Fibromyalgia Mandatory reconsideration notice PIP

[Poppyrose2]

Hi everyone I'm new here.

I got diagnosed with fibromyalgia in January, I've been struggling for 3 years .

I've had lots of tests, xrays, mri scans...nothing comes up!!.

I'm on fluxotine, pregabalin, codeine and Naproxen.

This is my second time applying for PIP and yet again I've been refused.

The report is not 100% true.

I just wondered what should I include in my letter back asking for a mandatory reconsideration notice??

Can anyone please help??

Gemma

[CM1EDSUK]

Try & put the assessor's report behind you, as, unless there are one or 2 irrefutable errors, concentrating on this will not get you a PIP award.

As your diagnosis will not be disputed, think about where you feel you should have gained points & exactly why. Remember PIP is about how you are the majority of the time.

You should give a couple of recent, detailed examples as to the difficulty you face for each of the relevant activities/descriptors, i.e. when did it happen, where, what happened, did anyone see this, & were there any consequences to attempting/doing an activity such as fatigue or increased pain?

Say if you can't do an activity 'reliably,' i.e. safely, to an acceptable standard, repeat as often as one would reasonably expect, or if it takes you much longer than someone without a disability. See especially section 2.2 in this link as understanding about the concept of 'reliability' is so important with PIP: gov.uk/government/publicati...

Ensure you put your name & National Insurance number on each page of your letter. Keep a copy, & get a free Certificate of Posting from your Post Office when sending it off.

You have one month from the date on your decision letter to do a Mandatory Reconsideration. tho you can still do one within 13 months with good reason for any delay.

[Kindness22]

Hi! First of all don't be discouraged! Consider that it is not so much the diagnosis, but the effects of the diagnosis itself: how it affects your daily living activities and your mobility. Try to describe exactly what happens in reference to each descriptor and if and when your pain and all other symptoms gets worse. Describe specifically why you think the misjudgment has been made. Also, check out this site, it may be helpful!

benefitsandwork.co.uk/

Sorry for my English

[LaurieLee]

this website is very useful

UK M.E & Chronic Illness Benefits Advice Group are very useful as well

[ANJI-UK]

its all in the wording,and until u have diagnosis of your condition/s its pretty pointless because u be fighting for nothing as such, then go thru it all again when you DO HAVE diagnosis. You could do with someone that deals with this kinda thing for a living...and wins. I paid someone from a group 30 quid to fill my forms in with all my information and Drs reports ect but worded it differently, id been without money for over 12mth, so 30 quid was my last hope. My head is empty but around here we have or had i dont know anymore, a group called disability .....solutions i think it were called? If you in same area, staffordshire, then look them up and ask for their help. Theres folk there that can walk u thru it all and stand by you,maybe even go appeal court with you? But u need every scrap of official medical reports, diagnosis, names telephone No.s for them to contact and back up what u r saying, everything u can get your hands on ready to slap in front of them, Get your Dr.s, social worker if u have one behind u and good luck.