakfast and a very restful approach to the day... I can't rush or hurry at all.If I go slowly I can meander a route around them until p.m. so I have to live without deadlines and I do nothing in the mornings!

If I hv to rush the headache becomes more severe and it feels like my head is going to implode. It is truly dreadful...

I wear migraine glasses always and hv medication for migraines which I can usually detect now! It is a hideous condition that takes away days of your existence. I saw a specialist who offered me faster acting medication but I still lose 24/36 hrs to each and every migraine. They all feel like a brain tumour and are very worrying indeed...

Try to keep calm and relax yr way through... they do pass+keep hydrated.

Maybe no achievements that day and try to be kind to yourself the next day...

Wxx

pamrosling profile image
pamrosling

My daughter has been bedbound with very severe Covid vaccine injury with ME & fibromyalgia symptoms, and has had very bad headaches and nerve pains for the past 2 years. She's been on Gabapentin (3 x 100mg per day) but our private doctor has now suggested a supplement called PEA (palmitoylethanolamide) which is apparently available over the counter at Holland and Barrett in UK. She also often asks for frozen lavender/wheat bags or gel-packs to go on her forehead and these seem to ease her headaches. I hope this helps & good luck!

Pickle12- profile image
Pickle12-

Hi Shartaylor0264, so sorry you are suffering with headaches, you are not alone. I suffer also some days can be worse than others. What I have done to help is buy a contoured pillow and have regular neck and shoulder massage to try and keep my muscles loose. It hasn’t stopped them completely but I do get some respite. I do hope you find something that will help you too gentle hugs 😊

Entela15 profile image
Entela15

I suffer from chronic migraine in addition to the muscle pain. I have to take medication for it as it’s unmanageable. Also trying Botox. See a headache specialist. They will give you the right diagnosis and a good treatment.

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