Here I go again!!!

Hello everyone, I was having a problem with logging on so all sorted. Does anybody suffer with chronic pain in their feet and legs.....what a nightmare

[Dizzytwo Moderator]

Hi there, have you checked out our search box? you will find 1000s of questions and answers both past and present. Here is one such post on leg pain. I hope it helps

healthunlocked.com/fibromya...

Momo

[Hidden in reply to Dizzytwo]

Thanks for that I will have a read, why is this all so frustrating

[Dizzytwo Moderator in reply to Hidden]

Hi, if I knew the answer to that question I would be very rich I'm sure LOL.

After 40yrs years of fibro I think I ran out of frustration many moons ago. Now I stop over thinking it and just go with the flow. Much easier and less stressful. It works for me 😊

[Hidden in reply to Dizzytwo]

It's the constant pain that is hard to deal with as you probably already know. Ive had a back problem for over 20 years and spondylitis in my neck for the last 10 yrs but this all-over pain ive had for about 1 year, the doctors look at you like youre an hypercondriac, i think ive spelt that right hahaha 😆 so they are now saying it's more than likely Fibromyalgia so I'm finally getting somewhere.

[Dizzytwo Moderator in reply to Hidden]

May I ask what are you expecting from getting a diagnoses of fibro.

I too have number of spinal problems. I have had to rely on a wheelchair for 20+years.

I have also tried the meds on offer including the pain meds. Sadly they never helped me.

I know they help many people with fibro and thats good.

But there is no cure for fibro and pain meds don't work for everyone.

I just worry when I read people desperate to get that fibro diagnose.

Some people think their pain and all the fibro symptoms will just go away with the meds. And then they get very low if they dont get the relief they are expecting.

What pain meds are you on now if I may ask?

I don't want to sound like a downer but I do like people to be prepared that unfortunately life does not alway change with a fibro dignoses.

Momo

[Hidden in reply to Dizzytwo]

I just want someone to say this is wats wrong with you to stop me from feeling like I'm not going mad.I'm taking pregabalin and Co codamol which take the edge off things but I know it's about having a positive way of life.

Can I ask, how do you manage to cope with wat life deals you?

I tell myself stop moaning and just get on with it.....

[Dizzytwo Moderator in reply to Hidden]

Hi Punta, everyone deals with chronic illness in their own way.

And please don't think I dont have my down days even bad weeks.

I guess dealing with fibro come with experience like everything in life.

I spent 10 years searching for answers. Not to mention loads of money looking for the magic cure. Then I finally realised I needed to learn to live with fibro and not spend precious time fighting it.

No I don't call that giving in. I called it starting to live and thinking about my 2 small children.

Constantly worrying and wondering only what if. And why me. That kind of thinking takes up a lot of time and energy. It can become quite exhausting.

And I also realised I had lost 10yrs of my life and did not wish to live in limbo for the next 10yrs.

I am sure you too will with time find your own way of dealing with this awful illness.

If I had to give one piece of advise that helped me was keep moving. Laying in bed or sitting around every day definitely causes more pain xx

[Hidden in reply to Dizzytwo]

Thanks for all your advice, I'm a carer for the elderly so they can stay in their own homes. I love my job even though I struggle everyday I dnt want to give it up and this keeps me moving.I will learn to live with it because life is too short.

Thanks for listening to me. Xx

[Dizzytwo Moderator in reply to Hidden]

🤗🤗🤗

[Luv2quilt in reply to Dizzytwo]

Dizzytwo, I think you have the right spirit. Living with Fibro is an endurance thing. I will take amnytriptoline (so?) for a few days when it gets bad and I not able to sleep well, or move much, but get off it once it’s tolerable. There is no cure like you said. It’s my “normal”. I take it one day at a time; relish the good days, and give grace to myself on the bad. Last year I changed Dr.s and surprisingly he really listened to how I was describing my pain. He got it and said what I was describing was in line with muscle weakness (my legs in particular, though I have aching, gnawing pain the rest of my body, some more painful than the others) and that kind of “pain” aligns with Multiple Sclerosis. I was NOT thrilled! It took me a few days to get over the discouragement and panic when I told myself it’s just a label change if I have MS. Like Fibro, MS doesn’t have a cure. Though there are meds that can help slow the progression of the disease. I have to see a neurologist and will at some point. I had other concerns that were more pressing. Will pursue that soon. Regardless, I find that focusing on what I’ve “lost” in terms of normal quality of life robs you of precious moments. As does worrying about how much worse you might be in the future. You are not what you do. Our value and worth doesn’t come from what we are able to accomplish. It’s in who you are; the attitude, spirit, wisdom, way you treat others in your suffering that gives you value. I’m not saying that we should be wearing the mask of “I’m fine”, “doing great”, “happy all the time”. That’s projecting a lie. We should be honest with others about our present pain condition, but be positive in the midst of it. And it sounds to me that you, Dizzytwo are doing just that 🙂

[Dizzytwo Moderator in reply to Luv2quilt]

You put it much better than me. But I do agree with what you say. I too am not always wearing the I am fine mask. But I personally find the less I say the more inclined people are to offer a ear when I need it.

I would hate to think I was seen as one of those people who you really don't want to bump into 😂

We all have bad days it's normal. But for me living in the past is not an option. There is still a lot of life left after fibro. I guess it's how we want to live that life that counts. Some days we can enjoy it better than others.

But from experience I do know those better days will come round again. Its not the life I would have choosen thats for sure lol But its the life I have been given. And life to me is very precious on any level ❤️

[Luv2quilt in reply to Dizzytwo]

totally agree with your perspective. May the Lord continue to give you great peace and a lot more good days than bad. 🥰

[Hidden in reply to Dizzytwo]

you're so Right .pain is so very hard to live with, there is unexplained pain doesn't mean you have Fibro, to be honest after living with it for over 60 years i absolutely hate the word Fibromyalgia, doctors give you that name when they can't explain your Symptoms doesn't mean a thing , because they now give you antidepressants or anti seizure meds these are NOT proven to relieve pain there have not been enough trials although some people get relief for nerve pain good luck to them and a lot of it is because you believe they work , so they do , opioid meds they avoid because of years ago people were so called hooked on them so to get relief they had to take more and more , people need to research their symptoms and see what it could be, it's become only too easy to say you have Fibromyalgia, it's almost an epidemic, and you have to do gentle exercise because not doing so effect's the joints the heart and the mind , people go to doctor with pain and say I think I have fibromyalgia easy for doctor to say oh yes ok here's some tablets , all meds have side effects, oh god I could go on and on , I've done so much research over the years , just accept your symptoms or research them

[Luckylady1978 in reply to Hidden]

they never give you a proper answer either do they ,you ask questions about a certain ache or pain that you’re not sure if it’s fibromyalgia and they just say yes it’s probably the fibromyalgia and you come out more confused than when you went into the doctors room!

[Wobblygirl in reply to Dizzytwo]

Hello there, I'm sorry for being dim but how do I locate the search engine please? I'm sure looking at previous responses for painful,buzzing in dominant arm will help me cope a little better...Thank you in advance, Wx

[Dizzytwo Moderator in reply to Wobblygirl]

Hi there, if you look on the top line. Where it says my feed, my hub etc. You will see a icon magnifying glass with search underneath. Just press on it. I hope this helps 😊

[Wobblygirl in reply to Dizzytwo]

Think I've followed yr instructions but it appears to hv become a new post!Didn't want folk 2 repeat when they're in pain...

Typing here is agony!!!

I live in hope!

Thanks 4 yr assistance xxx

[Dizzytwo Moderator in reply to Wobblygirl]

Hi wobbley, I am not sure why it is doing that. I have just scrolled up and hit the icon and a long box comes up and says search health unlocked. You then just put in a question 🤔

[jonelmes1978]

I have nasty pains in my feet running up the back of my legs. The burning then the wet feeling

[Annalees]

Hi, sorry you're suffering. Have you tried magnesium oil for the pain you describe? I find it really help.

[Hidden]

Wat do you do with it ......rub it in or swallow it🤔

[Iamthemedicalmystery in reply to Hidden]

You can buy a magnesium spray on Amazon. I find it helps with restless legs and the aching. I mostly suffer with leg and feet pain. The last year I've suffered with my feet and lower legs turning into bright red burning like they are on 🔥. I'm waiting for a drs appointment as I'm really struggling to cope with it. Here is a photo I took the other day , I want to cut them off sometimes because the pain is so awful.

Painful burning feet

[Luv2quilt in reply to Iamthemedicalmystery]

How awful! So sorry to hear of your suffering. 😪.

Thanks for the tip Re Magnesium spray. I sometimes get really painful calf spasms at night. Maybe that will help.

[Cotswolds25121 in reply to Hidden]

😂

[trip77]

Yep, pretty much constant. More so when the weather changes like it has the past few days. Hands and back also get worse with this weather. I don't understand why, I hear its barometric pressure changes or something, but whatever it is, could it please take a running jump!!! 😁

[Hidden in reply to trip77]

I agree just go away now!!!!!

[Luv2quilt in reply to trip77]

yep!! Ditto for me. I can feel rain coming hours before you see the clouds appear. The pressure/pain can be overwhelming, especially if it is a fast approaching, intense thunderstorm (I live in America-east coast in the South). I go from being able to walk with little to no pain to barely being able to put one foot in front of the other-like dragging 20 pound weights. And severe aching all over. Once the rain comes I start to feel a bit better but I can be in pain for days/weeks after. You just have to go with the flow.

[trip77 in reply to Luv2quilt]

Sounds just like myself. 🙂

[Hidden]

Omg they look painful hope you get it sorted😒my feet feel like ive been out dancing all night in 6 inch heels which I havnt done for many years🤦‍♀️I've been awake most of the night with this and pains in my legs and wen I did sleep I was a gangsters moll......must be the tablets 😂😂

[Maud-ie]

Yes constantly. Groin, thighs, shins, ankles and balls of feet hurt like crazy limiting my mobility enormously.

[JJJA]

yes and it’s the worst! I use compression gloves, socks and leggings and that helps with pain and swelling but still a nightmare

[Smoggie1]

I get weird symptoms..if my fibromyalgia is playing up I get itching in my left heel of my foot that want to scrape to make it go away as it is constantThen I get plantar fascitis in that same foot..chronic pain in back of ankle and heel..so have to wear mule type sandals most of time so to not aggravate it.i also hate my feet being too warm..

I also get pain in soles if feet and in toes and ankles..but not sure if part of this is arthritis as I have it bad in hads knees hips ect.. but it all adds up and is frustrating.

I try to get help with any build up of hard skin on feet as that seems to add to the pain .. so filling spinning contraption to sand it away and then creams..

Unfortunately I have found nothing to correct it..I thought maybe acupuncture.. but physio on NHS said do not give for patients with fibromyalgia.. even though I said it pain from possible arthritis.

Let us know if you do find something that really helps. Good luck.

[Jaynefrombarry1]

yea punta, I’m having trouble at the moment with my feet…. Walking, sleeping they’re hurting all the time.. one foot more so than the other xxx

[1whitestar]

Yes I do my feet are swollen and I am needing the next size up in trainers and socks.

[Hidden in reply to 1whitestar]

I sometimes feel like my hands and feet dnt belong to me.....they feel swollen but they ain't????

[Debsdelight72]

Glad your logged in,

Good morning Punta,

You asked about the pain in your legs and feet, Part of reason for me to use a power chair and scooter I call the pain in my feet , Lego feet, My doctor and Hubby know exactly what I mean,

If you've ever stepped on lego with no shoes on, Or the prongs of a plug!!I now have what my Hubby calls the screaming pillow, (something he saw on an American show ,I scream and shout into the pillow and have been known to swear into it too.

My poor neighbours thought I'd had a fall again so not to bother them this was the next best thing,I have Osteo in my right knee,Sometimes it clicks forward, Then comes the fall.

I cant have a knee replacement because I'm too fat (my words, not theres,)So I just carry this blooming pillow all the time, I know any other pains can be chalked up as Fibro but anything new or too much to cope with,I get a call back from the Docs and Hubby goes and collects the wired through scrip usually Diazapan to try and release whats left of my muscles, Try and get a call back or a pillow till Monday or go to a walk in centre if you cant bare it anymore.

Take care and never think you are alone with this crappy Fibro

[Hidden in reply to Debsdelight72]

Well chuck it sounds like you've still got your sense of humour 😉 but I must get me one of those pillows🤪😱😆😆😆keep smiling bird xx

[Debsdelight72 in reply to Hidden]

It's all I have left, With the pillow I got it from Dunelm as a treat for my self, It really does help. 😆 enjoy the rest of the day

[Suffering2021]

yes i do , everywhere I have pain . My left arm is very troublesome and it’s all in my hands very dibilitating. I hope you can get relief i find heat pad helps nothing goes away but makes it a bit more bearable that and tramadol 😊